Re: gettting off diet one day

[Guest guest]

At 09:46 PM 3/20/2010, you wrote:

Is there anyone who knows people

who were successful at either getting fully off the diet or mostly off

the scd diet after waiting for a year after their last symptom as

recommended by ellaine?

My niece, who was diagnosed celiac, was strict SCD for about two years.

She now does mostly SCD, but allows herself some gluten free stuff when

she's in a " hurry up " mode. She apparently can do rice pasta

occasionally, potatoes occasionally, and so forth.

The lady who was my mentor went from " your gut looks like bloody

lace " to " if I hadn't diagnosed you myself, I wouldn't believe

you are the same patient. " When she visited us in New Orleans, I

watched in awe as she had some of our New Orleans notable stuff which is

NOT at all SCD legal. She allowed that she would be careful when she went

home, but said it was nice to do occasionally.

The point is not that you can never ever have illegals again -- although

some of us choose not to -- but that you can't go back to a standard

starch and sugar and gluten laden diet like most of us followed

pre-SCD.

I know that when I first considered this diet, the idea of " never,

never, never " was horrifying. Remember, I live in an area where 90%

of the recipes start with " First you brown a roux... " (a roux

is wheat flour browned in butter or olive oil) and end with " ...and

serve it over rice, with a side of French bread. " I took things one

day at a time. As I realized how much better I was feeling, realized that

SCD really did work (unlike the other " gut diets " I'd tried

over 25 years of misery), I began to realize that it really didn't matter

if I never ate another non-SCD food again. What was important was that NO

food was so delicious that it was worth being sick in order to eat

it.

You'll find, when you talk to those of us who have been on SCD for awhile

that one of the reasons we don't want the illegals is because our guts

aren't the only things which have healed or are healing. Our taste buds

have awakened to the taste of real, freshly prepared, whole foods, not

canned and processed junk-filled <bleep>.

We don't hear much from people who have gotten well on SCD, because

they've gotten their lives back and gone their way, thanks to this

dietary miracle. Some of us, though, are crazy enough to stay to

teach.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

Becky,It is my husband with colitis, I just do the diet because I think it is healthy. Occasionally we 'cheat' but let me say that watching him eat and myself, having even a bit of bread (after nearly 2 years on the diet) is enough to induce carb cravings. If one isn't careful a hectic life can cause one to not pay attention to just how often 'just sometimes' actually is. Besides, if you baked bread/grains the way they are supposed to be prepared (as per Sally Fallon in Nourishing Traditions) to be able to digest and derive the most benefit like our ancestors, you would be spending just as much time in the kitchen as you do now. Eating well and preparing food properly is time consuming no matter how you look at it and no matter if you use grains or not.

AmeliaTo: BTVC-SCD Sent: Sun, March 21, 2010 2:46:20 AMSubject: gettting off diet one day

Is there anyone who knows people who were successful at either getting fully off the diet or mostly off the scd diet after waiting for a year after their last symptom as recommended by ellaine?

I myself know one person and that is encouraging to me but I was wondering because I cant imagine sticking to this forever or even for more than a year or two? Maybe its just my pregnancy talking...but there's so many foods I miss like chocolate chip cookies, oatmeal and bread. I'm not even talking about having those foods often just sometimes... .If anyone has something to add I'd really appreciate it!

Thanx, Becky

[Guest guest]

To quote the immortal Elaine, " It is hoped that no one who recovers from his or

her problem by following SCD ever returns to a diet high in refined sugars and

refined flours.(pg 52, Third Printing) " It doesn't sound like that's what you

want to do, but she says hey, add one illegal food a week (after a year of no

symptoms) and see. You never know. There are foods I miss, and I look forward

to having again someday, but you know, by the time I get there, I might not want

it anyway. Peace.

jonathan

[Guest guest]

And this is exactly the mistake I made two years ago. Before I went away to college, I was 100% cured of mt crohn's and thought it was OK to eat anything. This diet is so powerful that it actually took two full years of eating bad to send me back into a flare, but it does eventually happen if we aren't careful.Guys, take it from me. Do NOT stop this diet. It is not worth it. I know how tough it is at first, but you will eventually break through and get better. Be patient and have faith.

__________________________________________________________________

CD

SCD 5 months

Lialda, Purinethol

Freeda Vitamins, L. Acidophilus, Cod Liver OilSubject: Re: gettting off diet one dayTo: BTVC-SCD Date: Sunday, March 21, 2010, 7:15 AM

To quote the immortal Elaine, "It is hoped that no one who recovers from his or her problem by following SCD ever returns to a diet high in refined sugars and refined flours.(pg 52, Third Printing)" It doesn't sound like that's what you want to do, but she says hey, add one illegal food a week (after a year of no symptoms) and see. You never know. There are foods I miss, and I look forward to having again someday, but you know, by the time I get there, I might not want it anyway. Peace.

jonathan

[Guest guest]

Becky,

I was diagnosed with " mild UC " a year ago. Nobody expected me to have the kind

of symptoms I had, but at one point, having a reaction to some medication I was

prescribed, I got pretty sick.

Like , before I found SCD, I read CCCF board and the experiences there and

it scared the daylights out of me. By this time, we had settled into a pretty

traditional family pattern with DH working long hours and me doing everything

else...and I could not do much of it.

My big fear was for my kids. I did not want my kids to be worried about me, and

I wanted to be their healthy mom. I found SCD and here were people doing better

and being positive and it gave me hope too.

At this point I am fully back to being " mom " thank goodness. I can't keep my 15

year old daughter out of my SCD food. Thank goodness I brought extra on this

trip because she keeps eating it- even though she can eat everything else. I

cook mostly SCD for my family but I make side dishes of rice or potatoes for

everyone else. The food thing is different for me, but family life is back to

normal. I am grateful every day.

I will add a little advice as a mom. Now is the time to get used to cooking and

eating SCD- before the little one comes. I know you are focused on a healthy

pregnancy, but a big challenge is the extra time cooking with SCD and the time a

newborn takes. If I were in your shoes, I would buy a big freezer and start

cooking a freezing scd food now.( I do that). Make double batches of soups and

stews, home made applesauce, hamburger patties- wrap individually and thaw for,

a snack-, baked chicken, and nut butter or flour cookies and muffins ( I did not

tolerate them at first, but I baked and froze them for later). Make the nut

butter brownies (recipe on pecanbread.com) and freeze for a high calorie snack

while nursing. Keep food for your husband in the freezer too- then he can focus

on helping with the baby. Try to get as much help as you can from family and

friends when the baby comes so you can get your rest. If a family member is

coming to help when the baby is born, teach them how to cook SCD foods before.

My MIL was a big help, but I was not on SCD at the time. She came and cooked for

us for a week when my first baby was born and it was wonderful.

PJ

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> Subject: Re: gettting off diet one day

> To: BTVC-SCD

> Date: Sunday, March 21, 2010, 7:15 AM

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> To quote the immortal Elaine, " It is hoped that no one who recovers from his

or her problem by following SCD ever returns to a diet high in refined sugars

and refined flours.(pg 52, Third Printing) " It doesn't sound like that's what

you want to do, but she says hey, add one illegal food a week (after a year of

no symptoms) and see. You never know. There are foods I miss, and I look

forward to having again someday, but you know, by the time I get there, I might

not want it anyway. Peace.

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> jonathan

>

[Guest guest]

Becky

I’ve

been on SCD for just over 6 years. I stay on it because it is the only

way I can keep my chronic digestive symptoms under good management. I can’t

even eat many permitted foods either. It took me 3 years to get my gut

ecology restored and my digestion stabilized, but I don’t regret a moment

of those 3 years and the hard work it was at first.

A

funny thing has happened the longer I’ve been on SCD. The illegal

foods just don’t look or smell good to me and I have no desire to eat

even a mouthful of them. Of course part of the feeling is knowing that I’ll

suffer with pain and nausea for hours, if not days, after eating just a

mouthful. Still, the starches and sauces and other off-limit foods just

aren’t appealing anymore and don’t tempt me a bit.

The

one illegal I missed was dark chocolate, and last year (year 5 on SCD) I managed

to find one particular type that my digestion will tolerate on a limited basis,

so I can have one or two pieces a week. I do enjoy it, but I’m also

staying alert to signals that my digestion isn’t handling it. I’m

still experimenting with making my own dark chocolate pieces so I can control

all the ingredients – besides, it’s fun to experiment [grin].

Kim M.

SCD 6 years

Sphincter of Oddi dysfunction 6+ years

neurological & spinal deterioration 3+ years

>>>>>>>>>>>>>>>>>>>>>>>>>>

I

myself know one person and that is encouraging to me but I was wondering

because I cant imagine sticking to this forever or even for more than a year or

two? Maybe its just my pregnancy talking...but there's so many foods I miss

like chocolate chip cookies, oatmeal and bread. I'm not even talking about

having those foods often just sometimes....If anyone has something to add I'd

really appreciate it!

Thanx, Becky