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hi everyone thank you for letting in to the group i actually thought i was alone in this world with a rare case of neurosarcoidosis. I live in the US and i was diagnosed around year 2000. devastated but i handled it but it has been going up and down since then treatment works until they tamper me off the steroids and everything flares up with damaging results. the latest is seizure three back to back. Now i really can't do anything not even work or live alone. If anybody knows a treatment that's been successful can you please let me know.

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