Question about type of physician

[Guest guest]

I've been operating under the assumption I have ms and went to see an ms specialist.

When I realized the fact I've had dry eye and mouth for a decade or more matched

Sjogrens I added it to the list. Then I slowly realized neurosarc explains all those things.

Tests have thus far not been positive for ms. My specialist sent me for a lung CT today

and I'm aware not all people with neurosarc have lung issues though it is common. I

have an ACE level of 95 (it was 85 on a test a month or so before so it's rising). My

calcium level is very high normal which is unusual because I'm lactose intolerant and

have rarely eaten dairy in the past couple decades.

I was going to ask what type of physician I should have my ms physician refer me to

but that was answered as they called back with the results of the CT as I was typing

this. Apparently I have some kind of growths such as granulomas in my lungs and they

want to do a PET scan now to see if its sarc or cancer. Apparently healthy people can

have granulomas too but it is unusual.

With neuro symptoms that match, a negative paraneoplastic panel (which indicates an

incorrect autoimmune response to cancer), dry mouth, dry eyes, and a saliva gland in

my lip swelled like a hard bb I'm still thinking neurosarc but who knows. In any case life

just got more interesting.

I don't know why but I don't find either prospect particularly alarming. I guess if you're

already screwed putting a name on it is just a technicality even if a wanted one.

Wild speculative opinions welcomed. When it comes to rarer stuff experienced patients

are better sources of info than doctors many times.

Cheers,

Darrin