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Hi

I just caught your post and saw that you are very close to us... we are in

Hampshire, IL and we see Dr. Lemke in Geneva... we have had good luck with

her... I can go into more detail at a later time on our treatment... I have 2

girls that are going to be a year and a half and one of them was born with a

left club foot and started treatment as soon as she got out of the hospital...

she was in there for a month so it waited until she was stable and at home....

Dr. Lemke does follow the Ponsetti method and we have had great results.... we

had some issues in the begining with Avery (our daughter) but we didn't know if

it was trouble with the FAB but then we found out she has acid reflux and that

is why she didn't seem to be tolerating the shoes but once we figured that

out.... everything has worked out perfect .... she has beautiful feet and you

would never know it was any different than anyone else... there is another

family from the area that has had great luck with her also....you

are much closer to her than Arlington Heights so I would at least go speak to

her.... I would love to speak to you if you would like to email me or give me a

call.....

number23 wrote:

Hi Stacee, good to have you on board.

Not sure what I can say about your baby's treatment as it doesn't sound like

Ponseti Method to me. Sounds like he's had quite a few casts, probably more

than the Ponseti Method would have required (average of 5 casts, five to seven

days between castings). My last son was treated by Dr. Ponseti in Iowa - he

wore casts for 25 days pre-tenotomy, then 17 days post-tenotomy (42 days total).

He's been wearing the FAB since then and has completely normal feet.

Have you been satisfied with all the results so far though? Typically a child

doesn't need 7 weeks to heal from a tenotomy, only 3, and often they out grow

that cast and only go 2 weeks with excellent results.

Are you interested in hearing more about the Ponseti Method or seeking a 2nd

opinon from a P.M. doctor?

Typically speaking AFO and AKFO style braces have had little success in

maintaing the club foot correction after the casting phase often resulting in

relapses, thus you'll notice all of us here have babies that wear what is

called the Foot Abductin Brace (FAB, often called a DBB) which is shoes

connected to a bar as that has been proven to maintain the correction as the

child grows.

Anyway, I won't hound you - but if there is every any question regarding your

childs treatment/progress, etc., please don't hesitate to ask and know if he

does not respond to your current treatment methods, he's young enough to back up

and start over with the Ponseti Method before any surgical cures are attempted.

Once he's operated on though you'll be stuck wtih those results, either good or

bad (usually bad).

If you haven't done so already I urge you to visit our Files and Links for lots

of really great information about CF in general and treatments, etc.

Good luck,

shawnee

First time posting...

I have been reading over many of the previous posts and thought I'd like to

join in ... My

third child was born 9/24/05 with a right club foot and has been sequentially

casted since

he was 2 days old. He just had an achilles tenotomy on Dec 6th and is

currently in the

cast for approx 4 weeks, then to another cast for ~3 more weeks before moving

to the

AKFO.

My husband also has a right club foot, but was never treated the way kids are

today. He's

fully functional and you'd never know he had a club foot unless you looked

closely. :-)

I'm completely new to this process, and from what I have seen on the boards,

most of the

kids here have bilateral clubs, so I'm not sure if the treatment post tenotomy

is the same

for unilateral vs bilateral?

It's my understanding that our ortho in Arlington Heights, IL will be putting

our son into

an AKFO as soon as he's done with approx 7 weeks of casting post surgery and

he'll be in

that orthotic 23/7 until he's walking, at which point I'm foggy on the course

of treatment.

I noticed another poster is seeing Dr Lemke in Geneva--- Would love to chat

with you

directly if you see this message! We live in Sugar Grove, but opted to see Dr

Marty in

Arlington Heights as he came highly recommended by a friend who's son was

treated for

bilateral foot issues (not club foot.)

Anyway, I hope you all don't mind my jumping in and I apologize if I ask

questions that

have been asked a thousand times before!! :-)

Stacee