Re: Reconstructive surgery for 3 year old

[Guest guest]

Audra, I hope the recovery goes quickly. It must be so hard to see

your baby like that, but I've heard they do heal fast. Also it is so

important that his brain has a chance to grow properly. Please keep us

posted on his recovery and give him an extra hug from me.

-christine

sydney 2.5 yrs starband grad

>

> Hi All,

> My son did have cranio. At first we thought he had positional

plagio and even had him in a DOC band. He had his surgery on Monday

and I am in his hospital room as I write this. I know the decision to

have or not have surgery is one of the most difficult decisions you

will ever make, and I would certainly not tell you what you should

do. All I can say is make sure that you are prepared for the surgery

if you go this way. I thought that once the surgery was over, it

would all be healing and therefore would be much more easy, at least

mentally. The recovery is also one of the toughest things that you

will do. Even with all of my research I was not nearly prepared

enough for this experience, and I am not sure that you ever can be.

> , I am writing because my son had his surgery in NYC and I

highly reccommend my neurosurgeon/plastic surgeon team. This is the

team that separated the Aguillera twins in '04. (these twins were

cojoined at the head). They are Dr. Goodrich (pediatric neurosurgeon)

and Dr. Staffenberg (pediatric craniofacial plastic surgeon). They

work out of Montefiore in the Bronx. We did not seek a second opnion,

but I can tell you that there is a craniofacial center at NYU as

well. It is also highly respected. Dr Harter is the neurosurgeon

there. It takes about a month to get a first appointment with these

guys. It may take less time with Dr. Staffenberg. I do know that Dr

Goodrich has done this surgery on a 5 year old.

> Good luck and let me know if I can help.

> Audra

>

>

>

> Re: Reconstructive surgery for 3 year old

>

>

> ,

> This is very interesting to me. My 8 1/2 month daughter is in her

> second DOC band and is doing fantastically!

> My 3 1/2 year old son has positional plagio, typical flat back of the

> head. Looking at baby pictures now, I see it then but I really see it

> now. I actually had a dream about this last night, so I'm feeling like

> I should persue this;)

> First where are you? And how did you find this doctor? We are in NJ

> and are close to both NY and Philadelphia. And how does a plastic

> surgeon correct this with a fully developed skull?

> Thanks!

>

>