Need to get this off my chest...

[Guest guest]

I feel such a fraud. if you read back on my posts I was going on about how

positive I am about life, and how I'm coping with it all and yet I " m so close to

collapsing in a little heap.

Partly because of the sarcoidosis. I was diagnosed with MS for 5 years and had

it for 7, and was coping. I went to the MS society, my family did fundraisers, I

read about 'cures' and I was coping. And then two things happened.

1. they rediagnosed me with sarcoidosis and all of the above went out the

window.

and

2. we moved to the country. where health services are beyond limited. Today I

tried to make an appointment to see my gp because my neuro in the capital city

(3 hours away) picked up I need counselling again but my gp will need to

organise it. It will 1 and a bit months before I can see the gp, so how will I

go getting counselling.

I'm constantly teary and I feel quite alone.

I'm sorry for coming across all " i'm coping " and I hope I didn't make anyone who

wasn't feel bad. I just couldn't admit that I wasn't.

I'm also wondering does anyone have bone pain from using cellcept or is this the

sarcoid. It's in my knee, down my shin and in my elbow and down my arm.

Rach