Re: Calcaneovalgus talipes

[Guest guest]

Hi

I certainly have thought about contacting Dr

Ponsetti....I'll need to find his email address....as

I recall it has been posted here before so I will

track back through messages to find it.

As my baby's birth is now fast approaching (6 weeks to

go) I am getting more nervous about finding the right

treatment here in Aus...it doesn't help that I can't

actually get a Dr, Specialist or Geneticist to commit

to one diagnosis or an other either!! I am just

nervous that like clubfoot, the calcaneovalgus foot

needs to be treated early and no one here seems to

know what to do about it!

What the medical people I have dealt with know about

posteromedial bowing they know because I told them

about it or gave them journal articles etc. In fact,

it was in November, after seeing a Geneticist who told

us possible diagnosis could include pseudoarthritis,

fibular-femur-ulna complex or fibular hemimelia, and

that worst case scenario our baby may need amputation

and prosthesis, that I researched those conditions to

find that the foot position our little one was

exhibiting was in oposition to all of those

diagnosis'. That is when I found info on

posteromedial bowing (which typically presents with

calcaneovalgus foot), and low and behold, the

posteromedial bow was picked up on the next

ultrasound! While we won't have a complete diagnosis

until our baby arrives, I am hopeful that this is the

most likely scenario as it is not known to be related

to any other condition or syndrome.

Thanks for understanding my frustration....it has been

great to share my feelings and I will let you know how

I get on with Dr Ponsetti and Dr .

Kath

--- jennyandkelly wrote:

> Hi, Kath,

> Have you thought about communicating with Dr.

> Ponseti on this at

> all? He's probably going to have personal

> experience with the

> posteromedial bowing of the tibia since he's treated

> so many

> children over the years. Maybe also inquire with

> Naomi in the

> UK just because she seems to be on the cutting edge

> of orthopaedics

> there?

> I don't know of any Australian doctors that I would

> be comfortable

> referring you to based on my limited knowledge based

> on personal

> testimonies from families down there, but I have

> read some good

> things about Dr. Crawford in NZ though. Hopefully

> some of the other

> Australian/NZ families can point you to a competent

> doctor.

>

> Please consider emailing Dr. Ponseti about your

> baby's potential

> diagnosis thus far...it can't hurt to get ideas from

> him. I know

> how frustrating it can be trying to research

> conditions that are

> rare and the information available is slim. We're

> here to help you

> in any way we can.

> Please keep us posted as you're able,

>

>

>

> >

> > Hi Everyone

> >

> > I have been lurking for a little while, just

> keeping abreast of

> all

> > your info and advice. Just to refresh your

> memories, I am from

> > Australia and found out by ultrasound that our

> baby had a right

> sided

> > clubfoot and shortened tibia and fibula about 3

> months ago. You

> have

> > all offered invaluable advice over the past few

> months as I

> prepare

> > for the arrival of my little one.

> >

> > However, after many further ultrasounds, it

> appears that our

> little

> > guy's foot is not a typical clubfoot, but is in a

> position of

> severe

> > dorsilflexion, in a calcaneovalgus position. We

> have also found

> that

> > our baby's tibia has a posteromedial bow, causing

> the shortening

> in

> > bone length and the foot position.

> >

> > This means that our baby's treatment will be

> three-fold: 1) to

> treat

> > the foot position; 2) to treat the length

> discrepancy; and 3) to

> > treat the bow in the tibia if needed.

> >

> > Can anyone tell me anything about correcting

> calcaneovalgus

> talipes?

> > Is it a similar treatment to that of typical

> clubfoot? I have

> been

> > unable to find much info on this condition short

> of saying that

> the

> > foot position either: a) resolves itself (not

> likely in our case

> as

> > caused by the bowed tibia); requires physio; or

> c) requires

> serial

> > casting.

> >

> > Also, a likely diagnosis for our little one's

> lower leg issue is

> > called " Posteromedial bowing of the tibia " , which

> is an incredibly

> > rare condition, with apparently only 168 reported

> cases worldwide

> > since 1950......so if anyone knows anything about

> this condition,

> or

> > knows someone who has experience with the

> condition, I would

> really

> > appreciate any info or advice.

> >

> > Thanks in advance

> >

> > Kath

> >

>

>

>

>

>

__________________________________________________

[Guest guest]

Hi Kath,

Isn't the internet a great thing?! So good that you have been doing

your own research and we hope for the best possible outcome for your

little one.

I did a quick google search and found that calcaneovalgus is lumped

in with or classified as a form of clubfoot. I would think that Dr.

Davies would have treated many such cases. Have heard nothing but

wonderful things about her!

Being Ponseti trained, she would have a very intimate knowledge of

how to manipulate the bones of the foot in just the right way to get

them back into alignment, one would think that she would be able to

do this with a calcaneovalgus foot as well. Give her a call anyway

and I would DEFINATELY call Dr. Ponseti too.

Hope you are feeling well =)

& Grace 18 mos

unilateral rcf FAB 13 hrs

> > >

> > > Hi Everyone

> > >

> > > I have been lurking for a little while, just

> > keeping abreast of

> > all

> > > your info and advice. Just to refresh your

> > memories, I am from

> > > Australia and found out by ultrasound that our

> > baby had a right

> > sided

> > > clubfoot and shortened tibia and fibula about 3

> > months ago. You

> > have

> > > all offered invaluable advice over the past few

> > months as I

> > prepare

> > > for the arrival of my little one.

> > >

> > > However, after many further ultrasounds, it

> > appears that our

> > little

> > > guy's foot is not a typical clubfoot, but is in a

> > position of

> > severe

> > > dorsilflexion, in a calcaneovalgus position. We

> > have also found

> > that

> > > our baby's tibia has a posteromedial bow, causing

> > the shortening

> > in

> > > bone length and the foot position.

> > >

> > > This means that our baby's treatment will be

> > three-fold: 1) to

> > treat

> > > the foot position; 2) to treat the length

> > discrepancy; and 3) to

> > > treat the bow in the tibia if needed.

> > >

> > > Can anyone tell me anything about correcting

> > calcaneovalgus

> > talipes?

> > > Is it a similar treatment to that of typical

> > clubfoot? I have

> > been

> > > unable to find much info on this condition short

> > of saying that

> > the

> > > foot position either: a) resolves itself (not

> > likely in our case

> > as

> > > caused by the bowed tibia); requires physio; or

> > c) requires

> > serial

> > > casting.

> > >

> > > Also, a likely diagnosis for our little one's

> > lower leg issue is

> > > called " Posteromedial bowing of the tibia " , which

> > is an incredibly

> > > rare condition, with apparently only 168 reported

> > cases worldwide

> > > since 1950......so if anyone knows anything about

> > this condition,

> > or

> > > knows someone who has experience with the

> > condition, I would

> > really

> > > appreciate any info or advice.

> > >

> > > Thanks in advance

> > >

> > > Kath

> > >

> >

> >

> >

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Hi Kath, here are a few links I've found. I don't know if you've

taken a look at any of these yet. Sorry I can't be of much help.

http://www.wheelessonline.com/ortho/posteromedial_tibial_bowing

http://www.emedicine.com/orthoped/topic449.htm

http://www.teambone.com/chapters/peds/tad/tad.html

> > >

> > > Hi Everyone

> > >

> > > I have been lurking for a little while, just

> > keeping abreast of all

> > > your info and advice. Just to refresh your

> > memories, I am from

> > > Australia and found out by ultrasound that our

> > baby had a right sided

> > > clubfoot and shortened tibia and fibula about 3

> > months ago. You have

> > > all offered invaluable advice over the past few

> > months as I prepare

> > > for the arrival of my little one.

> > >

> > > However, after many further ultrasounds, it

> > appears that our little

> > > guy's foot is not a typical clubfoot, but is in a

> > position of severe

> > > dorsilflexion, in a calcaneovalgus position. We

> > have also found that

> > > our baby's tibia has a posteromedial bow, causing

> > the shortening in

> > > bone length and the foot position.

> > >

> > > This means that our baby's treatment will be

> > three-fold: 1) to treat

> > > the foot position; 2) to treat the length

> > discrepancy; and 3) to

> > > treat the bow in the tibia if needed.

> > >

> > > Can anyone tell me anything about correcting

> > calcaneovalgus talipes?

> > > Is it a similar treatment to that of typical

> > clubfoot? I have been

> > > unable to find much info on this condition short

> > of saying that the

> > > foot position either: a) resolves itself (not

> > likely in our case as

> > > caused by the bowed tibia); requires physio; or

> > c) requires serial

> > > casting.

> > >

> > > Also, a likely diagnosis for our little one's

> > lower leg issue is

> > > called " Posteromedial bowing of the tibia " , which

> > is an incredibly

> > > rare condition, with apparently only 168 reported

> > cases worldwide

> > > since 1950......so if anyone knows anything about

> > this condition, or

> > > knows someone who has experience with the

> > condition, I would really

> > > appreciate any info or advice.

> > >

> > > Thanks in advance

> > >

> > > Kath

> > >

> >

> >

> >

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Yea, I checked these sites out too, most say that the deformity is

corrected by taping and or plaster and in many cases surgery (except

for the mildest form which is supposed to correct on it's own).

Pretty well exactally what is outlined for clubfoot treatment.

Hope that you will be able to see Dr. Naomi Kath, please let us

know what she has to say.

Hugs,

& Grace

> > > >

> > > > Hi Everyone

> > > >

> > > > I have been lurking for a little while, just

> > > keeping abreast of all

> > > > your info and advice. Just to refresh your

> > > memories, I am from

> > > > Australia and found out by ultrasound that our

> > > baby had a right sided

> > > > clubfoot and shortened tibia and fibula about 3

> > > months ago. You have

> > > > all offered invaluable advice over the past few

> > > months as I prepare

> > > > for the arrival of my little one.

> > > >

> > > > However, after many further ultrasounds, it

> > > appears that our little

> > > > guy's foot is not a typical clubfoot, but is in a

> > > position of severe

> > > > dorsilflexion, in a calcaneovalgus position. We

> > > have also found that

> > > > our baby's tibia has a posteromedial bow, causing

> > > the shortening in

> > > > bone length and the foot position.

> > > >

> > > > This means that our baby's treatment will be

> > > three-fold: 1) to treat

> > > > the foot position; 2) to treat the length

> > > discrepancy; and 3) to

> > > > treat the bow in the tibia if needed.

> > > >

> > > > Can anyone tell me anything about correcting

> > > calcaneovalgus talipes?

> > > > Is it a similar treatment to that of typical

> > > clubfoot? I have been

> > > > unable to find much info on this condition short

> > > of saying that the

> > > > foot position either: a) resolves itself (not

> > > likely in our case as

> > > > caused by the bowed tibia); requires physio; or

> > > c) requires serial

> > > > casting.

> > > >

> > > > Also, a likely diagnosis for our little one's

> > > lower leg issue is

> > > > called " Posteromedial bowing of the tibia " , which

> > > is an incredibly

> > > > rare condition, with apparently only 168 reported

> > > cases worldwide

> > > > since 1950......so if anyone knows anything about

> > > this condition, or

> > > > knows someone who has experience with the

> > > condition, I would really

> > > > appreciate any info or advice.

> > > >

> > > > Thanks in advance

> > > >

> > > > Kath

> > > >

> > >

> > >

> > >

> > >

> > >

> >

> >

> > __________________________________________________

> >

[Guest guest]

UI Hospitals and Clinics Patient Education To Parents of Children Born with

Clubfeet

How to Contact Dr. Ponseti

Ignacio Ponseti, M.D.

Department of Orthopaedic Surgery, University of Iowa Hospitals and Clinics

Peer Review Status: Internally Peer Reviewed

Telephone:

(319)356-3469

Address:

University of Iowa Hospitals and Clinics

200 Hawkins Drive

010255 JPP

Iowa City, IA 52242

Via E-mail:

ignacio-ponseti@...

kathi fry ha scritto:

Hi

I certainly have thought about contacting Dr

Ponsetti....I'll need to find his email address....as

I recall it has been posted here before so I will

track back through messages to find it.

As my baby's birth is now fast approaching (6 weeks to

go) I am getting more nervous about finding the right

treatment here in Aus...it doesn't help that I can't

actually get a Dr, Specialist or Geneticist to commit

to one diagnosis or an other either!! I am just

nervous that like clubfoot, the calcaneovalgus foot

needs to be treated early and no one here seems to

know what to do about it!

What the medical people I have dealt with know about

posteromedial bowing they know because I told them

about it or gave them journal articles etc. In fact,

it was in November, after seeing a Geneticist who told

us possible diagnosis could include pseudoarthritis,

fibular-femur-ulna complex or fibular hemimelia, and

that worst case scenario our baby may need amputation

and prosthesis, that I researched those conditions to

find that the foot position our little one was

exhibiting was in oposition to all of those

diagnosis'. That is when I found info on

posteromedial bowing (which typically presents with

calcaneovalgus foot), and low and behold, the

posteromedial bow was picked up on the next

ultrasound! While we won't have a complete diagnosis

until our baby arrives, I am hopeful that this is the

most likely scenario as it is not known to be related

to any other condition or syndrome.

Thanks for understanding my frustration....it has been

great to share my feelings and I will let you know how

I get on with Dr Ponsetti and Dr .

Kath

--- jennyandkelly wrote:

> Hi, Kath,

> Have you thought about communicating with Dr.

> Ponseti on this at

> all? He's probably going to have personal

> experience with the

> posteromedial bowing of the tibia since he's treated

> so many

> children over the years. Maybe also inquire with

> Naomi in the

> UK just because she seems to be on the cutting edge

> of orthopaedics

> there?

> I don't know of any Australian doctors that I would

> be comfortable

> referring you to based on my limited knowledge based

> on personal

> testimonies from families down there, but I have

> read some good

> things about Dr. Crawford in NZ though. Hopefully

> some of the other

> Australian/NZ families can point you to a competent

> doctor.

>

> Please consider emailing Dr. Ponseti about your

> baby's potential

> diagnosis thus far...it can't hurt to get ideas from

> him. I know

> how frustrating it can be trying to research

> conditions that are

> rare and the information available is slim. We're

> here to help you

> in any way we can.

> Please keep us posted as you're able,

>

>

>

> >

> > Hi Everyone

> >

> > I have been lurking for a little while, just

> keeping abreast of

> all

> > your info and advice. Just to refresh your

> memories, I am from

> > Australia and found out by ultrasound that our

> baby had a right

> sided

> > clubfoot and shortened tibia and fibula about 3

> months ago. You

> have

> > all offered invaluable advice over the past few

> months as I

> prepare

> > for the arrival of my little one.

> >

> > However, after many further ultrasounds, it

> appears that our

> little

> > guy's foot is not a typical clubfoot, but is in a

> position of

> severe

> > dorsilflexion, in a calcaneovalgus position. We

> have also found

> that

> > our baby's tibia has a posteromedial bow, causing

> the shortening

> in

> > bone length and the foot position.

> >

> > This means that our baby's treatment will be

> three-fold: 1) to

> treat

> > the foot position; 2) to treat the length

> discrepancy; and 3) to

> > treat the bow in the tibia if needed.

> >

> > Can anyone tell me anything about correcting

> calcaneovalgus

> talipes?

> > Is it a similar treatment to that of typical

> clubfoot? I have

> been

> > unable to find much info on this condition short

> of saying that

> the

> > foot position either: a) resolves itself (not

> likely in our case

> as

> > caused by the bowed tibia); requires physio; or

> c) requires

> serial

> > casting.

> >

> > Also, a likely diagnosis for our little one's

> lower leg issue is

> > called " Posteromedial bowing of the tibia " , which

> is an incredibly

> > rare condition, with apparently only 168 reported

> cases worldwide

> > since 1950......so if anyone knows anything about

> this condition,

> or

> > knows someone who has experience with the

> condition, I would

> really

> > appreciate any info or advice.

> >

> > Thanks in advance

> >

> > Kath

> >

>

>

>

>

>

__________________________________________________