Re: Avoiding supplements and what to do when going back into flair?

[Guest guest]

I'm going through something similar right now as far as trying to avoid further damage from bleeding.I upped my meds... I was down to 10mg of prednisone, but I am going to go back to 40 for a week, then 30 for a week, ect. Maybe you can ask your doc if she will put off the colonoscopy until you have the bleeding a little more under control? Unless that's counter productive since she wants to see what's causing it. I would assume any doc would want to stop your bleeding/pain over prolonging it for a test.Some other things that I noticed helped me even though I couldn't keep it up for any extended period of time since I lost too much weight doing it.I ate nothing but meat and drank the broth from when I cooked it in the crock put. I made sure to eat the fat from the meat as well (grass fed). I drank the broth whenever I ate the meat because it gives it a nice flavor and soothed my stomach. I did not eat any cheeses, no yogurt, no juices, no fruit, and no vegetable. I only drank water and had eggs other than the meat. I lasted 2 days doing this (seemed like an eternity!) and then I added some avocado in with this along with the chicken liver/heart from the chickens I was cooking. It helped me.Another thing I do is to soak in a warm/hot bath with 2 cups of epsom salt. This makes a noticable difference overnight. Even if it's the placebo effect, I don't care because it brought my bleeding down by half or more and it took my abdominal pain away as well for almost the entire next day.I hope this helps!!-UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a dayTo: BTVC-SCD From: evenstrangerquark@...Date: Sun, 14 Mar 2010 18:44:46 +0000Subject: Avoiding supplements and what to do when going back into flair?

So "Sleep tonight" contains:

250mg of: stress-reducing proprietary blend: ashwaganha (withania somnifera) (Sensoril ® brand) root and leaf extract standardized to contain 8% withanolides and L-theanine (suntheanine ® brand).

250 mg of: Cortisol-reducing proprietary blend: mangolia (Mangolia officinalis) bank extract standardized to contain 2% honokiol and 1% mangolol and epimedium (Epimedium koreanum) aerial part extract.

50 mg: phosphatidylserine.

Other ingredients: dextrose, cellulose, modified cellulose gum, modified cellulose, magnesium stearate, stearic acid, titanium dioxide, silicon dioxide, soy lecithin, vegetable glycerin, and carnauba wax.

So...I suppose any of those could be bad! I started taking them again after I took that DHEA stuff for 3 days and my heart was pounding and I was getting adrenaline rushes (and funny butterfly-y feeling in my gut with 7 rounds to the bathroom and more blood that day. I figured if the DHEA stimulated my production of adrenaline and cortisol, and I got really bad, maybe I needed sleep (by 5am) and this stuff (called Sleep tonight) is supposed to cut cortisol production by about 67% in test subjects. At this point my adrenaline levels may be more normalized, so I will try not taking it tonight.

I still have a prescription of allegra which I think might have helped the bleeding before - it makes me so groggy the next day, and I have finals this week...but I guess I will figure it out if it have to.

I am also taking acyclovir for herpes and prednisone. I really can't afford to take those out and they are the only ones I've taken these last couple days. I am still bleeding more than I had been before. Less times/day. Still don't want to drink water (because it causes pain) but I will try to rehydrate and eat some salt so I want to drink more. I'm going to try eating hardly anything today and see if more rest helps.

I have also been fighting colds off and on (just nasal mucous/colored mucous symptoms and maybe fatigue can be attributed to that. I also had to decide whether or not to move 2 days ago, decided to, but that was stressful. Met with the ex-boyfriend yesterday to hash some things out. Also stressful. Also worried about finals. Can that kind of stress really cause more bleeding?

What do you guys do when you go into flair? My gastroenterologist doesn't want me to take more prednisone than I already am (5mg/day) because she thinks it is time to do another colonoscopy to see if it is really the UC causing it. She didn't hint at what else she thinks could be causing it. My naturopath really wants the yeast problem taken care of (I have thrush and have probably had candidaitis for several yeast w/o diagnosis), so she wants me to start taking an antifungal. I ate some garlic and onion yesterday to see if that would help. While I don't think it made it worse it is hard to tell since I am still bleeding more/more D/more pain.

On the diet, so many additional medicines are forbidden. My cramp-bark tea has helped each time I've had my period - I would get in so much pain and my symptoms would get a little worse. Then I would finally drink the tea and I would feel better cramp-wise the next day. But if that was forbidden too, what I would do to get my body out of stress-response? More prednisone? Neither of my docs wants to see me continue to bleed more by sticking strickly to the diet and avoiding meds. I want to avoid damage to my colon too, and it seems like this is a very complicated process going on.

Just feeling a little stuck I guess.

Kat

> >"Sleep-tonight," a sleeping pill that contains 2

> >herbs that cut the production of cortisol by

> >like 67% (in test subjects). Still have cramps

> >so I'm thinking of using cramp bark tea today, since that always helps

>

> What's in the sleeping pill?

>

> Most barks are illegal because they contain

> polysaccharides. I discovered, during my fiasco

> a year and a half ago with pain meds containing

> illegals that I thought the meds were helping,

> but it turned out the only thing they were doing

> was feeding the bad bugs... and the pain I was

> getting when they wore off but gut cramps caused

> by the bacteria who wanted their luscious food.

>

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

>

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[Guest guest]

Thanks .

You know, I ebbed off the epsom salt baths these last few days because my skin

keeps coming off in my fingernails (don't feel like scratching - it just comes

off). I thought maybe it was from the baths, but I found out my doc thinks its

from allergies (started with an allergic reaction to mesalamine (asacol) over a

month ago. Or from not having enough fats in my diet. I'll try the baths again.

Others have told me that yogurt is really important. I am also taking

probiotics. Still others have posted that they couldn't tolerate yogurt until

several months in. I know the yogurt didn't start the flair, since I wasn't

eating any at the time to see if it was what caused D last week.

Today I have just had yogurt w/ probiotics, chicken soup broth, and a little bit

of cooked pears. I have blood sugar issues so I have to have some carbs. When I

did mostly meat/eggs and only carrots (which I think I have issues digesting)

with farmer cheese as the intro I did it for 5 days straight and was so drained

of energy, plus seeing wavy lines and other weird stuff, plus die off

symptoms/feverish, etc.

But! I will try it to keep it liquidy and simple for a couple days. I have been

drinking way more water today after getting dehydrated the last couple days,

maybe that will help too.

Thanks!

Kat

>

> > > " Sleep-tonight, " a sleeping pill that contains 2

>

> > >herbs that cut the production of cortisol by

>

> > >like 67% (in test subjects). Still have cramps

>

> > >so I'm thinking of using cramp bark tea today, since that always helps

>

> >

>

> > What's in the sleeping pill?

>

> >

>

> > Most barks are illegal because they contain

>

> > polysaccharides. I discovered, during my fiasco

>

> > a year and a half ago with pain meds containing

>

> > illegals that I thought the meds were helping,

>

> > but it turned out the only thing they were doing

>

> > was feeding the bad bugs... and the pain I was

>

> > getting when they wore off but gut cramps caused

>

> > by the bacteria who wanted their luscious food.

>

> >

>

> >

>

> > — Marilyn

>

> > New Orleans, Louisiana, USA

>

> > Undiagnosed IBS since 1976, SCD since 2001

>

> > Darn Good SCD Cook

>

> > No Human Children

>

> > Shadow & Sunny Longhair Dachshund

>

> >

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> _________________________________________________________________

> The New Busy is not the old busy. Search, chat and e-mail from your inbox.

>

http://www.windowslive.com/campaign/thenewbusy?ocid=PID27925::T:WLMTAGL:ON:WL:en\

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>

[Guest guest]

Elaine never recommended the diet as a substitute for medication. Healing is a

slow process. Many of the people with success stories on SCD also were on meds

at the beginning. At some point, when very stable, some were able to wean off

them, (all against their doctor's advice).

I hate meds as much as anyone!! But it seems to me that it is best to heal

first- (with or without them, as everyone is different)- and then make a

decision about them once one is doing much better.

Feel better,

PJ

>

> > > " Sleep-tonight, " a sleeping pill that contains 2

>

> > >herbs that cut the production of cortisol by

>

> > >like 67% (in test subjects). Still have cramps

>

> > >so I'm thinking of using cramp bark tea today, since that always helps

>

> >

>

> > What's in the sleeping pill?

>

> >

>

> > Most barks are illegal because they contain

>

> > polysaccharides. I discovered, during my fiasco

>

> > a year and a half ago with pain meds containing

>

> > illegals that I thought the meds were helping,

>

> > but it turned out the only thing they were doing

>

> > was feeding the bad bugs... and the pain I was

>

> > getting when they wore off but gut cramps caused

>

> > by the bacteria who wanted their luscious food.

>

> >

>

> >

>

> > — Marilyn

>

> > New Orleans, Louisiana, USA

>

> > Undiagnosed IBS since 1976, SCD since 2001

>

> > Darn Good SCD Cook

>

> > No Human Children

>

> > Shadow & Sunny Longhair Dachshund

>

> >

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> _________________________________________________________________

> The New Busy is not the old busy. Search, chat and e-mail from your inbox.

>

http://www.windowslive.com/campaign/thenewbusy?ocid=PID27925::T:WLMTAGL:ON:WL:en\

-US:WM_HMP:032010_3

>