doctor's reaction to SCD

[Guest guest]

Hi all,

I just wanted to share that I had to take my son in to his GI for a follow-up.

The 6MP was not helping and we needed to discuss what was going to happen next.

I mentioned that we had started the diet this past Sunday, how his symptoms had

improved, etc. He did not really respond or ask questions. The only thing he

could focus on was my son's weight loss and that he didn't look to happy to be

on the diet (which he isn't so much but was doing it) and had the nerve to say,

" Who's idea was this yours or your folks? " I went on to say that the diet made

sense to me and that people have had success. The fellow who was in the room

said, " Well, the people will get on there and give their testimony about how

well the diet worked for them then they have a relapse and you never get to read

about that. " This was all being said in front of my son who is hanging on to the

diet by his fingernails, not really wanting to do it but willing to try. So, it

ended with them discussing the fact that has lost quite a bit of weight and

they have to do something to get the disease under control. We got the speech

about Remicade and my son (who is almost 18) said that he doesn't think he can

do the diet and wants to try the R. I just started crying right there in the

office. I am so sad and aggravated. I just do not know how I can reason with

him. Reason is on my side and this drug is just " management " with zero healing

taking place.

I apologize for how long-winded this is. I am just so frustrated by the complete

non-supportive attitude that exists in the medical community. They were both

looking at me like I was a little nutty for even considering the diet at all.

Please share your thoughts.

Sherry

mom to 17 CD

dx Aug. 09