Guest guest Posted October 3, 2009 Report Share Posted October 3, 2009 Hi Rach I generally tell non medical people I have an auto immune disease that causes my white cells to attack even when there isn't bacteria and in doing so it slims my brain and clogs the ventricles. Then I sometimes ask if they'd like to feel the hole in my head from my shunt surgeries. LOL in 'tucky Laughter is my way of coping! Join our Sock Challenge for Orphans in Kazakhstan http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic@... Subject: ThankyouTo: Neurosarcoidosis Date: Tuesday, September 29, 2009, 7:48 PM Hi AllThankyou for welcoming me.Just to clarify you can call me Rach.I have my first question, since I'm currently telling everyone about the change in diagnosis - what's the simplest way of describing Neurosarcoid without confusing people or sounding like a text book.At the moment I'm struggling with the fact I have had this for 9 years but only had the name for 7 days and still can't get my head around it.Rach Quote Link to comment Share on other sites More sharing options...
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