Re: PLEASE READ WITHDRAWAL ???????'S

[Guest guest]

, it CAN be so darn frustrating, can't it? The whole autism

spectrum itself is the most elusive animal going, I think. And people

don't understand until they live it. I believe you were chosen as one

who was ABLE to put up with it, so I know you can do it! Here's my

experience in about 5-6 weeks on the gfcf diet, plus other foods.

RIGHT off, after a couple days, said a few words he had never said

before, previously nonverbal at age 8 and 1/2. All he said before was

" da " for Daddy, and " no " (he said this quite well!). That first week we

heard " Daddy, mama, and a few other words which I forget now. Since then

he's said, " hi, Daddy " , " boat " , " chips " , and a handful of other words,

some phrases, and we could have even sworn he said a couple of full

sentences, albeit a little garbled. With an 8-year-old who says some

words for the FIRST time ever, you sit up and take notice.

But let me tell you what else has happened. His behavior is worse, like

those " phases " he used to have, only less often and more extreme then.

In other words, before, he would have wild eruptions every so often, for

no apparent reason. Now, he's more bothersome to all of us with hair

pulling, pinching, and whatnot, more consistently, or most of the time!

But the wild eruptions are few and far between, compared to before. The

other positive change which makes it seem different now is that his

overall demeanor is more alert, but more happy and at peace, if that

makes any sense. My intuition tells me the following has happened:

1) given that the peptides leaking into his system before doing gfcf

(plus his leaky gut problem which exacerbated the situation, and/or was

itself made worse by the situation of the food allergies, etc.) caused a

drug or opiate-like reaction in his brain, it's like he was zoned out on

drugs all the time before. So now a cloud has lifted, so to speak, and

he's starting to discover the joys of teasing, sibling rivalry, etc.,

which I don't think he was fully aware of before on some level! So this

is normal, as his mind is " waking up " (to both good and bad new

behavior-we tend to notice the negative things first!)

2) as we remove offending foods from his diet, I think his system is

adjusting to the new " way " of eating, and when we fail at even one point,

his body can now recognize it, so small infractions probably have larger

(negative) results than at first.

3) the poop thing, I can't advise you on....'s got better (firmer)

for a while, but then he has his " days " ......so that could really be

anything, environmental, or even what supplements we're using. I

remember back from my vitamin-selling days with an all-natural company I

trusted that the explanation given for detox systems in general is that

you feel lousy at first, and have worse stools, etc. as your body is

DUMPING toxins in the body. That can be a process. So that may be all

that's happening...bad stuff coming out slowly, as healthy supplements

are added and negative foods eliminated.

4) finally, we're doing chelation now concurrently, and I think that's

rocking his entire system by moving around the heavy metals, through and

out of his body, so I personally expect negative behavior for some time.

In terms of the time frame, I have read repeatedly to stick it out for at

least 3-6 months, many say a full year to really see the changes. Don't

get discouraged. Removing offending foods that your child can't easily

process cannot be anything but good.

We're having the same handful of meals all the time around here, and it's

quite a challenge learning now ones, but I'm hanging in there in my

second month now. I have such great hope, and the hope keeps me sane.

So hang on to your hope, and hang in there with this. I really believe

it will pay off if you do.

Alison

(formerly signed as Beth R., before going on vacation and unsubscribing

recently)

[Guest guest]

For :

some responses to Marty's letter:

> Our kids' pediatrician denied all knowledge re. gluten and casein

> having to

> do with anything.

Mine also. He mocked my wanting to even have any testing done, as I did.

But I sure found out a lot, not only with food allergies, but also other

metabolic imbalances for which I can now give supplements. Since he

never referred me to the new doc, nothing is covered by insurance, but I

don't care because this knowledge it is worth every penny. We'll fight

some insurance battles later. For now I'm forging ahead trying to help

my son reach his maximum potential.

> the professionals don't even have a

> clue as

> to what is behind our children's problems.

The doctor where I now go (the nutritional specialist) mostly works with

adults with allergy/toxicity problems, not autistic kids. He looked at

me somewhat blanky the first time we met, and asked, " just what are you

expecting us to do for your son? " It was as if he wanted a prescription

from me. But thankfully another medical professional came on board at

his office who is a DAN practitioner, so I did choose to stay

there!!!!!!!!!

Personally I think the diet is

> worth

> staying on, and keeping on.

I agree wholeheartedly.

Alison

mom to , 8 (ASD) Ben, 7, Isaac, 4, and , 2

going crazy at times but mostly ok by the grace of God!