SHOES WONT STAY ON!!

[Guest guest]

Hi ,

Welcome and sorry to hear that you are having a rough time. I really

have to agree with here, it sounds as though your son's foot

has not been fully corrected. If his foot isn't fully corrected, it

will be painful for him to wear the shoes as well.

When the foot has been fully corrected, it should be able to go

outward to 70 degrees and have good dorsiflection (this is the

ability to bend the top of the foot upwards toward the shin). If your

son's foot can't even stay flat on the ground - MAJOR major red flag.

Really glad that you found this group as we can help you to find

qualified doctor in your area for a second opinion. With proper

casting, his foot can be fixed in just a few casts!

Many many parents here started out with doctors that were not able to

correct their kids feet and just like you sought out answers and

changed doctors these parents (yourself included) are GREAT parents!

Please do not beat yourself up because your current doctor for

whatever reason hasn't corrected your son's foot properly. This is

easy to fix with the right doctor.

Where are you located? Really glad that you are here and we are here

to help!

& Grace 18 mos

Unilateral right club foot FAB 13 hrs

>

> hi.. i just found this site.. i need advice ASAP!!

>

> My son was born with clubfoot of the right foot. He went thru the

> Ponseti casting, and then issued the Denis Browne Bar and shoes. We

> could not get that boy to keep those shoes on for more than a few

> hours no matter how or what we tried. For over a month, we tried so

> many different things. His foot started turning back in, so the

> orthopedist started the casting again. After 2 additional weeks,

the

> casting was relieved and a foam mold was taken of his feet for a

> special pair of new sandals Dr Ponseti just came out with. They get

> fitted next Friday.. My only concern is, the reason we couldnt (and

> unfortunately still cant) get his shoes to stay on him, is that his

> foot wont go flat enough against the bottom of the shoes. His heel

> stays close to the top of the shoe, making it very easy for him to

> pull his foot out. I cant bend his foot up enough to make it

> completely flat. I dont know if i should request the casting be

> restarted (yet again...) or perhaps opt for surgery. (which i want

> to stay away from.. i've heard too many horror stories about kids

> and adults getting this procedure only to have pain for numerous

> years.) I feel like I am at fault for not being dillegent enough,

> though i have tried anad tried.. everytime the shoes do get put on

> him, he cries so much he passes out, only to wake up an hour later,

> in pain and i assume with cramps in his feet, and starts screaming

> again.. a mother can only handle so much..i feel like a bad parent

> for intentionally causing her baby so much undeserved pain..

>

> If anyone has any advice, please please give it up! im dyin here!

>

> Rowe

>

[Guest guest]

Can you host/send some pics of your sons foot? It saounds like he may not be

fully corrected if you cant flex his foot up well. Also, I would send some pics

to Dr. ponseti and get his advice for piece of mind also! I have learned that

just because the Dr. says its corrected, doesnt mean it is! We had this problem

with my daughter until we went to see Dr. Ponseti and he corrected it properly

Christee

Mother of...

*Josh, Central Auditory Processing Disorder/Sensory sensitivity/learning &

Speech disorders (9yrs old)

**Aspen, Bilateral minor Metatarsus Adductus (5 1/2 yrs old)

***Dylan, (4 yrs old)

&

****Lilee ~ Unilateral A-Typical (complex) Club Foot w/Cavus/Plantaris (R

foot) & Mild/Moderate Metatarsus Adductus (L foot).

*Ponseti/ Brace 22/24 until 2/14/06, then to 18/24.

---------------------------------

What are the most popular cars? Find out at Yahoo! Autos

[Guest guest]

,

Sounds to me like something is really amiss here. It would be very helpful if

we could see a photo of your child's feet - but in the mean time you're saying

you can't bend the feet up to be in a " normal " position as they would be if she

were standing up on her own.

If I'm understanding that right, if she can't bend them up to stand on them in

a normal position, then definately there is a bigger issue here than the FAB.

We call that ability to tip the foot upwards " dorsiflexion " . Has your dr. told

you how much dosiflexion she has? With out adequate flex no shoe will ever help

her or be worn minus pain.

With a little more info we can possibly help you narrow down the causes to the

problem and fix it.

How old is your daughter?

Who is casting her?

Did she have a tenotomy? Can you tell us how they did that?

How many casts has she had so far?

At what age did she start treatment?

Were the casts changed weekly?

Are the toes on the casts kicked out to 70 degrees?

Were the toes on her current shoes adjusted to kick out at 70 degrees?

Was the bar on the FAB set at shoulder width?

Lots of questions, I'm sorry. The thing is, don't even think surgery yet, OK?

There is so much more that can be done to avoid it!!! Don't let anyone bully

you in to that option yet.

As far as the " new " Ponseti FAB, it is wonderful (we use it too) but even that

won't work if the feet are not ready for the FAB phase of correction. You can't

force a square peg in to a round hole.

She may need recasted prior to using the new FAB; she may need a 2nd opinion

some where if the current doc isn't achieving the proper amount of correction.

We love to help but need more info to really point you towards valid solutions

to your particular problem.

shawnee

SHOES WONT STAY ON!!

hi.. i just found this site.. i need advice ASAP!!

My son was born with clubfoot of the right foot. He went thru the

Ponseti casting, and then issued the Denis Browne Bar and shoes. We

could not get that boy to keep those shoes on for more than a few

hours no matter how or what we tried. For over a month, we tried so

many different things. His foot started turning back in, so the

orthopedist started the casting again. After 2 additional weeks, the

casting was relieved and a foam mold was taken of his feet for a

special pair of new sandals Dr Ponseti just came out with. They get

fitted next Friday.. My only concern is, the reason we couldnt (and

unfortunately still cant) get his shoes to stay on him, is that his

foot wont go flat enough against the bottom of the shoes. His heel

stays close to the top of the shoe, making it very easy for him to

pull his foot out. I cant bend his foot up enough to make it

completely flat. I dont know if i should request the casting be

restarted (yet again...) or perhaps opt for surgery. (which i want

to stay away from.. i've heard too many horror stories about kids

and adults getting this procedure only to have pain for numerous

years.) I feel like I am at fault for not being dillegent enough,

though i have tried anad tried.. everytime the shoes do get put on

him, he cries so much he passes out, only to wake up an hour later,

in pain and i assume with cramps in his feet, and starts screaming

again.. a mother can only handle so much..i feel like a bad parent

for intentionally causing her baby so much undeserved pain..

If anyone has any advice, please please give it up! im dyin here!

Rowe