taping medical visits

[Guest guest]

I initially travelled from Indiana to Atlanta, Georgia for a firm diagnosis & treatment plan. After 2 trips to that specialist, he moved to land, and I heard about Dr. Baughman. One thing I recommend, especially seeing someone like Baughman, is to take a tape recorder. He gives you so much information that you will not retain a lot of it. He welcomes taping & even told me to wait on turning it on; he told me when! After the first visit I listened on the way home (3 hr. trip) & was amazed at how much I didn't remember him saying. I've never had a doctor refuse or seem reluctant to have the visit taped. If they did, I'd think twice about trusting them with my care.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: dmacnam@...Date: Mon, 26 Apr 2010 21:36:12 -0400Subject: RE: Re: NEW TO THE GROUP AND NEED ADVICE

I live about 45 minutes North of Louisville and make the trip to Cincinnati to see Dr Baughman. I did quite a bit of research after I was diagnosed, as I wanted to stack the deck in my favor. I was so happy to find Dr. Baughman (especially after dealing with a “cookie cutter pulmonologist.” )

Dr. Baughman has patients who travel from all over the country to see him. In my opinion, he is AWESOME! My first visit lasted at least over an hour. I almost felt guilty as he spent so much one-on-one time with me.! We viewed my XRAYs and CTs scan together and he explained what he saw and what his opinions were of what he saw. He then presented me with a multitude of options, patiently discussing the possible upsides and downsides of each treatment plan. We made a decision TOGETHER. I believe he is a very caring doctor who will listen to you. I believe he truly cares. (I think his wife does cancer research.)

You can reach Dr. Baughman at

Good Luck!

Dawn MacNamara

field, Kentucky

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of SandyDSent: Monday, April 26, 2010 8:02 PMTo: Neurosarcoidosis Subject: Re: NEW TO THE GROUP AND NEED ADVICE

Thank you Rose >> > Hi, Sandy. I don't know about Lexington, but one of the top sarc docs in the world is at the U. of Cincinnati, which I think is about 1-1/2 hrs. away. Baughman is a pulmonologist, but is very knowledgeable about NS. His letter is what convinced SS to approve my disability. I don't have his contact info handy, as I lost my favorites when I changed computers & haven't found most of them yet. There is also a website for finding sarc docs; I didn't see anyone closer.> > > > Your symptoms do sound like NS, but other causes need to be ruled out first. If you have biopsy-proven sarc & later develop neurologic symptoms, NS is likely, but not definite.> > > > > Ramblin' Rose> Moderator> > A merry heart is good medicine. Proverbs 17:22> > > > > > > To: Neurosarcoidosis > > > Date: Sat, 24 Apr 2010 02:36:25 +0000> > Subject: NEW TO THE GROUP AND NEED ADVICE> > > > Hi I am new to the support group and need help. I was diagnosed with sarcoidosis in 2002. And move to Kentucky from New Orleans after huricane Katrina. I think I have neurosarcoidosis. I was first diagnosed from a polyp that was removed from the orbit of my left eye. I have since been told that I have a putuitary tumor and I suffer with facial swelling(bells palsy), joint pain, limb numbness and tingling, poor vision, headaches, and trouble breathing. I have not been able to find a doctor who specializes in treating patients with sarcoidosis. I live in Lexington, KY. And I would welcome any help?> > > > > > > > ------------------------------------> > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~> > The Neurosarcoidosis Community> > > > > > > > Message Archives:-> > http://groups.yahoo.com/group/Neurosarcoidosis/messages> > > > Members Database:-> > Listings of locations, phone numbers, and instant messengers.> > http://groups.yahoo.com/group/Neurosarcoidosis/database > > > >