Guest guest Posted August 31, 2008 Report Share Posted August 31, 2008 Hey Guys, Thought I would share what has been happening lately and I am pretty disappointed. My rheumatologist was writing my orders for cytoxan and everything was well. My neuro doesn't do any infusions except for MS. Well, the rheumy, who also did pain management has had his medical license suspended temporarily. He has a hearing scheduled in September but my fear is that he will either have a long suspension or he will loose his license. He is a wonderful person who was the only one to correspond with s Hopkins and try to figure something out. Well, I just had an appointment with the new rheumy, whom I like very much. But, she doesn't use the cytoxan much due to the future risks of things such as bladder cancer. So, I am back to square one with the new doc. Of course, the questions came up about all of my problems being in my head, or emotional, etc. She is rerunning all of the blood work again and I just had the C, T and L spine done on MRI. It has been years since this has been done but I won't have results for a couple of weeks. You can guess since I have not had treatment since mid-July that my symptoms are now starting to return. I thank God for the reprieve, but it has been an unbelievable set back. Can you believe it? I have finally accepted the circumstances so I have finished my pity party and felt like opening up. I wish everyone on the Gulf Coast remains out of harms way and I am praying you will be able to return to your homes soon. Terri G. Quote Link to comment Share on other sites More sharing options...
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