Re: Thanks to all but i need help with this??

[Guest guest]

As caregiver spouse to I find faith is one of the things that keeps me going. I also am extremely lucky to have found the group here. My own family doesn't understand what is wrong. They know it is getting worse and they know that is ill. I have told them what the disease is but I have observed that they all think it is going to one day just get better.They whisper things that they think I have not heard. Example. Went to see family last weekend. I overheard my Mom say to my older brother....'s speech has gotten so bad I cant understand her. Never mind my mother needs new hearing aids. I rounded the corner just as they got quiet and said if there is something you need to ask then do

it. I have told you all this does not get better. Hang in there. I will keep you in my prayers.MattSubject: Thanks to all but i need help with this??To: "neurosarcoidosis" <neurosarcoidosis >Date: Friday, January 22, 2010, 10:08 PM

I have always been very independant at 48 i never married no kiids but am finding at times its hard to ask for help and trying to exsplain to family about this is hard , many people including Drs i am finding don,t know what to do or react so diffrent especially when your chest is at you and its not your heart people just you know have a hard time trying to understand seems like whats happening with you now and seem Perplexed , hiowdoes everyone here do it i have read so much from everyone , your strong and have a lot of faith and strength.

-- Crenshaw

[Guest guest]

Thanks. I continue to keep all in my prayers. I only wish that the doctors and med professionals would truly recognize this disease and go after better ways to battle it.Matt

From: Tim Crenshaw <tim4343 (AT) gmail (DOT) com>Subject: Thanks to all but i need help with this??To: "neurosarcoidosis" <neurosarcoidosis@ yahoogroups. com>Date: Friday, January 22, 2010, 10:08 PM

I have always been very independant at 48 i never married no kiids but am finding at times its hard to ask for help and trying to exsplain to family about this is hard , many people including Drs i am finding don,t know what to do or react so diffrent especially when your chest is at you and its not your heart people just you know have a hard time trying to understand seems like whats happening with you now and seem Perplexed , hiowdoes everyone here do it i have read so much from everyone , your strong and have a lot of faith and strength.-- Crenshaw