RE: NS Stem Cell trial

[Guest guest]

I wonder if this is the same study group I contacted a few years ago. It was in Chicago & they sent me a packet of info. I was really interested until I found out that I would have to spend a lot of time in Chicago, which I couldn't do. I hope this program is more accessible, because it sounded promising.

Ramblin' RoseModerator

"How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these."

~ Washington Carver

To: neurosarcoidosis From: JessicAbouhamama@...Date: Thu, 2 Jul 2009 11:55:45 -0400Subject: NS Stem Cell trial

Hi group

I just wanted to leave everyone know that universarsity hosp in Ill. is having stem cell transp. for NS. I found it a few months ago on the net and contacted them and had my records sent to the contact person i've been speaking to..

I know there is no cure as of yet, but this trial seems to be worth the try.

If I get accepted they will use high doses of cytoxin and than transplant my stem cells back to me.. after living with this dxd I am ready to try anything, if it would me I have a chance that when they transplant my stem cells back and i come home with a new immune system and get better.. there is a list of things that you must meet. and of course i met them, like there were two immunesuppressent drugs tried. etc...

If anyone would be intrested check it out. I will have to fly out there since i am in PA. but it would be worth the trip.

Hematopoietic Stem Cell Support in Patients With Refractory Sarcoidosis - Full Text View - ClinicalTrials.gov

Many Blessings A.

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