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Re: Re: visit to neuro today, terri g.

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Hi Terri

I did not know you were a dr at one time.. boy i have learned something new today.

Yeah the increase of the imuran i kicking my butt..to say the least. But when i return to see my dr in march I guess that's when I will start the cytoxin if things are no better.

can I ask how did the cytoxin help with the arm and leg weakness and arm and leg pain?

How is the cytoxin given? Iv?

And compaired to Imuran how much more powerful is it?

i know i am full of questions but the best thing to do is ask someone who was on it b4.

Thank you and many blessings and warm hugs and I hope your flare is calming down for you. Rest, rest, rest Terri

,I did three months of cytoxan before my dr.'s license was suspended. Idid very well on it. I did cut my hair and stop coloring because of thedamage (it was breaking but not falling out). The blood work after thelast treatment showed some issues but with a month off I probably wouldhave been right back to it. I feel I had an 80% improvement in myhealth, stamina, etc. It was a miracle for me. I really hope it worksfor you!Terri G.>> well I had my appt with the neuro today and due to the spinal tap ihad done while in the hospital,, there was three markers that he saidshows that he needs to be more aggressive with treatment.. he said thereis more powerful chemo drugs he could put me on,, but right now he saidhe wants to just increase the Imuran and push the dose on that beforeputting me on stronger meds.. So today I have to start on 150 mg 3timesa day for 4 months and if this does not help, than on my next visit hewill put me on something like cytoxin or ect..> So that was my visit.. now i will be going through the sickness againhe said for sure.. i dont' look forward to that... ps is there anyonewho had went through this were they had to be on large doses of Imuranand didn't work and had to go the cytoxin route?> many blessings and hugs and a pain free day> >

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