Guest guest Posted May 13, 2003 Report Share Posted May 13, 2003 Hi All......now that I am back amoung the living (thought I was going to get to that big Mansion in the sky.) I have a LOT of questions and fears!! Last weekend on Sunday I woke up feeling real weak....within an hour I went to the bathroom (thought it was diarrhea.....it was, but it was all blood, literally.) This happened several more times during the day, I wasn't too worried because DH had the exact same thing the weekend before. But, by nightfall I couldn't breath and was dizzy and had heart paplitations. Next morning it hadn't stopped (DH's stopped after 12 hours) so I agreed to let DH take me to ER. My blood had gone from 14.6 to 11....then by nightfall it had gone to 8.......they transfused me two pints (not happy about this at all)......put on total bed rest and ordered an endoscopy and colonoscopy! The endoscopy showed three ulcers (in the jejunum where the pouch and intestines join)......they kept trying to insist that I must not have been compliant with taking my acid meds...I can honestly tell you that I probably have NEVER missed a day in the 2 1/2 years since surgery.....both parents died of esophagual cancer.....I'm not gonna mess with it!! Colonoscopy was clean as a whistle!! So after 4 days of torture they let me out....3 of the 4 docs believe it was all inconclusive...the 4th thinks it was the bigger of the ulcers. I came home with a ton of meds, future dates for scopes, and my already existing depression thru the roof. To make matters worse (I know this will seem petty to some, please don't flame me, I am miserable enough as it is!) but even though I was on nothing but water for four days I gained 4 pounds, now that I am home I have gained ANOTHER 2 1/2. I understand that I was severly dehydrated, but, when will this end....do you think that it will at least go back down to where it was......I just don't know what is going on......I have not touched junk food or anything bad........guess I am just depressed and this isn't helping......kinda scared that it won't stop and feeling very out of control even though I am doing everything right......ya know? I do feel very lucky to be alive....the docs let me know just how afraid they were that I was going to " bleed out " that first night I was there! AND, if they don't know what caused it, then what is going to keep it from happening again?? They sent me home telling me to come right back if my bowel movements turned black or tarry.....but then ordered " Nefrex " shots twice weekly for the next five weeks, warning me that they may turn my BM's black and tarry!!! ARGH....well, if you made it this far with me I appreciate your reading my venting....I just feel so depressed and uncertain about things.......any words of wisdom or encouragement would be greatly appreciate......please don't flame.....I honestly can't handle it right now Thanks, P. Quote Link to comment Share on other sites More sharing options...
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