Guest guest Posted February 18, 2009 Report Share Posted February 18, 2009 i too an on remicade. the only time it seemed to work was after my 1st infusion. i stiil take it because it may have oother benefits. i'm on 22mg of prednisone. down from 60mg. I lost 40lbs so that's good. my prayers are with you all. God Bless. Subject: about remicadeTo: Neurosarcoidosis Date: Tuesday, February 17, 2009, 11:25 PM hello everyone, i went to a winterfest the day after my first infusion and was able to walk around unassisted for 8 and a half hours!!!! i have not been able to do that since july!! rose, i am on 20mg of prednisone (which they will start to ween me off on the 25th of this month!) 20mgs of arava, 20mgs of prilosec,and fosomax. is this the right meds so i do not build up antibodies? i went to physical therapy and did not get far due to the facial palsey , it led to spasms and breathlessness. does anyone have this problem? i was told by the therapist i need a 2 wheeled walker for now. ron sorry to hear about you having ms now my prayers are with you. marla i sent my insurance company the info you gave me about remicade and i think it helped with speedy approval plus i called everyday to push them. so if anyone is waiting approval push and push some more. hope all is well with everyone. tracie will you be back? i hope so! it has been kind of quiet on this support group! blessings for all, barb Quote Link to comment Share on other sites More sharing options...
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