Re: been away for months...

[Guest guest]

, Forgive me for not writing sooner, never ever be sorry for complaining that's what we are here for, to listen.  Are you on any medications at this time? As for pain, I find the MSM really works for me, I just buy it at Walmart in capsules, and take 2-3 a day, I'm also on Lyerica, for nerve pain, and it really helps  I take one 100mgs three times a day, and can take an extra one any time I need to, which also helps. I go back in forth from Tylenol to Advil, as I have trouble with my stomach.

I am on 3 auto immune suppressant type drugs, Methotrexate, Plaquanil, and Remicade.  I have it Neuro the worse, but some in the lungs and the skin.  If you're on Prednisone that can cause depression, I took it for 3 years and now I really can't take it, unless it's IV. 

Hang in there, don't give up, you have your kids, I'm sorry about the rest, but kids are an important part of who we are, they need you, and they can help you.  My kids help me a lot. We are here for you, I'm sorry again for not getting back to you sooner, I have no excuse but life.

and my Son and his friends moved out this past week, his friend and wife have been living in our basement, and even though they were not a problem, it was extra food, luke warm showers, and someone around all the time.  And the cold just about kills me, it's been cold, I live in CO.

I hope you are feeling some better, please ask questions? and stay with us, we are here to hear your needs and support you, so you are in my prayers. Marl a 

 

Just wanted to reconnect. I joined late August when I finally was dx'd after nearly dying from a torn artery in my brain. So many emotions run through your body throughout the day it can be exhausting. Not even counting the physical aspects.

Somehow, I guess I thought that after finally getting a correct diagnosis, I would finally get help, be cured and go back to my life. Or at least be stable. Life has been anything but and I feel like I have failed.

I lost my marriage, career, my house, and am raising children alone with no other living family. Friendships fell too.

I did finally get my brain sort of back on track but.... the rest of my body has now fallen apart. This started for me as a sudden stroke 2 years ago. I never realized what was in store for me after that.

Suddenly, my body is in unbearable pain and my lungs look like swiss cheese. Oh god, my vision! I lost my drivers license too.

I am so sorry for complaining, I guess I just finally accepted that this disease has consumed me and I need help. First, I am on blood thinners so NSAIDS are contraindicated. Narcotics make me vomit!

Can anyone make a suggestion on what to take for pain? It is excrutiating right now. So bad at night I cannot sleep. I have never experienced this before and this acute flare is going on over 1 month now.

I spend all the energy I have these days on just surviving financially, taking care of my children and keeping a roof over our heads.

Thank you all for listening and I look froward to participating more.