Guest guest Posted February 17, 2009 Report Share Posted February 17, 2009 We had our helmet appointment on Monday. has 13 weeks in the helmet. No adjustments were made, but the substitute orthotist stuck something in the helmet and said that the right side seemed a little tight. When I told her the red spots were gone within the hour, she didn’t shave anything out. Of course, now I’m worrying that will have sores soon. That’s actually good news because we did have some shaved out last time (4 weeks ago) and it seemed a little loose to me after that. Now, it seems to fit perfectly. That must mean that she has grown. Anyway, we’ve now been told that at our next appointment, they will scan her head to determine whether to keep her in the helmet. That will be in 4 weeks and after 17 weeks in the band. I know that the Doc band is only good for 4 months anyway, but the STARband is supposed to be good for 6 months. The reason for possibly not continuing is her age. They said that helmet therapy is only indicated for up to 18 months so they anticipate that her growth will slow down. If her growth slows down, they will recommend taking her out. Or, if we’re within 2 standard deviations (I think at 90 or 91), then they’ll also recommend this. I’m very torn, but feel that I’d like to see her continue for at least 8 more weeks, if not the full 6 months. After all, why not get the most improvement that we can. Neither nor the rest of the family mind the helmet. I don’t want to be a pain in the butt mom, but I would like to get the most improvement possible. Any suggestions for how to approach this? I suppose that I may be worrying for nothing. Perhaps they will recommend that we keep going given that does appear to be growing. I just want to be prepared. I don’t think well on my feet. Oh, we also had her second to last CST appointment. The PT says that everything feels great and is working with the helmet well. We go back for one visit in 5 weeks to make sure that everything is still fine. , mom to , 17 months 3 weeks 13 weeks in STARband (Brachy 95 percent to 92.3 percent) plus CST Edgewood, MD Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.