Guest guest Posted February 2, 2007 Report Share Posted February 2, 2007 she is a fussy eater and throws up quite a lot after feeds.she does not tolerate mashed food so i had to be blending her food into a puree.She does not like baby milk so still on breast milk. > She is about to walk but sometimes when she stands up,i feel that her toes are curled inwards and i try to strenghten them. > My dd who is autistic was like that as a baby. Threw up alot and had a hard time with standing and walking. She was unsteady until age 4 almost 5 and is still clumsy. Her toes curl too, and when she was 6, the neurologist pointed out that she had not lost the grasp reflex in her toes that most of us lose as babies, which makes standing difficult. I don't know what to give for that. My opinion is to keep her on breastmilk as long as possible. My younger two are not autistic- but both are speech delayed, and I nursed them for 3 1/2 years apeice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2007 Report Share Posted July 6, 2007 > > Hi, i am new to this group. My son was diagnosed with Crohn's in > April. He was on Pentasa, Mercaptopurine and Entocort. He happened to > mention to me last night that he quit his meds cold turkey 4 days > ago---and he won't be going back to the Dr. This doesn't surprise me > because this kid (now adult) wouldn't take an aspirin for a headache. > All the prescriptions weren't doing much good. I hear good things here > about LDN as I have read thru many past posts. I am trying to stay calm. > Is there anything that he can do, diet-wise, supplement-wise, and > frugal-wise that will help quickly???? I did read about Alfalfa in a > recent post, that it's great for Crohn's. Is there something specific to > look for ---is it a capsule? And this is generally not bought in a > grocery store, is it? I hope to talk to my son about LDN and maybe he > will be willing to find a Dr. to prescribe it---is anyone aware of a Dr > in central New Jersey, New Brunswick area?? > > appreciatively, > Laurie > ========== Order from a healthfood store or bookstore or off the internet...Prescription for Nutritional Healing third edition by F. Balch, M.D. and Phyllis A. Balch, C.N.C. I have found this book a Godsend. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2007 Report Share Posted July 6, 2007 > > Order from a healthfood store or bookstore or off the > internet...Prescription for Nutritional Healing third edition by > F. Balch, M.D. and Phyllis A. Balch, C.N.C. I have found this book a > Godsend.> > Thanks, I believe it is from your post #51199, I have coped down much information. Was that from "Prescription for Nutritonal Healing" ?calming down a bit,Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2007 Report Share Posted July 6, 2007 > > > > > > > Order from a healthfood store or bookstore or off the > > internet...Prescription for Nutritional Healing third edition by > > F. Balch, M.D. and Phyllis A. Balch, C.N.C. I have found this book a > > Godsend. > > > > > > > Thanks, > I believe it is from your post #51199, I have coped down much > information. Was that from " Prescription for Nutritonal Healing " ? > > calming down a bit, > Laurie > =========== Many of the supplements I mentioned were from that book. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2007 Report Share Posted July 6, 2007 BRENDA - that's the same book i found several years ago, that i say saved my life!! it had crohn's disease listed, and all the supplements to take!! of course, it was an earlier edition, but it sure helped me!! i have since bought a later edition, too - no changes for crohn's, in that one!! will look for the lates edition to see what's what!! marshiris@... See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2007 Report Share Posted August 9, 2007 Hi , You can look for a Rescue Angel in your area at the Generation Rescue website. www.generationrescue.org <http://www.generationrescue.org/> Pamela " Courage is doing what you're afraid to do. There can be no courage unless you're scared. " Eddie Rickenbacker, top US fighter ace, WWI _____ From: [mailto: ] On Behalf Of Supak Saomoke Medley Sent: Thursday, August 09, 2007 2:45 PM Subject: [ ] Need help Hello I am , I have a 4yo. autistic daughter, we are from Thailand and now in Alabama. I want my daughter to see DAN doctor but I don't know much information about here in AL, so if anyone know a good doctor in the area please help. By the way, we are living in Boaz, Alabamal; about 45 minutes from Birmingham. Thank you very much. --------------------------------- Pinpoint customers who are looking for what you sell. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2007 Report Share Posted October 1, 2007 we are using a local mental health clinic for play therapy. As far as I know you don't need a dev ped for treatment. I got rid of ours because he was a quack. In 2 years he never got around to a treatment plan for our son. Hall Melinda <mlndhall@...> wrote: We went to where our insurance would carry us. Itended up being a behavior center, which covered allkinds of counselling. This was recommended by ourpediatric neurologist. We saw a psychiatrist there formeds and then a counselor. Worst people we dealt with.We then ended up at our local mental health facility.They weren't on our insurance, but they did a "slidingfee scale", so our payment was lowered if we couldn'tpay the amount out of pocket.I don't know what kind of services you are lookingfor, but we just went with a regular psychiatrist thatdealt with children.-Melinda Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2007 Report Share Posted October 2, 2007 My husband and I have lived in Kansas, west central Iowa, and now here, and we are FINALLY having great therapist, etc.; it is by trial and error, and took only 11 years to get the great team we have now (first good one we, personally, have had yet)....for the first 5 years, WE WERE THE PROBLEM!!!!! So, do not give up, and just know that it is hard to find good ones. The BEST ones we have had, actually, have special needs children of their own and / or parts of Asperger's (one therapist has OCD himself----he can really relate to our 13 year old---he LOVES HIM) and the other therapist our 13 year old thinks he probably has Aspergers himself but he did raise a son with it FOR SURE!!! Also, professionals with experience and / or working with people from the 'live in' facilities / especially troubled youth, have had some of the best advise, etc we have ever gotten AND IT WORKS. There are similarities between those angry kiddos and our angry ones......so, just keep looking, and never pass by the one you would never think to call (they have seriously been the best ones we have had). PS In Kansas, we did get a mentor, psychologist, psychiatrist, all that were great for ME as an adult; so we did get some GOOD going on; it just takes a while; therapist / professionals for our son there were never very good though, so you just have to keep on looking and DO NOT GIVE UP. We have professionals NOW that are wanting to help our family as their VOLUNTEER WORK!!!! I refuse to let them, as we want to keep it professional and we want to be able to pay them to attend things we need and want them out without feel 'badly' for asking and we pay them their regular rate and mileage (private paying----most will do an agreeable reasonable rate with you---not what you pay the office or anything---AGAIN---ASK---if you do not ask, no one can help or know what you want and / or need. Also, look the names up on-line of people you may want to go to; from time-to-time, we have found complaints on line about them; save yourself the headache before you start. And, remember, someone horrible for someone else may be just perfect for your case!!!! So, just keep an open mind, all the time and FOLLOW YOUR INSTINCTS AND GUT FEELINGS!!! They are typically right on, all the time! Ruthie Dolezal Re: ( ) Need Help We went to where our insurance would carry us. Itended up being a behavior center, which covered allkinds of counselling. This was recommended by ourpediatric neurologist. We saw a psychiatrist there formeds and then a counselor. Worst people we dealt with.We then ended up at our local mental health facility.They weren't on our insurance, but they did a "slidingfee scale", so our payment was lowered if we couldn'tpay the amount out of pocket.I don't know what kind of services you are lookingfor, but we just went with a regular psychiatrist thatdealt with children.-Melinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2007 Report Share Posted October 2, 2007 Why can't the school provide the counseling??? Our 13 year old has weekly counseling at school, is seen weekly by a psychologist at school right now (because our case is 'hot' right now) but they are seeing him weekly (both of them!), and after today (we guess---we have a meeting--our lawyer plans to order by court order if necessary the things we are asking for)---o.t., and other serves. So, why not go with the school? The psychologist is hired for like 2 districts, and our's is one of them, so he does work for the education association in our city but he comes to school to see him (we have not met him or anything but he is evaluating our son---again---kid has at least 50 evals.----at least!!!!----). Ruthie D. ( ) Need Help I'm not sure what to do next? I took my 14 yr old aspie DS to the pediatrician and asked for a referral for counselling. Well the closest place in Hershey PA is not accepting new clients (developmental ped.) so they reffered me to St Chrisopher in Philly or Hopkins in DC or Dupont in Wilmington. I live in Lancaster County. I don't want to be driving that far every week. Do I need a developmental ped. for counselling? We didn't live here when diagnosed, and there are no pressing issues but I would like somewhere to take him for occasional couselling. What should I do next? The referring peds office was not too helpful. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2007 Report Share Posted October 3, 2007 , thanks for replying. What is CHOP's Seashore house? amandab192 <amandab192@...> wrote: Hi, s223!I also live in Lancaster. Small world! By and large, I've found the pediatricians around here very unknowledgable (as is the case everywhere!). I had to dig around myself and tell them exactly what I wanted. My son is only 3, but we've been dealing with the Center for Autism and Developmental Disabilities, which is part of Philhaven. They participate with MA if you have it. We went through their multi-disciplinary evaluation and not only was it free (through MA), but it was the most thorough and supportive evaluation I've come across. We also went to Kennedy Krieger, but we hated it (I have yet to meet someone who has had a good experience there). It was cold, clinical, unorganized, and the dev. ped didn't listen to a word I said. On the other hand, I found Philhaven to be a family-like atmosphere. Not to say everyone there is perfect, but I'm much happier there than anywhere else I've found locally. They have family and/or individual counseling (in fact, my husband and I have occassional couples counseling with them, which is also covered under my son's MA). My son has some comorbid mental health issues, and Philhaven is pretty much king locally when it comes to mental health, so I like that we're working with a facility that has a lot more to offer if we ever need it.Another option would be CHOP's Seashore House--I've heard a lot of good things from other parents.Are you part of the Lancaster AS support group? Feel free to email me amandab192 if you have any questions or want to chat. >> I'm not sure what to do next? I took my 14 yr old aspie DS to the > pediatrician and asked for a referral for counselling. Well the > closest place in Hershey PA is not accepting new clients (developmental > ped.) so they reffered me to St Chrisopher in Philly or Hopkins > in DC or Dupont in Wilmington. I live in Lancaster County. I don't > want to be driving that far every week. Do I need a developmental ped. > for counselling? > We didn't live here when diagnosed, and there are no pressing issues > but I would like somewhere to take him for occasional couselling. What > should I do next? The referring peds office was not too helpful.> oneSearch: Finally, mobile search that gives answers, not web links. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2007 Report Share Posted October 4, 2007 The Seashore House is the developmental disability and rehabilitation center at Children's Hospital of Philadelphia. They do multi-disciplinary evaluations, therapies, medication-management, etc. We've never been there, but parents I know who have been there recommend it. If you're looking for an evaluation, you'll want to go to one of these specialty centers. But if you are looking for general counseling, you'll want to look elsewhere for a licensed social worker, psychologist, etc. Developmental pediatricians typically don't do on-going counseling and therapy (especially at these research centers--they have year-long wait lists just for evaluations). They give some recommendations after an evaluation and want to check-in with you every year or so, but the day-to-day therapy is handled with someone else. We go to Philhaven for counseling, but next time we need an evaluation, I'll be calling the Seashore House. > > , thanks for replying. What is CHOP's Seashore house? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2007 Report Share Posted November 20, 2007 > can any one tell me about pandas Info here http://intramural.nimh.nih.gov/research/pdn/web.htm http://www.enzymestory.com/PANDAS.html > and if any one can tell me why my son tonuge is still looks white Thrush, which is a fungal [yeast] issue. >>he > has been on the culturella for almost a month shouldnt it be helping or > could it not been working at all. Might not be enough. Try adding a stronger yeast fighter http://www.danasview.net/yeast.htm >>and is ocd is staying worse not > getting better. This was viral at my house. Vitamin C, lysine, OLE, and Virastop. Be sure to have a really good yeast protocol, because viral die off tends to cause a lot of yeast. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2009 Report Share Posted June 4, 2009 I don't even now where to start. My son is now 17 months and the dr. has told me not to worry about Jack's head that's it's not even on both sides and it is a little flat. The doctor is saying that it will correct itself by 2yr. i am freaking out and don't think that is the case. I want a referral to a specialist - but don't even know what kind of dr. to ask to see. Any help would be appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2009 Report Share Posted June 5, 2009 What state do you live in? Cranial Technologies is the place where we had my sons evaluation done and yesterday I took him to a Cranial Facial Pastic Surgeon so we had a specialist for fighting the insurance denial! > > I don't even now where to start. My son is now 17 months and the dr. has told me not to worry about Jack's head that's it's not even on both sides and it is a little flat. The doctor is saying that it will correct itself by 2yr. i am freaking out and don't think that is the case. I want a referral to a specialist - but don't even know what kind of dr. to ask to see. Any help would be appreciated. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2009 Report Share Posted June 6, 2009 I'm a little late answering, but there is nothing magical that is going to happen in the next 7 months to fix your baby's head. Unfortunately many peds are not knowledgeable about plagio. If it doesn't look right now, you need to see a specialist and get started with a helmet depending on his/her opinion. If it is mild it may correct enough with age/growth, but if it is bothering you at this age, it is likely not mild. It is best to start before 1 yr old, but you still have a little time. However you need to move quickly if you do band. Some providers will only band until 18 mo (those won't be the ones for you). Cranial Tech (www.crainialtech.com) usually bands until 2 yrs old, and has the most experience with older babies. I suggest you contact cranial tech if possible for a consultation(depending where you live). Also if you want opinions of your son's severity in terms of head shape you can post pictures to the photos area of this group and let us know you want our two cents. The best photos are often top view. I suggest you ask for a referral to a cranial facial plastic surgeon. If you do decide to band you will need a prescription for the band. Let us know what happens next. -christine sydney, 3 yrs, starband grad > > I don't even now where to start. My son is now 17 months and the dr. has told me not to worry about Jack's head that's it's not even on both sides and it is a little flat. The doctor is saying that it will correct itself by 2yr. i am freaking out and don't think that is the case. I want a referral to a specialist - but don't even know what kind of dr. to ask to see. Any help would be appreciated. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2009 Report Share Posted June 9, 2009 I just wanted to chime in that I got the same story from our doctors and finally pushed for a band for my son at 16 months (he was 17 months by the time he got it). He wore two bands from Cranial Tech with really good results. But his head is still not perfect and he's nearing 3 years old, so obviously the doctors don't know what they're talking about (most of them anyway). I could have used a local StarBand provider, but they weren't sure he would wear it past 18 months old (only for a month), but Cranial Tech was able to guarantee that he would wear their DOCBand for the full 4 months allowed, so we drove almost 3 hours each way to go to them. It was well worth it. We got a script from a pediatric craniofacial/plastic surgeon. Jake's before and after pics are in the Older Plagio Kids folder under Jake W. Please let me know if you have any questions. Good luck! Jake-2.5 (DOCBand Grad 9/08) Jordan-5 > > > > I don't even now where to start. My son is now 17 months and the dr. has told me not to worry about Jack's head that's it's not even on both sides and it is a little flat. The doctor is saying that it will correct itself by 2yr. i am freaking out and don't think that is the case. I want a referral to a specialist - but don't even know what kind of dr. to ask to see. Any help would be appreciated. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2010 Report Share Posted June 10, 2010 I like allatess and sage does IGg testing as well. Also Doctors Data is a reliable one in my opinion Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2010 Report Share Posted June 10, 2010 Thank you so much. ________________________________ From: amercier <amercier@...> Sent: Thu, June 10, 2010 4:39:15 PM Subject: Re: Need help I like allatess and sage does IGg testing as well. Also Doctors Data is a reliable one in my opinion Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.