Re: Fitting sarc into your relationship

[Guest guest]

& i have been dealing with neurosarcoidosis since 2004. Previous to that they were treating her for Seizure disorder. I truly believe that the sarc was there all along. This has been a major adjustment for us. Until 2004 still worked and drove. Suddenly she was almost entirely dependent on me. As time has gone on she has become very dependent on me. The past couple years have seen the disease get worse compromising her mobility & speech. We ended up selling our house and moving to a townhouse so it would be easier for her. She enjoyed doing yard work and was always doing construction projects. Now she cant do any of them. She enjoyed sewing etc. and cant do that either. So needless to say this has taken a big toll on her

confidence etc.As for our personal relationship the disease has also taken its toll. I spend a lot of time as caregiver at this point and the disease has interfered immensely with the intimate sides of our life. However we trudge on. We have been married for 24 years and together for 25. As for things that we do now. We still go places, but it takes a lot to get there. Since cant walk that much we try for places that might not require a lot of walking or if they do then we have to get a wheelchair as we did when I took her to Longwood gardens this past Fall. There was a time when would walk everywhere. We loved to take walks and now we cant. We will play yahtzee and scrabble. These games help her think. We also will sit and talk as best we can & I still take her out to places to eat, although the places we go are not as fancy as they used to be. She likes

places now where you can get foods that you can pick up in your fingers. I guess since is my world I will do everything I can to make it work out as best I can, I have often said this disease is like a bad poker hand that I will play out until the end. Matt

From: tiodaat (AT) att (DOT) net <tiodaat (AT) att (DOT) net>Subject: ScienceDaily: Fish oil given intravenously to patients in intensive care has many benefits, study findsTo: neurosarcoidosis@ yahoogroups. comDate: Wednesday, January 20, 2010, 6:49 PM

Tracie (Tiodaat (AT) att (DOT) net) has sent you a link to the following page on ScienceDaily:Fish oil given intravenously to patients in intensive care has many benefits, study findshttp://www.scienced aily.com/ releases/ 2010/01/10011820 4043.htmA randomized controlled trial of fish oil given intravenously to patients in intensive care has found that it improves gas exchange, reduces inflammatory chemicals and results in a shorter length of hospital stay. Researchers investigated the effects of including fish oil in the normal nutrient solution for patients with sepsis, finding a significant series of benefits.* Note: the sender's email address has not been

verified.