Re: Don't want to complain-- Jackie

[Guest guest]

Jackie,

I had the same thing happen with a disabilty payment that had been mailed to my house. It was stolen by a replacement mailperson (the normal one was on vacation) and it seems that they'd not done a background check on the "friend" that did their routes while they were gone.

It was for mileage to go to SF for a disabilty hearing, and they used a Check-and Go payment center. Like you, no id was asked for-- they just gave up 10% to the C & G. It took a year to fix it-- but it was finally replaced.

I do hope that since "you don't look good in stripes" that at the least, they choose vertical rather than horizontal-- it's that roundness from the pred that gives us that basketball appearance....

So many of us have so much going on-- and we hold it in. l know, I'm the Queen on that one.

I'll do a post that explains more of where I'm coming from to the whole group, as I don't want my post to become anyone's guilt trip.

Love to all,

Tracie

To: Neurosarcoidosis Sent: Wednesday, September 23, 2009 3:50:24 PMSubject: Re: Tracie Update

OH Tracie

I for one am sorry I don't post so much but I have been really busy with the law. I am in the process of moving to my own place and was refused housing in an apt. for the disabled. The reason???? Criminal activity. I was shocked so I went on the CCAP site for Wisconsin and found I had a warrant out for my arrest. ARGH!!!!!!

It was written on a check from my now defunked marriage, in 2001. It was cashed here in Mauston where I now live some 5o miles away from there I used to live. No Identification was asked for and it was cashed in a place where I am well known. A place where I purchased my many many prescriptions. Can you say forgery!!!!!

Well I turned myself in and am out on Bail until I can get an attorney---- public defender---- -and fight this. Needless to say I am a bit afraid. It is not my signature and I did not write the check. I will win I hope.

Also I had a mild flare up in my eyes along with a UTI. My granddaughter is having some trouble and so my daughter is knocking at moms door. That is enough. But all this time I haven't forgotten all of you. I pray for all of you each and every day.

So if you will forgive me for being neglectful in posting I will be quite happy. I will try to post more often. I don't like to complain to anyone so I stay quiet Usually. lol

You take care of you.

Best wishes

Jackie I don't look good in strips. lmao

Tracie Update

Ok gang, I post and you all disapear. All 600 of you. What's up? I know I can come on strong, and these days the sarc advancement has me being sometimes less than tackfull.

I have always told it like it is-- straight and direct. i'm also at a place where for me, I'm frustrated that so many people will chose to do all the stuff they know is not healthy for themself, and puts others at risk. Living on immunosuppressants can make all of us a bit more crazy-- do you go to the grocery store or shopping and risk serious infection? I don't want to live in fear of what if-- so i try to be pro-active in what I do to take care of me. Washing my hands after shopping so that if the kid in the cart has a cold, I'm not in as much danger of getting it. Keeping my hands away from my face-- using my arms to push open a door rather than use the handle, etc. Common sense stuff. That is as good as I can do.

I am watching my mom lose her sight to diabetes, and if you go over after 3pm each day, she's on her 3rd or 4th highball, and breakfast and lunch was half a sweetroll and a cup of coffee with hot chocolate added. But, she did give herself her insulin injection-- morning and night. She's never learned to see what is going on and adjust her dose-- she doesn't want to.

My dad has advanced Parkinsons, and he doesn't feel well enough to cook for them now, and he took that over when he retired-- so mom's lost the memory to do it--- and lacks the vision to be safe.

I watch myself tryiing to learn to manage my diabetes, and it is overwhelming. It's part of this years changes, and yes-- it has made me understand a little bit of where my mom's coming from. I try to be patient with it-- but i'm not very good at it.

I'm struggling with 3 heart valves not working right-- and I have been sick for this whole year. The pulmonary stuff is advancing, because of the combo. My docs want me to get back to LA to see Dr. Sharma, and finally went back to full-time work on Monday. At least for the next 6 wks-- we hope that we don't have any more cuts..

I am only able to stick my head in here a couple of times each week, and generally haven't been well enough to respond. When I do it's because I see that something needs to be addressed right away.

I care so much for all of you, and want you to be able to be as healthful as you can be even with sarcoidosis. It isn't a death sentence, and so many of the problems associated with it can be handled using common sense approaches. I know it can effect our personalities, and I've seen alot of change in mine this last year. I try to remind myself that if I'm experiencing this-- then all of you might also be in some of the same place with your sarcoidosis.

It is important that we communicate, and that we reach out to those in need. If someone can email me a sense of humor-- I'd appreciate it. Right now, life is hard.

Take care,

Tracie

NS Co-owner/moderator