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,

Good luck with it all. The fact that CT agreed to band your child means that they believe that there is a chance for change. Did they tell you how many band he will need. Are they going for just one band? Which CT location are you using?

Leila,Maysa, 16.5 mo, DOC band Grad 5/29/09www.mymaysa.wordpress.com

From: mathison039 <mathison039@...>Subject: Banding at 22 monthsPlagiocephaly Date: Tuesday, June 9, 2009, 4:50 PM

Hello everyone,My wife and I just banded our son, Jr., at the beginning of June at the ripe old age of 22 months (21 months adjusted). He's loving his helmet (not trying to take it off or anything) and his twin sister (helmet-less) is (surprisingly) not trying to remove it, either. Weather's been cool - no issues with sweating or smell almost one week in.Anyway, long story short, we made mistakes in the past (relying on others instead of ourselves) and are obviously late in the game. We have realistic expectations (realizing it is very likely we'll get no change due to the late age). Here are 's initial stats, as I recall them:Traditional Cranial Vault: 14 mmCranial Vault: 8 mmMid Face: 0 mmSkull Base: 3 mmCephalic Index: 90%We are using CT (Doc Band), and they've been great. Wish we didn't wait until this late to meet them, but unfortunately we can't travel back in time and schedule an

earlier appt....I might have the cranial vault and traditional cranial vault numbers mixed up (reversed) above......Fingers crossed, but realistic. Obviously a good chance our ending numbers will look similar to our beginning numbers, but who knows - maybe we'll be able to win the lottery and improve some of these numbers a mm or two......I'd be thrilled with that. Sr. Jr. - Doc Band 6/09 at 22 months (21 adjusted)

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Leila,

Thanks a lot for the words of encouragement. We definitely communicated (when

calling them for the initial appointment) that we understood the odds involved

at this point. I think that helped in being able to proceed. They actually

seemed more hopeful than I expected. But I am still going in expecting little

to no change. Reading these boards, I see children had success getting banded

at about 21 months in one case (second band, I believe) and another case on the

" older plagio " board where a person had some improvement even at 24 months (I

think it was 2 - 3 mm of improvement, which would be great if we could achieve

similar results). But I also noted there were many who posted who had little to

no measureable improvement at this point (including some with no improvement who

helmeted much younger than my son).

We are using the Chicago-area offices of CT. The people there are great. At

this point, only one band was discussed (to be used for 16 weeks, if I recall

correctly). If we get to the point where they mention that another band would

be beneficial, I would be thrilled (as it would likely mean we were still

experiencing some sort of change towards the end of this band).

I took , Jr. and his twin sister to a park yesterday, and he fell face

first from one level of a big toy to another. Luckily, the main landing point

was on his forehead, or should I say, on his helmet. What looked to be really

painful was not at all - he got up right away and played some more. And the

helmet was fine, too. So, no matter how things turned out, the helmet's already

helped him!

By the way, I just looked at your daughter's site, and she is looking great!

You should be proud of everything you did for her.

, Sr.

Jr. - Doc Band 6/09 at 22 months (21 adjusted)

>

>

> From: mathison039 <mathison039@...>

> Subject: Banding at 22 months

> Plagiocephaly

> Date: Tuesday, June 9, 2009, 4:50 PM

>

>

>

>

>

>

>

>

> Hello everyone,

>

> My wife and I just banded our son, Jr., at the beginning of June at the

ripe old age of 22 months (21 months adjusted). He's loving his helmet (not

trying to take it off or anything) and his twin sister (helmet-less) is

(surprisingly) not trying to remove it, either. Weather's been cool - no issues

with sweating or smell almost one week in.

>

> Anyway, long story short, we made mistakes in the past (relying on others

instead of ourselves) and are obviously late in the game. We have realistic

expectations (realizing it is very likely we'll get no change due to the late

age).

>

> Here are 's initial stats, as I recall them:

> Traditional Cranial Vault: 14 mm

> Cranial Vault: 8 mm

> Mid Face: 0 mm

> Skull Base: 3 mm

> Cephalic Index: 90%

>

> We are using CT (Doc Band), and they've been great. Wish we didn't wait until

this late to meet them, but unfortunately we can't travel back in time and

schedule an earlier appt....

>

> I might have the cranial vault and traditional cranial vault numbers mixed up

(reversed) above......

>

> Fingers crossed, but realistic. Obviously a good chance our ending numbers

will look similar to our beginning numbers, but who knows - maybe we'll be able

to win the lottery and improve some of these numbers a mm or two......I'd be

thrilled with that.

>

> Sr.

> Jr. - Doc Band 6/09 at 22 months (21 adjusted)

>

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,

How is it going with little ? It's now been about a month, correct? Has there been any correction and have they had to shave any foam off yet?

I'm curious because I have an appointment in a week for a consult at CT for . She'll be 22.5 months by then. We are going to the office in VA. I'm not sure whether they'll agree to band her, but they didn't say anything about her age when I called and asked for the consult. To be honest, I'm not even 100 percent sure that I want to do another band, but I'm just not happy with our end result. I guess I'd also like a second opinion about her severity, how noticable it looks, etc, as well as another set of measurements. I put her STARband on her at night following her graduation for about a month because I was worried about regression. So, it's possible that there was some small additional improvement or that I was right about the regression and it's worse now. Or, it may be the same, but I think that the measurements will help me. Of course, these will be hand measurements versus a computer scan, but I'd still like to know.

I think that some people may think that I'm crazy or obsessed or something, but I can clearly see her brachy from about a 45 degree angle from the back. From the front, I honestly see little and so perhaps I should just be happy that it's not visible from that angle. The sides are also not too bad, although there is less rounding than I see on most others. So, I'll be meeting with the CT office in VA on the 13th and will need to make a quick decision about whether to do the second band. I know that insurance will not cover it so it'll be $3600 out of pocket.

If I don't band, then I may look into more CST or some of the other treatments that are discussed on the older plagio list. Some use something like activator chiro, but I know that our insurance wouldn't cover chiro services so that would be out of pocket as well. Or, I could just let her head grow and hope that I (and she) don't regret it. I would really hate for her to come back to me as a teenager and ask me why her head is shaped different than her friends. For girls, hair may cover more, but girls are also judged more on their appearance than boys.

Banding at 22 months> Plagiocephaly > Date: Tuesday, June 9, 2009, 4:50 PM> > > > > > > > > Hello everyone,> > My wife and I just banded our son, Jr., at the beginning of June at the ripe old age of 22 months (21 months adjusted). He's loving his helmet (not trying to take it off or anything) and his twin sister (helmet-less) is (surprisingly) not trying to remove it, either. Weather's been cool - no issues with sweating or smell almost one week in.> > Anyway, long story short, we made mistakes in the past (relying on others instead of ourselves) and are obviously late in the game. We have realistic expectations (realizing it is very likely we'll get no change due to the late age). > > Here are 's initial stats, as I recall them:> Traditional Cranial Vault: 14 mm> Cranial Vault: 8 mm> Mid Face: 0 mm> Skull Base: 3 mm> Cephalic Index: 90%> > We are using CT (Doc Band), and they've been great. Wish we didn't wait until this late to meet them, but unfortunately we can't travel back in time and schedule an earlier appt....> > I might have the cranial vault and traditional cranial vault numbers mixed up (reversed) above......> > Fingers crossed, but realistic. Obviously a good chance our ending numbers will look similar to our beginning numbers, but who knows - maybe we'll be able to win the lottery and improve some of these numbers a mm or two......I'd be thrilled with that.> > Sr.> Jr. - Doc Band 6/09 at 22 months (21 adjusted)>

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Hi ,

I didn't know for sure that you were taking for a consult at CT. Their approach is different and they will take some pictures of her. I think the pictures are what I like the most. Their hand measurements are just that, hand measurements, not as accurate as the STAR scanner in my opinion.

I think that in the month following Maysa's graduation she went through a growth spurt. Her shoes don't fit anymore and I had to get her a new pair. Her dresses are getting shorter, she has gained over two pounds in a month and it seems like her head has gotten bigger and wider, I am afraid to say... It is not flat in the back, just wider in the front, and I see it.

Oh well, keep me posted on what CT has to say.

Good luck,

Leila,

Maysa, 17.5 mo, DOC band Grad 5/29/09www.mymaysa.wordpress.com

From: melanie.watson@... <melanie.watson@...>Subject: Re: Banding at 22 monthsPlagiocephaly Date: Monday, July 6, 2009, 8:50 AM

,

How is it going with little ? It's now been about a month, correct? Has there been any correction and have they had to shave any foam off yet?

I'm curious because I have an appointment in a week for a consult at CT for . She'll be 22.5 months by then. We are going to the office in VA. I'm not sure whether they'll agree to band her, but they didn't say anything about her age when I called and asked for the consult. To be honest, I'm not even 100 percent sure that I want to do another band, but I'm just not happy with our end result. I guess I'd also like a second opinion about her severity, how noticable it looks, etc, as well as another set of measurements. I put her STARband on her at night following her graduation for about a month because I was worried about regression. So, it's possible that there was some small additional improvement or that I was right about the regression and it's worse now. Or, it may be the same, but I think that the measurements will help me. Of course, these will be hand measurements versus a computer scan, but I'd still like to know.

I think that some people may think that I'm crazy or obsessed or something, but I can clearly see her brachy from about a 45 degree angle from the back. From the front, I honestly see little and so perhaps I should just be happy that it's not visible from that angle. The sides are also not too bad, although there is less rounding than I see on most others. So, I'll be meeting with the CT office in VA on the 13th and will need to make a quick decision about whether to do the second band. I know that insurance will not cover it so it'll be $3600 out of pocket.

If I don't band, then I may look into more CST or some of the other treatments that are discussed on the older plagio list. Some use something like activator chiro, but I know that our insurance wouldn't cover chiro services so that would be out of pocket as well. Or, I could just let her head grow and hope that I (and she) don't regret it. I would really hate for her to come back to me as a teenager and ask me why her head is shaped different than her friends. For girls, hair may cover more, but girls are also judged more on their appearance than boys.

Banding at 22 months> Plagiocephaly@ groups.

com> Date: Tuesday, June 9, 2009, 4:50 PM> > > > > > > > > Hello everyone,> > My wife and I just banded our son, Jr., at the beginning of June at the ripe old age of 22 months (21 months adjusted). He's loving his helmet (not trying to take it off or anything) and his twin sister (helmet-less) is (surprisingly) not trying to remove it, either. Weather's been cool - no issues with sweating or smell almost one week in.> > Anyway, long story short, we made mistakes in the past (relying on others instead of ourselves) and are obviously late in the game. We have realistic expectations (realizing it is very likely we'll get no change due to the late age). > > Here are 's initial stats, as I recall them:> Traditional Cranial Vault: 14 mm> Cranial Vault: 8 mm> Mid Face: 0 mm> Skull Base: 3 mm> Cephalic

Index: 90%> > We are using CT (Doc Band), and they've been great. Wish we didn't wait until this late to meet them, but unfortunately we can't travel back in time and schedule an earlier appt....> > I might have the cranial vault and traditional cranial vault numbers mixed up (reversed) above......> > Fingers crossed, but realistic. Obviously a good chance our ending numbers will look similar to our beginning numbers, but who knows - maybe we'll be able to win the lottery and improve some of these numbers a mm or two......I'd be thrilled with that.> > Sr.> Jr. - Doc Band 6/09 at 22 months (21 adjusted)>

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,

You're right - its been a little over a month already. Time goes really fast!

A not-so-quick summary of how things have gone so far (I apologize for the

length):

* DOC band started 6/3/09

* First follow-up at CT on 6/22/09. Shavings occurred on both on one side of

the front and the oppostive side of the back (the " shorter " sides). Comparing

to a " popsicle " of his head, all of us agreed his widest portions seemed less

" pointed " . Also, the longest portion in back seemed to be better centered in

the back (versus slightly on the non-flat side). Nothing dramatic, but seemed

we could see slight improvements visually in those areas. No measurements or

computer scans taken though, other than a tape measure of his head circumference

which (unfortunately) showed little or no growth - but she mentioned with his

age this is quite normal for not yet 3 weeks of banding. Not sure why things

looked better with little or no growth....weird. Thought we'd need growth for

that to happen. Hope I was not imagining things but it does seem somewhat

better....

* My own " pictures from the top " were taken on 6/23/09 by me after a bath

(before putting the band back on) and I compared them to pictures taken by me in

May (making measurements using a Photo program). The " average " of the

measurements seemed to confirm that there might be minor improvements in the

cephalic index and the diagonal differences between the May pictures and the

June ones. Of course, subject to measurement error by a non-expert at this sort

of stuff :)

* Next follow-up at CT is on 7/13/09.

Summary: Feel like we are seeing minor improvements after just a few weeks (now

nearing 5 weeks), which is honestly what we hoped to see (but honestly didn't

expect) once we were through the entire banding period (still not sure how long

this will last at this point). We were fully prepared for no changes, but it

was worth the risk (and seems we might be getting a bit lucky so far). My

thought is the chance for any improvement, no matter how minor, is worth the

time and money spent (admittedly we're lucky to both have good, high-paying and

flexible jobs to allow us to do this - not sure what we'd do if we were less

fortunate in this regard).

I guess my advice for you would be to do exactly what you are doing: go for the

initial consultation, see what the measurements are, and then make a decision

from there (if you'd like to DOC band, you might need to convince them that you

are realistic in your expectations (i.e. there might very well be no change) to

convince them to agree to it).

Sr.

Jr. - 23 months old - Doc Band 6/3/09 at 22 months (21 adjusted)

> >

> >

> > From: mathison039 <mathison039@>

> > Subject: Banding at 22 months

> > Plagiocephaly

> > Date: Tuesday, June 9, 2009, 4:50 PM

> >

> >

> >

> >

> >

> >

> >

> >

> > Hello everyone,

> >

> > My wife and I just banded our son, Jr., at the beginning of June at

the ripe old age of 22 months (21 months adjusted). He's loving his helmet (not

trying to take it off or anything) and his twin sister (helmet-less) is

(surprisingly) not trying to remove it, either. Weather's been cool - no issues

with sweating or smell almost one week in.

> >

> > Anyway, long story short, we made mistakes in the past (relying on others

instead of ourselves) and are obviously late in the game. We have realistic

expectations (realizing it is very likely we'll get no change due to the late

age).

> >

> > Here are 's initial stats, as I recall them:

> > Traditional Cranial Vault: 14 mm

> > Cranial Vault: 8 mm

> > Mid Face: 0 mm

> > Skull Base: 3 mm

> > Cephalic Index: 90%

> >

> > We are using CT (Doc Band), and they've been great. Wish we didn't wait

until this late to meet them, but unfortunately we can't travel back in time and

schedule an earlier appt....

> >

> > I might have the cranial vault and traditional cranial vault numbers mixed

up (reversed) above......

> >

> > Fingers crossed, but realistic. Obviously a good chance our ending numbers

will look similar to our beginning numbers, but who knows - maybe we'll be able

to win the lottery and improve some of these numbers a mm or two......I'd be

thrilled with that.

> >

> > Sr.

> > Jr. - Doc Band 6/09 at 22 months (21 adjusted)

> >

>

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Leila,

I've noticed from your website posts, that you wet down Maysa's hair and put it in a pony tail for her pictures at CT. 's hair is not so thick and curly, but it is getting long and from the side, it will be difficult to see anything. Do they typically do this for the pictures or should a plan on bringing something to tie her hair back. Of course, lately she screams if I try to put it in a pony tail. She also hated the scanner so I'm thinking that she'll probably hate this less.

I'm really hoping that CT's more holistic way of viewing the head will help me decide what to do.

Wow - two pounds in a month? A growth spurt for is about 1 pound in 6 weeks, but she's smaller than most (23 pounds now). It's too bad that the growth spurt occurred after Maysa graduated, but it seems to me that the growth spurt we caught for in the helmet was between 15 and 16.5 months. 's feet have just grown and her size 6 shoes are getting snug. I'm wondering whether she's about to have a growth spurt herself.

I'll let you know how the appointment goes.

, mom to , 22 months

Banding at 22 months> Plagiocephaly> Date: Tuesday, June 9, 2009, 4:50 PM> > > > > > > > > Hello everyone,> > My wife and I just banded our son, Jr., at the beginning of June at the ripe old age of 22 months (21 months adjusted). He's loving his helmet (not trying to take it off or anything) and his twin sister (helmet-less) is (surprisingly) not trying to remove it, either. Weather's been cool - no issues with sweating or smell almost one week in.> > Anyway, long story short, we made mistakes in the past (relying on others instead of ourselves) and are obviously late in the game. We have realistic expectations (realizing it is very likely we'll get no change due to the late age). > > Here are 's initial stats, as I recall them:> Traditional Cranial Vault: 14 mm> Cranial Vault: 8 mm> Mid Face: 0 mm> Skull Base: 3 mm> Cephalic Index: 90%> > We are using CT (Doc Band), and they've been great. Wish we didn't wait until this late to meet them, but unfortunately we can't travel back in time and schedule an earlier appt....> > I might have the cranial vault and traditional cranial vault numbers mixed up (reversed) above......> > Fingers crossed, but realistic. Obviously a good chance our ending numbers will look similar to our beginning numbers, but who knows - maybe we'll be able to win the lottery and improve some of these numbers a mm or two......I'd be thrilled with that.> > Sr.> Jr. - Doc Band 6/09 at 22 months (21 adjusted)>

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Another update, as I am guessing a few of you with older children are curious

about our progress:

Jr. had another CT meeting on 7/13/09 (now about 5 1/2 weeks since

starting the helmet). In the 5 1/2 weeks, his head has grown 3 mm (not bad for

his age, but about what a younger child (say 6 months) probably gets in a week).

Visually, everyone thought his head looked more proportional in terms of

length/width (got a bit longer, and any growth in width seemed to be in areas

that were not the widest portion). Forehead might be looking a little more

even, but hard to tell. They did some more shavings, and also told us not to

tighten the DOC band as much as we were - oops! Overall, pleased with the

progress thus far considering the age.

Sr.

Jr. - 23 months old - Doc Band 6/3/09 at 22 months (21 adjusted)

PS: CT measurements at start were 14 mm vault assymetry, 90% cephalic index

(Skull base and mid-face measure normal at 3 mm and 0 mm assymetry).

Starscanner (SS) measurements (taken a month or so prior to CT and helmet

initiation) were 8 mm vault assymetry and 92% cephalic index. Differential in

vault assymetry measurements between CT and SS might be (my guess) due to SS

taking the measurements at a predetermined/automatic spot (+/- 30 degrees at

section 3) whereas CT takes it at the flattest spot (not necessarily the same

spot SS would)?

> > >

> > >

> > > From: mathison039 <mathison039@>

> > > Subject: Banding at 22 months

> > > Plagiocephaly

> > > Date: Tuesday, June 9, 2009, 4:50 PM

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > Hello everyone,

> > >

> > > My wife and I just banded our son, Jr., at the beginning of June at

the ripe old age of 22 months (21 months adjusted). He's loving his helmet (not

trying to take it off or anything) and his twin sister (helmet-less) is

(surprisingly) not trying to remove it, either. Weather's been cool - no issues

with sweating or smell almost one week in.

> > >

> > > Anyway, long story short, we made mistakes in the past (relying on others

instead of ourselves) and are obviously late in the game. We have realistic

expectations (realizing it is very likely we'll get no change due to the late

age).

> > >

> > > Here are 's initial stats, as I recall them:

> > > Traditional Cranial Vault: 14 mm

> > > Cranial Vault: 8 mm

> > > Mid Face: 0 mm

> > > Skull Base: 3 mm

> > > Cephalic Index: 90%

> > >

> > > We are using CT (Doc Band), and they've been great. Wish we didn't wait

until this late to meet them, but unfortunately we can't travel back in time and

schedule an earlier appt....

> > >

> > > I might have the cranial vault and traditional cranial vault numbers mixed

up (reversed) above......

> > >

> > > Fingers crossed, but realistic. Obviously a good chance our ending numbers

will look similar to our beginning numbers, but who knows - maybe we'll be able

to win the lottery and improve some of these numbers a mm or two......I'd be

thrilled with that.

> > >

> > > Sr.

> > > Jr. - Doc Band 6/09 at 22 months (21 adjusted)

> > >

> >

>

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,

Glad to hear that things seem to be looking better. Will you at any point take your son back to Orthomerica to get his head rescanned? Maybe at the end of treatment with CT?

Leila,

Maysa, 17.5 mo, DOC band Grad 5.29.09

www.mymaysa.wordpress.com

From: mathison039 <mathison039@...>Subject: Re: Banding at 22 monthsPlagiocephaly Date: Tuesday, July 14, 2009, 11:46 AM

Another update, as I am guessing a few of you with older children are curious about our progress: Jr. had another CT meeting on 7/13/09 (now about 5 1/2 weeks since starting the helmet). In the 5 1/2 weeks, his head has grown 3 mm (not bad for his age, but about what a younger child (say 6 months) probably gets in a week). Visually, everyone thought his head looked more proportional in terms of length/width (got a bit longer, and any growth in width seemed to be in areas that were not the widest portion). Forehead might be looking a little more even, but hard to tell. They did some more shavings, and also told us not to tighten the DOC band as much as we were - oops! Overall, pleased with the progress thus far considering the age. Sr. Jr. - 23 months old - Doc Band 6/3/09 at 22 months (21 adjusted) PS: CT measurements at start were 14 mm vault assymetry, 90% cephalic index (Skull base and mid-face measure

normal at 3 mm and 0 mm assymetry). Starscanner (SS) measurements (taken a month or so prior to CT and helmet initiation) were 8 mm vault assymetry and 92% cephalic index. Differential in vault assymetry measurements between CT and SS might be (my guess) due to SS taking the measurements at a predetermined/ automatic spot (+/- 30 degrees at section 3) whereas CT takes it at the flattest spot (not necessarily the same spot SS would)? > > > > > > > > > From: mathison039 <mathison039@ > > > > Subject: Banding at 22 months > > > Plagiocephaly > > > Date: Tuesday, June 9, 2009, 4:50 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello everyone, > > > > > > My wife and I just

banded our son, Jr., at the beginning of June at the ripe old age of 22 months (21 months adjusted). He's loving his helmet (not trying to take it off or anything) and his twin sister (helmet-less) is (surprisingly) not trying to remove it, either. Weather's been cool - no issues with sweating or smell almost one week in. > > > > > > Anyway, long story short, we made mistakes in the past (relying on others instead of ourselves) and are obviously late in the game. We have realistic expectations (realizing it is very likely we'll get no change due to the late age). > > > > > > Here are 's initial stats, as I recall them: > > > Traditional Cranial Vault: 14 mm > > > Cranial Vault: 8 mm > > > Mid Face: 0 mm > > > Skull Base: 3 mm > > > Cephalic Index: 90% > > > > > > We are using CT (Doc Band), and they've

been great. Wish we didn't wait until this late to meet them, but unfortunately we can't travel back in time and schedule an earlier appt.... > > > > > > I might have the cranial vault and traditional cranial vault numbers mixed up (reversed) above...... > > > > > > Fingers crossed, but realistic. Obviously a good chance our ending numbers will look similar to our beginning numbers, but who knows - maybe we'll be able to win the lottery and improve some of these numbers a mm or two......I'd be thrilled with that. > > > > > > Sr. > > > Jr. - Doc Band 6/09 at 22 months (21 adjusted) > > >> >>

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Leila,

Great question. I think, if my child was younger, I would be all for getting

another scan from Orthoamerica at the end of treatment, just to doubly confirm

things and determine if I wanted to pursue further banding steps. But being in

the advanced age scenario my son is in, as long as I can see some visual

improvement (as we already have) and the CT manual numbers improve even

minimally to confirm what we see, I will feel like I got more in this process

than I expected and will be happy with the results and happy CT gave us a chance

when no one else would. (No matter what happens, in fact, I will be happy CT

gave us a chance).

Getting an Orthoamerica scan at completion might confirm the change. But if it

contradicted the visual changes as well as the hopefully improved CT

measurements, I would feel kinda (ok, REALLY) bad. And he'd be over 24 months

adjusted anyway, so nothing I'd be able to do about it. So I think I'll pass on

getting such a scan at the end.

Sr.

Jr. - 22.5 months old adjusted - Doc Band 6/3/09 at 21 months adjusted

>

> ,

>  

> Glad to hear that things seem to be looking better.  Will you at any point

take your son back to Orthomerica to get his head rescanned?  Maybe at the end

of treatment with CT?

>  

> Leila,

> Maysa, 17.5 mo, DOC band Grad 5.29.09

> www.mymaysa.wordpress.com

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