Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 hello everyone, my name is barb i am 38 and am new to this disease. i was just diagnosed in august 08 after battling with iritis and arthris which then found completly on a fluke was sarcoidosis inthe lung. by the time this was found it was in my spine and brain. i am a women of great faith in god so i know i will get through this as will all of you. i was on massive doses of prednisone which i am sure you all familar with ,with not much sucess in the whole spine and walking thing. after trying imuran and unable to keep it down my doctors are sending me to cleveland clinic.everyone says to stay positive but it possitivly sucks!! any advice on how to use this sup;port group would be great. i took some time to view pics and read others emails that were sent . i would love to become a part of this family because i need all the support that i can get.hope to hear from someone soon. barb Quote Link to comment Share on other sites More sharing options...
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