Re: Neuropsych tests and MS- or NS

[Guest guest]

Another post on Neuropsych testing-- and the difference in MS or NS diagnosis. If you go to the message archives and search using Neuropsych tests you will get 332 messages where this has been discussed-- over the last 9 years. There is a wealth of info there, and if one of the mods can't get to your questions as soon as we'd like to-- this is an avenue to use! You can copy the text, put it on a new email (include the authors name) and repost it!

Right now, Rose is not able to handle more than the family stuff she's got going on-- Darlene was to see a neurosurgeon on her elbow yesterday, and is in serious flare-- Marla's still tied up with family issues, Debbie?? where are you? I'm still struggling myself, and will be here as I can.

Thanks to all,

Tracie

NS Co-owner/moderator

MS has specific protein bands in the spinal fluid thatisn't there with NS.NS is a diagnosis of elimination-- when they'vefigured out that you don't have Lupus, MS, or any ofthe other auto-immune diseases-- and they've been ableto ascertain that you do have sarcoidosis (hopefullybiopsy proven)-- then you are left with NS.Since you have a lung full of tumors-- it would reallybe beneficial for you to have a bronchoscopy so thatthey can take biopsies from the lungs and bronchials.That would be the easiest on you-- and it would firmup their suspicions.One of the other great tests for those of us thatdon't have granulomas on the brain (NS can betransient in it's symptoms because often we havevasculitis) is Neuropsych testing.Each test requires the a specific part of the brain toget the signals firing correctly for you to be able todo the test-- and if you can't do it-- then they

knowwhat part is being effected. For many of us it seemsto like the frontal lobe--where the short term memory,personality, sexuality, common sense, problem solvingcenter is- (Executive functions area).That is one of the primary reasons I can no longerwork-- get me 'more' tired, or put me in a situationthat requires I multi-task-- and I'm toast. Prior tothe combination I'm now on-- I couldn't have told youwhere I'd park my car when shopping-- and I had gottento a place where in my mind the bills were paid-- butI'd yet to write the checks. I also find I can'talways follow the recipes to make even a box ofbrownies-- I end up with the mix in the baking dish--and can't figure out how to get it mixed up. Stufflike that-- but since I was working for the phone coand had to use 6 computer screens simualtaneously foreach call-- that was out. I'd spent 17 yrs in medicaladmin-- and that was

also gone-- docs don't like youscrewing up million dollar practices....Wow-- I hope I answered your questions.BLessings,TracieNS Co-owner/moderator

To: Neurosarcoidosis Sent: Friday, October 16, 2009 5:22:23 PMSubject: Re: Re: Short Term Menory loss and Sarcoid

Maybe I should look into something like that for . We have severe cognitve issues as a result of the neurosarc . Matt

From: rjb <rncc (AT) comcast (DOT) net>Subject: Re: Short Term Menory loss and SarcoidTo: Neurosarcoidosis@ yahoogroups. comDate: Friday, October 16, 2009, 3:09 AM

I sometimes think that we are to quick to blame our current problem as a result of our sarcoid, myself included. had heard of Neuro psych testing and really did not have the faintest idea what it meant or did.

So one day I called Hershey Medical Center and asked to speak to someone in that department. I made an appointment with the top attending. explained my memory problems and his psychologist (eye candy, sorry guys) He took me to the testing lab, the testing was a hoot. All fun, we did funny things on the computer like hit the space bar every time a space ship went by. I could go on but I wont Turned out I had prefrontal cortex damage which could be repair by using a Nintendo DSL Lite and a program called brain age 1and 2.

Turns out It is geting my mind better. They said I had prefrontal cortex damage which the Nintendo

game Brain age 1 & 2 which taught other parts of your brain could be retrained, The prefrontal cortex which runs our executive. memory. As you uses it and you improves it senses that is getting better and moves into more difficult games". Sure has helped me.

Good Luck and God Bless You are always in my prayers.

Judy in Pa.