Guest guest Posted April 10, 2009 Report Share Posted April 10, 2009 Just when you thought it was quiet! I'm back! Hello all. I've been trying to pretend I'm not ill and keeping busy with my knitting but I got hit with a ton of bricks at treatment yesterday. The Cytoxin isn't working and they want to try to get me on Remicade. Bummer. But the GOOD Join our Sock Challenge for Orphans in Kazakhstan http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic@... Subject: way to quietTo: neurosarcoidosis Date: Thursday, April 9, 2009, 8:39 PM putting aside my growing list of problems the group is way to quiet ... I hope everyone is ok.. I was just wondering,, we are what over 500 strong and there is only a handful of us who keep intouch. That makes me wonder if so many of us are that are part of this group do not find the support that they need?? or so many of us are just so ill that we can't keep intouch. what do you think? I hope its that your in remission and don't need our support right now.. that is what i am hoping for. I hope everyone is having a painfree day Many Blessings A. Save money by eating out! Find great dining coupons in your area. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2009 Report Share Posted April 10, 2009 Dumb fingernails! Where was I? Oh yea, the GOOD NEWS is I'm going to be a GREAT Join our Sock Challenge for Orphans in Kazakhstan http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic@... Subject: way to quietTo: neurosarcoidosis Date: Thursday, April 9, 2009, 8:39 PM putting aside my growing list of problems the group is way to quiet ... I hope everyone is ok.. I was just wondering,, we are what over 500 strong and there is only a handful of us who keep intouch. That makes me wonder if so many of us are that are part of this group do not find the support that they need?? or so many of us are just so ill that we can't keep intouch. what do you think? I hope its that your in remission and don't need our support right now.. that is what i am hoping for. I hope everyone is having a painfree day Many Blessings A. Save money by eating out! Find great dining coupons in your area. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2009 Report Share Posted April 10, 2009 GREAT GRANDMOTHER IN AUGUST!!!!!!!!!!!!!! Didn't think I was going to get that out! How can I pretend when I fall in the stores and then I can't walk to the stores by myself? I'll hit the archives later, after some of this medication wears off and I can sleep, and check out the Remicade info. At least I finally asked for a port when the nurse suggested it because they all were having a hard time finding a vein. It's wonderful! It frees up my hands to knit or stuff my face! LOL Rosie I've been through about 4 used computers since I first found this group. I forgot the old Mac so make that 5. Thankful for all of them. Hope yours is up and running soon. I hope you're right that they are in remission. Right now I am having a painfree day. Hope you are also. I'll try to keep in touch more. It'll keep me off of eBay! LOL I want to really jump into spring cleaning but it's more of a limp. I've been reading the decluttering articles and if I can get this mountain down to a molehill it'll be alot easier for me to manage. I wanted to have a Crap for a Cure yardsale but I think it would be easier for me to donate the stuff to Goodwill and make a donation to the Foundation equal to the amount I would have made but I just LOVE the tshirts! At least it is SPRING where most of us are and maybe the sun will cheer us up. I promise I'll be back! Join our Sock Challenge for Orphans in Kazakhstan http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic@... Subject: way to quietTo: neurosarcoidosis Date: Thursday, April 9, 2009, 8:39 PM putting aside my growing list of problems the group is way to quiet ... I hope everyone is ok.. I was just wondering,, we are what over 500 strong and there is only a handful of us who keep intouch. That makes me wonder if so many of us are that are part of this group do not find the support that they need?? or so many of us are just so ill that we can't keep intouch. what do you think? I hope its that your in remission and don't need our support right now.. that is what i am hoping for. I hope everyone is having a painfree day Many Blessings A. Save money by eating out! Find great dining coupons in your area. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2009 Report Share Posted April 10, 2009 Granny, it is good to hear from you-- Great Grandma-- Wahoo!! I laugh because my son is an idealist-- he thinks he needs to wait until he finds a woman he loves and wants to spend his life with-- can't imagine where he got that concept-- LOL! Happy Easter to you, Tracie NS Co-owner/moderator Subject: way to quietTo: neurosarcoidosis Date: Thursday, April 9, 2009, 8:39 PM putting aside my growing list of problems the group is way to quiet ... I hope everyone is ok.. I was just wondering,, we are what over 500 strong and there is only a handful of us who keep intouch. That makes me wonder if so many of us are that are part of this group do not find the support that they need?? or so many of us are just so ill that we can't keep intouch. what do you think? I hope its that your in remission and don't need our support right now.. that is what i am hoping for. I hope everyone is having a painfree day Many Blessings A. Save money by eating out! Find great dining coupons in your area. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2009 Report Share Posted April 10, 2009 I agree-- is great!!! Subject: way to quietTo: neurosarcoidosis Date: Thursday, April 9, 2009, 8:39 PM putting aside my growing list of problems the group is way to quiet ... I hope everyone is ok.. I was just wondering,, we are what over 500 strong and there is only a handful of us who keep intouch. That makes me wonder if so many of us are that are part of this group do not find the support that they need?? or so many of us are just so ill that we can't keep intouch. what do you think? I hope its that your in remission and don't need our support right now.. that is what i am hoping for. I hope everyone is having a painfree day Many Blessings A. Save money by eating out! Find great dining coupons in your area. Quote Link to comment Share on other sites More sharing options...
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