Re: at a loss--and avoiding staph infections

[Guest guest]

what ended up happening with Jayden's helmet? Did you continue with

it? Did he stop getting the infections? My son got a staph infection

last week and we've been out of the helmet since last Friday (over a

week) and on antibiotics waiting for it to heal. I'm wondering whether

it is just going to happen again, or if there are things I can do to

help avoid it happening again. Any wisdom?

Thanks!

>

> Well everyone. I could use some input here. Jayden is having some bad

> bad luck with his Hanger helmet. At first they thought he was

> allergic to the foam padding in the first one so they made a second

> one. The second one irritated him more than the first cause the foam

> in the second was more plasic like and really held the sweat " fresh "

> so to speak all day. I mean the first one he would sweat but he would

> not be dripping in sweat when I took it off, but the second, the

> sweat was just wet wet dripping wet all day. So the first one made

> him break out in blisters/boils which was cultured and turned out to

> be a staph infection which is ped said was caused by pressure points

> in the helmet cause had it been a normal staph, it would have been

> everywhere on his body not just on his head. So thats when we got the

> second helmet. Well...now the second helmet is causing those blisters

> and boils too. So much that I take it off more often than I should

> hence the darn thing has probably not been effective. I mean

> literally this weekend we went on a two hour road trip with the

> helmet on. When I took it off to wash it my son had blisters/boils

> starting to form and under the blisters it was like big knots bulges

> under. I just simply do not understand. His orthotist has not heard

> of this, and honestly I have looked and looked but cant seem to find

> anything either. His ortho even opened the openening bigger at our

> last appointment to hopefully help the sweat issue. I'm not sure if

> its just the nasty sweat causing this or what. I mean, obviously this

> isnt something that can be adjusted, and I'm not so sure that its a

> bad orthotist thing. Colorado is also not a band friendly state so

> even IF I thought of getting a second opinion, I havent been able to

> find any other doctors that do this. PLUS, there is not CT out here

> or any place that would offer the DOC band. I think its the closed in

> area of the Hanger helmet(which actually is pretty much the exact

> same thing as the Starband and even orthoamerica has confirmed this

> with me) Im just at a loss. Even though his ortho says he has grown

> in length I just dont see how. He hasnt even gone a full month

> wearing it 23 hours a day yet! She says she wants him to be done by

> Xmas, but honestly...to me...his head looks exacly the same. FLAT

> FLAT FLAT and WIDE!!!!!!! Everyone talks meanly to me because

> I'm " subjecting " my son to " torture " with those blisters/boils. How

> is my son the only child that may never be able to wear one of these

> bands I just do not understand. if you were me what would you do? Try

> to wear the helmet as prescribed and see what happens? Or just toss

> in the towel at this point? I'm just not sure switching doctors would

> even do anything as the bands offered in colorado are so similar. And

> I do like our ortho, I dont think this is something she can even help

> with, and I'm sure she feels just as helpless as I do.

>