Guest guest Posted February 24, 2009 Report Share Posted February 24, 2009 My son got his helmet last night. He is 9 months old. We are doing the on for 1 hour schedule, off for one hour schedule....BUT I am freaking out bc I am reading all of these posts about NOPCO in Boston. We got ours through NOPCO in Philadelphia at Children's Hospital of Philadelphia. After all of this, I am worried we picked the wrong band. Can anyone give me a quick summary of the issues with NOPCO Boston? I drove myself CRAZY last night trying to re-read all of the old posts. My husband told me that I had to stop. Has anyone used NOPCO philadelphia? I feel like I have this small window of time to fix this and I don;t want to use the wrong band. PLEASE PLEASE PLEASE respondMissy,mom to Zev, 9 months, helmet 2/23/09From: Jen <JenandLuli@...>Subject: Re: nervous and confused in BostonPlagiocephaly Date: Monday, February 23, 2009, 10:51 PM I didn;t use that band so I can;t really speak from experience with them... But you can p a search thru all the ol messages with the keyword NOPCO. I know alot of discussion has gone on in the past. Jen and Luli - 3 years old Left tort - Right Plagio - Hanger Band Grad - CA http://www.babieson line.com/ babies/j/ jens5th/ nervous and confused in Boston We got my son's helmet on Wednesday but waited until today to start. We got it from NOPCO at Chidren's Hospital in Boston. There they use a laser scan to get a 3D image of his head and then build the band from that. So during the practice wear I noticed there was an uneven side and went to have it shaved down at the NOPCO in the Burlington office because it was much closer to me. They had no wait and so consequently I switched all my followup apppointments there. But I got some info and the Burlington office typicaly casts the fittingt and doesn't use a laser... They are just upgrading their technoloyg right now and have started to use the lazer. I asked what the scans are used for and I was told that the scans are not used for anything but showing progress to the parent and not for any data collection or custom making of the helmet. I then talked with the orthoist from Boston and she said that I got misinformation because they use the scan in conjunction with a machine that carves out a 3D model from the scan out of foam. Supposedly the techs modifiy it to make it more round and pull the foam and plastic over it. It's also used for data collection. So now I don't know what to do or what to believe and I just want someone to tell me what to do but no one will because my family isn't really pro band and they're questiong why was it so uneven if it's really "custom" machine made? I'm sort of asking msyelf that question too. I definitely want to do it, and not regret it later on but I'm just stressed out. Is there anyone from the Boston area who has sucessfully used NOPCO at Childrens or Burlington? I just need some advice... Which orthoist did you have? Thanks Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2009 Report Share Posted February 24, 2009 Hello, We took my daughter to Nopco in Waltham and Dr. Rodgers. Our experience was okay. Nopcos measurements started off at 18. She only had to wear it for about 7-8 weeks. As for the scanning, we never saw a picture of the scan. ALL progress was tracked by hand measurements. I specifically asked for another scan when all was said and done and they told me that they only do that at the beginning. There were a few weeks when we went for an adjustment and they told us that there was no progress... however I had been taking pictures and could clearly see that there had been. AT our last adjustment they told us that she was still " a 12 " according to their measurements but when we went to see Dr. Rodgers right after he told us that she was about " a 4 " which is considered " normal " and that we could stop using the helmet. I def. question the accuracy of the Orthotists measurements and wish that they would do a scan in the end to compare b/c I feel that the scan is much more accurate than the ruler contraption that they use. Sorry if this is a bit rambley. Please let me know if you have any more questions. Christie > > From: Jen <JenandLuli@...> > Subject: Re: nervous and confused in Boston > Plagiocephaly > Date: Monday, February 23, 2009, 10:51 PM > > I didn;t use that band so I can;t really speak from experience with them... > But you can p a search thru all the ol messages with the keyword NOPCO. I > know alot of discussion has gone on in the past. > > <http://presence.webmail.aol.com/mailsig/?sn=jenandluli> Jen and Luli - 3 > years old > Left tort - Right Plagio - Hanger Band Grad - CA > http://www.babieson line.com/ babies/j/ jens5th/ > > > > nervous and confused in Boston > > We got my son's helmet on Wednesday but waited until today to > start. We got it from NOPCO at Chidren's Hospital in Boston. There > they use a laser scan to get a 3D image of his head and then build > the band from that. > > So during the practice wear I noticed there was an uneven side and > went to have it shaved down at the NOPCO in the Burlington office > because it was much closer to me. They had no wait and so > consequently I switched all my followup apppointments there. But I > got some info and the Burlington office typicaly casts the fittingt > and doesn't use a laser... They are just upgrading their technoloyg > right now and have started to use the lazer. I asked what the scans > are used for and I was told that the scans are not used for anything > but showing progress to the parent and not for any data collection > or custom making of the helmet. > > I then talked with the orthoist from Boston and she said that I got > misinformation because they use the scan in conjunction with a > machine that carves out a 3D model from the scan out of foam. > Supposedly the techs modifiy it to make it more round and pull the > foam and plastic over it. It's also used for data collection. > > So now I don't know what to do or what to believe and I just want > someone to tell me what to do but no one will because my family > isn't really pro band and they're questiong why was it so uneven if > it's really " custom " machine made? I'm sort of asking msyelf that > question too. I definitely want to do it, and not regret it later on > but I'm just stressed out. > > Is there anyone from the Boston area who has sucessfully used NOPCO > at Childrens or Burlington? I just need some advice... Which > orthoist did you have? > > Thanks > > > > > > _____ > > Access 350+ FREE radio stations anytime from anywhere on the web. Get the > Radio Toolbar > <http://toolbar.aol.com/aolradio/download.html? ncid=emlweusdown00000035> ! > Quote Link to comment Share on other sites More sharing options...
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