Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 These doctors who say this are WRONG. WRONG, WRONG, WRONG! If Dr. H. is now reducing to nights only, I'll have to have a word with him. If you want your child to show you his independence, reduce to nights only and see how he tolerates it. They start to not sleep, resist and hate the brace when before they were happy as could be. Why?? They are smart these little ones, and that taste of freedom from the bar 23/7 sure shows when they start fighting you about wearing it AT ALL. We know this happens because many parents have complained and once they go back to full time for a week or so baby is again the same one they had before. Hummmm... interesting huh? Yes, oh yes... reduce gradually over the next year, do not even consider going to nights only right now. AND... this is NOT the protocol no matter what doc says it is! It simply is NOT part of the proper Ponseti Method. It increases your chances of relapse, how they can say otherwise is ludicrous. If it didn't make any difference I'm sure Dr. Ponseti would have said so long ago, and he has indeed never said such a thing. Quite the opposite. So there it is, the long hours are your insurance that you've done everything possible to make this work. Get yourself and your child the best chance at being part of the 98% successes. Also, the brace must become your child's normal. They are going to be wearing it for a long time and this is one instance where routine will be the one thing that gets you to 4+years without problems. By wearing the brace long hours in the first year and only going to nights only (which is actually 12-14hr/d and ends up being the sleep time AND some continuing hours in the am OR part of the daily naps) once the child is walking and bearing weight is essential. Nights only should come somewhere around 12-16mo's which is the normal range for walkers. They so need that first year to learn how to do all the things babies do in their FAB and learn that the FAB is not an option, but rather just another part of their life. Trust me, you want this kid to think all children wear boots and bars! These docs who are reducing too early think they're doing us a favor, but it backfires more often than not. grrrr... can you tell this is a big pet peeve of mine? Talk about a great way to ruin something good... nights only after first 3 months... These docs sure are making sure we got our work cut out for us huh? Oh and hey... it sure is good news that he's doing so well! Congrats on getting past the first 3mo's and on your way to beautiful and perfect feet for your baby! Kori At 03:18 PM 2/25/2006, you wrote: >We just came back from seeing Dr. Lamm in MD. Logan's foot looks >great. His dorsiflection is at 20, which I guess is good. We can now >move to night time only- never thought we would get here! We were >told we did not necessarily have to go progressively down. We were >told 12-14 hours. Now I know most others go down gradually. Dr. Lamm >works with Dr. Herzenberg so we took him at his word. Any thoughts? > >About his little club foot- we go back in 3mo and they are going to >take measurements and see what's going on. > > and Logan > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 Thanks Kori!! It was Dr. Lamm that told us that, Dr. H wasn't there yesterday. So I've seen people talk about going to 20, 18 etc. What is the best way to break it down? and Logan Re: Logan update These doctors who say this are WRONG. WRONG, WRONG, WRONG! If Dr. H. is now reducing to nights only, I'll have to have a word with him. If you want your child to show you his independence, reduce to nights only and see how he tolerates it. They start to not sleep, resist and hate the brace when before they were happy as could be. Why?? They are smart these little ones, and that taste of freedom from the bar 23/7 sure shows when they start fighting you about wearing it AT ALL. We know this happens because many parents have complained and once they go back to full time for a week or so baby is again the same one they had before. Hummmm... interesting huh? Yes, oh yes... reduce gradually over the next year, do not even consider going to nights only right now. AND... this is NOT the protocol no matter what doc says it is! It simply is NOT part of the proper Ponseti Method. It increases your chances of relapse, how they can say otherwise is ludicrous. If it didn't make any difference I'm sure Dr. Ponseti would have said so long ago, and he has indeed never said such a thing. Quite the opposite. So there it is, the long hours are your insurance that you've done everything possible to make this work. Get yourself and your child the best chance at being part of the 98% successes. Also, the brace must become your child's normal. They are going to be wearing it for a long time and this is one instance where routine will be the one thing that gets you to 4+years without problems. By wearing the brace long hours in the first year and only going to nights only (which is actually 12-14hr/d and ends up being the sleep time AND some continuing hours in the am OR part of the daily naps) once the child is walking and bearing weight is essential. Nights only should come somewhere around 12-16mo's which is the normal range for walkers. They so need that first year to learn how to do all the things babies do in their FAB and learn that the FAB is not an option, but rather just another part of their life. Trust me, you want this kid to think all children wear boots and bars! These docs who are reducing too early think they're doing us a favor, but it backfires more often than not. grrrr... can you tell this is a big pet peeve of mine? Talk about a great way to ruin something good... nights only after first 3 months... These docs sure are making sure we got our work cut out for us huh? Oh and hey... it sure is good news that he's doing so well! Congrats on getting past the first 3mo's and on your way to beautiful and perfect feet for your baby! Kori At 03:18 PM 2/25/2006, you wrote: >We just came back from seeing Dr. Lamm in MD. Logan's foot looks >great. His dorsiflection is at 20, which I guess is good. We can now >move to night time only- never thought we would get here! We were >told we did not necessarily have to go progressively down. We were >told 12-14 hours. Now I know most others go down gradually. Dr. Lamm >works with Dr. Herzenberg so we took him at his word. Any thoughts? > >About his little club foot- we go back in 3mo and they are going to >take measurements and see what's going on. > > and Logan > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 pretty much like this, although the first reduction differs for different patients. Some go to 20-22, some 18-20. I think you and your doc should decide but since it's apparently up to you use your best judgement. goes something like this: 23/7 - 3mo's 18-20 16-18 14-16 12-14 at or around walking till 4-5 years old. Reductions seem to come at or around every 3mo's if started at newborn stage fresh out of casts... at 5-12w old. Every 3 mo's puts you at 12-14 somewhere around a year. Darbi walked at 10.5mo's. I kept her at the longer hours till about 14mo's anyway. Figuring most kids would walk at that age. I had one child walk at 11.5mo's, one at 14 and my CF baby at 10.5. So 14 mo's seemed good to me. We are still at 12-14 really. I could absolutely drop her to 10-12 but it's so routine for her now that I can keep her in her shoes till about 10am and she's happy as can be. Sometimes it's more like 11am she gets them off. I am trying to allow myself to let her have them off first thing in the moring but it's so easy... I pop her into the car and take kids to school, she rides and wears her brace. We come home, she has a snack and watches TV or now... at the ripe old age of almost 3 she plays on NickJr.com!! lol... till around 10. Hard for me to think ther's any reason to take it off first thing in the morning anyway. If I took it off at 8am she'd be getting about 12hr anyway. Since it often actually gets on at 8pm. So it's a good 12 per day easy, and that's just sleep and hang out in the morning time before we jumpin the car for an hour (yes, I drive my kids a long way to school). Anyway, that's a rough idea of what you're looking at. enjoy those tootsies being free, go buy some shoes lol! Korio At 05:55 PM 2/25/2006, you wrote: >Thanks Kori!! It was Dr. Lamm that told us that, Dr. H wasn't there >yesterday. So I've seen people talk about going to 20, 18 etc. What is the >best way to break it down? > > > > and Logan > > > > Re: Logan update > > > >These doctors who say this are WRONG. > >WRONG, WRONG, WRONG! > >If Dr. H. is now reducing to nights only, I'll have to have a word with him. > >If you want your child to show you his independence, reduce to nights >only and see how he tolerates it. They start to not sleep, resist >and hate the brace when before they were happy as could >be. Why?? They are smart these little ones, and that taste of >freedom from the bar 23/7 sure shows when they start fighting you >about wearing it AT ALL. We know this happens because many parents >have complained and once they go back to full time for a week or so >baby is again the same one they had before. Hummmm... interesting >huh? Yes, oh yes... reduce gradually over the next year, do not >even consider going to nights only right now. > >AND... this is NOT the protocol no matter what doc says it is! It >simply is NOT part of the proper Ponseti Method. It increases your >chances of relapse, how they can say otherwise is ludicrous. If it >didn't make any difference I'm sure Dr. Ponseti would have said so >long ago, and he has indeed never said such a thing. Quite the >opposite. So there it is, the long hours are your insurance that >you've done everything possible to make this work. Get yourself and >your child the best chance at being part of the 98% successes. Also, >the brace must become your child's normal. They are going to be >wearing it for a long time and this is one instance where routine >will be the one thing that gets you to 4+years without problems. By >wearing the brace long hours in the first year and only going to >nights only (which is actually 12-14hr/d and ends up being the sleep >time AND some continuing hours in the am OR part of the daily naps) >once the child is walking and bearing weight is essential. Nights >only should come somewhere around 12-16mo's which is the normal range >for walkers. They so need that first year to learn how to do all the >things babies do in their FAB and learn that the FAB is not an >option, but rather just another part of their life. Trust me, you >want this kid to think all children wear boots and bars! These docs >who are reducing too early think they're doing us a favor, but it >backfires more often than not. > > >grrrr... can you tell this is a big pet peeve of mine? Talk about a >great way to ruin something good... nights only after first 3 months... > >These docs sure are making sure we got our work cut out for us huh? > >Oh and hey... it sure is good news that he's doing so >well! Congrats on getting past the first 3mo's and on your way to >beautiful and perfect feet for your baby! > >Kori > > > > > >At 03:18 PM 2/25/2006, you wrote: > >We just came back from seeing Dr. Lamm in MD. Logan's foot looks > >great. His dorsiflection is at 20, which I guess is good. We can now > >move to night time only- never thought we would get here! We were > >told we did not necessarily have to go progressively down. We were > >told 12-14 hours. Now I know most others go down gradually. Dr. Lamm > >works with Dr. Herzenberg so we took him at his word. Any thoughts? > > > >About his little club foot- we go back in 3mo and they are going to > >take measurements and see what's going on. > > > > and Logan > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 Thanks, we are actually going shopping nicer socks tomorrow. The cute kind with different designs that were too thick to wear in the markells. It's easy for us to leave him in in the morning as well. I just figure he can go half the day at daycare with the bar, then they can take it off. I knew it was too good to be true that we could go to just nights. But we are thankful for good feet and a few extra hours out. I agree about too much time out making it that much harder to put the fab back on, for both of us. Thanks for your help and support!!!! and Logan Re: Logan update > > > >These doctors who say this are WRONG. > >WRONG, WRONG, WRONG! > >If Dr. H. is now reducing to nights only, I'll have to have a word with him. > >If you want your child to show you his independence, reduce to nights >only and see how he tolerates it. They start to not sleep, resist >and hate the brace when before they were happy as could >be. Why?? They are smart these little ones, and that taste of >freedom from the bar 23/7 sure shows when they start fighting you >about wearing it AT ALL. We know this happens because many parents >have complained and once they go back to full time for a week or so >baby is again the same one they had before. Hummmm... interesting >huh? Yes, oh yes... reduce gradually over the next year, do not >even consider going to nights only right now. > >AND... this is NOT the protocol no matter what doc says it is! It >simply is NOT part of the proper Ponseti Method. It increases your >chances of relapse, how they can say otherwise is ludicrous. If it >didn't make any difference I'm sure Dr. Ponseti would have said so >long ago, and he has indeed never said such a thing. Quite the >opposite. So there it is, the long hours are your insurance that >you've done everything possible to make this work. Get yourself and >your child the best chance at being part of the 98% successes. Also, >the brace must become your child's normal. They are going to be >wearing it for a long time and this is one instance where routine >will be the one thing that gets you to 4+years without problems. By >wearing the brace long hours in the first year and only going to >nights only (which is actually 12-14hr/d and ends up being the sleep >time AND some continuing hours in the am OR part of the daily naps) >once the child is walking and bearing weight is essential. Nights >only should come somewhere around 12-16mo's which is the normal range >for walkers. They so need that first year to learn how to do all the >things babies do in their FAB and learn that the FAB is not an >option, but rather just another part of their life. Trust me, you >want this kid to think all children wear boots and bars! These docs >who are reducing too early think they're doing us a favor, but it >backfires more often than not. > > >grrrr... can you tell this is a big pet peeve of mine? Talk about a >great way to ruin something good... nights only after first 3 months... > >These docs sure are making sure we got our work cut out for us huh? > >Oh and hey... it sure is good news that he's doing so >well! Congrats on getting past the first 3mo's and on your way to >beautiful and perfect feet for your baby! > >Kori > > > > > >At 03:18 PM 2/25/2006, you wrote: > >We just came back from seeing Dr. Lamm in MD. Logan's foot looks > >great. His dorsiflection is at 20, which I guess is good. We can now > >move to night time only- never thought we would get here! We were > >told we did not necessarily have to go progressively down. We were > >told 12-14 hours. Now I know most others go down gradually. Dr. Lamm > >works with Dr. Herzenberg so we took him at his word. Any thoughts? > > > >About his little club foot- we go back in 3mo and they are going to > >take measurements and see what's going on. > > > > and Logan > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 We've been at 10 hrs/Nights Only since Zach was 2 - this was per Dr. Ponseti. You don't necessarily have to stick with 12-14 per day until 4 or 5. We are very diligent with the DBB. Zach has never gone a minute less than what was prescribed. He's one of those kids that definitely thinks *all* people where shoes to bed. So, Zach is in the bar at night time only and we take it off when he wakes up in the a.m. - honestly, I can't imagine keeping him in it in the morning after he wakes up, or putting him in it at naps still. (he's 3.5) We'll be going to Iowa this summer to see what Dr. P says about discontinuing the DBB. Makes me VERY nervous! Holly Zachary 7/27/02 Unilateral Right C/F Treated by Dr. Ponseti DBB Nights Only (10 hours) > > >We just came back from seeing Dr. Lamm in MD. Logan's foot looks > > >great. His dorsiflection is at 20, which I guess is good. We can now > > >move to night time only- never thought we would get here! We were > > >told we did not necessarily have to go progressively down. We were > > >told 12-14 hours. Now I know most others go down gradually. Dr. Lamm > > >works with Dr. Herzenberg so we took him at his word. Any thoughts? > > > > > >About his little club foot- we go back in 3mo and they are going to > > >take measurements and see what's going on. > > > > > > and Logan > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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