Re: New Member - off topic

[Guest guest]

When/where did you get that information. I believe that Federal law says that services are available for 25 percent delays or more in one or more of several areas (cognitive, communication, physical, self-help, psycho-social, etc). If your 9 month old tests out at a 4-month level, then that is more than a 50 percent delay and you should qualify.

Of course, the information I'm giving applies to kids in preschool age programs. I may be wrong about it with infants and toddlers. It seems that every state deals with this slightly differently.

Most areas have organizations that can act as advocates for children with disabilities. I know because they attend the meetings at my schools. While I consider them to be a pain in the you know where (because they often assume the schools are out to deny children what they need), they do know the law well and I am extra careful about making sure that I'm doing things right when one is involved. Where are you located? Maybe I can ask around and try and hook you up with a good one. At the very least, they could let you know whether the information you received was correct. At the most, they could help you navigate through the system to get those free services.

, mom to , 19.5 months

20 weeks in STARband plus CST

land

Re: New Member

I forgot to mention that the way it was explained to me, here in GA, EI is only for children with a diagnosed disease/condition.. like Cerebral Palsy, Downs Syndrome, etc. Mia's unexplained delays, Hypotonia, and Torticollis aren't 'bad enough' for therapy through the state. We get therapy at the biggest hospital here, but they're just SO BUSY.. it's impossible to get in more than once every few weeks, and I just don't see what good that's supposed to do.

I would love to hear about the network you were referring to!

Kim

On Tue, Apr 7, 2009 at 1:34 AM, ambloved <ambloved@...> wrote:

My Hanger ortho told me that the initial consultation/evaluation is free.My husband is also military so I have done the moving thing and I have found that if I called my old doctor and told them my desperation, they often could help me solve at least some of my problem or help in some real way. If you are going to a military base for your pediatrician, see if they have a pediatric case manager that you can contact. We had one that was soooooooo helpful, she even got Tricare to let us see an out-of-state specialist, even though our pediatrician did not think it was necessary. Also, any child with delays like yours can get services from the State, but more importantly you get qualified for services, then when you move, you usually can get services within a month or less. My son was receiving PT for tort and the move only interrupted the PT for about a month. The best thing is that the state people will come to your house. There also is a network that helps military who have children with delays/ disabilities etc. get services and help as they move. (I haven't looked into it, but can try to dig it out if you want it.) E-mail me if you need more particulars.Annie

> >> >> Hello everyone! I somehow came upon this group through a blog, and I am> >> so glad to have found it.> >>> >> Our sweet girl, Mia (almost 9 months), has several issues - including> >> Plagiocephaly and Torticollis. We moved late last year and left our fabulous> >> pediatrician, and our new pediatrician really isn't proactive about any of> >> her medical needs. Unfortunately, we don't really have time to find another> >> one here (and we would need to travel at least an hour).. but I simply don't> >> want to waste time if this can be corrected.> >>> >> She is in physical therapy (for this and other issues) and has been for> >> quite some time, but even with positioning and stretches, her Torticollis is> >> still apparent. Her head tilts down to the left, and the flatness on her> >> head is mostly on the back right and toward the middle, clearly from having> >> more pressure on that side over time because of developmental delays. Our> >> pediatrician basically wrote it off as 'normal' these days due to the back> >> to sleep campaign, and that it's more prevalent now, do more tummy time> >> (does she not think we've tried that?), etc. She agrees that her head is> >> mishapen, she just doesn't want to do anything about it (or anything else).> >> Needless to say, that's not exactly helpful - but this is unfortunately how> >> she approaches all of her issues.> >>> >> Anyway, my question is - has anyone's child dealt with both Torticollis> >> and Plagiocephaly, both in a mild form? How did you treat it?> >>> >> And of course, if anyone lives in Georgia, please let me know!> >>> >> Kim> >>> >>> > > >>