RE: Need Answers, Please Help

[Guest guest]

I

agree. Our pediatrician gave us the scoop. She said that most neurosurgeons

(who we saw) are against helmets in general. Then, she said that the “helmet

people”, who I’m assuming our the specialists that we see, are for

them. She said that she was neutral and that there is more variety of beliefs

among pediatricians. I don’t believe that our pediatrician referred us

soon enough and she did say that it would round out on it’s own until she

saw her at 12 months. That was when she offered the referral to the specialist.

She started by sending us to the neurosurgeon to rule out other causes. Then,

when he said she didn’t need a helmet, I called her back and she offered the

referral to the cranial clinic. Good luck in convincing your sister what she

needs to do.

, mom to , 17.5 months

12.5 weeks in STARband plus CST

Need Answers, Please Help

Plagiocephaly

Date: Friday, February 6, 2009, 9:29 AM

My sister's little girl

is almost 1 year old. She had torticollis, but

received physical therapy and was dismissed from services. She will

only sleep on one side and has fairly severe flattening on that side.

She was referred to a neurologist at 9 months, but he said her hair

would cover up the problems and that it should be okay. He also said

it would correct itself. It has not. Several PA's have commented that

they think she needs a helmet, but her doctor doesn't seem all that

concerned because the neurologist wasn't. My question is.........is it

too late to get this problem fixed? What long term problems may occur

if nothing is done about it. Thank you so much for answering my

questions. I just want to help my niece in any way that I can.

[Guest guest]

I

forgot to answer the other part of your question – no it is not too late,

but she needs to get going ASAP. We started our referral process at 12.5

months, first the neurosurgeon, then the cranial clinic, then the orthotist.

didn’t get into a helmet until almost 15 months old. The process

takes time. The earlier she can get in, the more improvement there will be.

As far as long term problems – I believe

that this depends upon the severity and whether there is asymmetry that could

affect vision and possibly other things. My daughter does not have any of this,

so our main concern was just how she would feel about herself. I also worried

that there may be other effects that no one yet knows about so I chose to go

forward with the helmet.

Need Answers,

Please Help

My sister's little girl is almost 1 year old. She had

torticollis, but

received physical therapy and was dismissed from services. She will

only sleep on one side and has fairly severe flattening on that side.

She was referred to a neurologist at 9 months, but he said her hair

would cover up the problems and that it should be okay. He also said

it would correct itself. It has not. Several PA's have commented that

they think she needs a helmet, but her doctor doesn't seem all that

concerned because the neurologist wasn't. My question is.........is it

too late to get this problem fixed? What long term problems may occur

if nothing is done about it. Thank you so much for answering my

questions. I just want to help my niece in any way that I can.