Re: I REALLY NEED YOUR HELP NOW!!!!!

[Guest guest]

a,

Please try the supplements!! You may just be in for a pleasant surprise.

My friend has a similar child and there is a definite relationship between

when she gives her child the supps and when she doesnt!! Huge! Also, these

kids have so many imbalances going on--usually the diet isnt enough to

rebalance things. Pro bio gold two times per day, zinc at night, colostrum,

good multiple vitamin etc. Good luck and hang in there!! Please try the

supps!

Phyllis,

Dont give up my friend. Two weeks is not long enough to see much good and

for those who have withdrawals, not going to see much good at all yet. But

your boy probably feels like crap right now as he has been drugged for quite

a while. Now he doesnt have that drug and he has a lot to deal with--new

senses, new feelings, etc not to mention his body feels pretty lousy. It

will be quite soon though that you should see this taper off as long as you

are 100%. keep going and begin to learn whether he has yeast issues a well

and what supps he needs. Highly recommend those I mentioned above. Hang in

there....you never know, after this diet is in full swing, your boy may have

a great school year after all.

Take care and hang in there,

Re: I REALLY NEED YOUR HELP NOW!!!!!

>

> >>>>>I CANT TAKE IT ANYMORE!!!!!! starts 2nd grade

> next week and he is worse now then he was a couple of

> weeks ago (before we started the GFCF diet). He is

> more aggressive, more angry, more hyper and just plain

> MORE!!!!! <<<<<<<

>

> >>>>>Please, I am truly at the end of my rope. I am

> sitting here before noon drinking a Mikes Hard

> Lemonade which is DEFINATELY not me. I need some help

> and advice soon. <<<<<

>

> Oh Phyllis, your message couldn't have posted at a more perfect time. I'm

equally at the end of my rope, and considering medicating my son. I wrote

about him a couple of days ago, because I believe he fits the Asperger's

label, rather than basic autism. His language was an issue, but he's always

had language, it just came in slowly. As he gets older, his behavior seems

to get worse. He doesn't hit, bite or kick, but he screams and defies

everyone and everything. I was literally in tears driving him home from his

first day in Kindergarten. I got there early to talk with the teacher, and

they weren't in the class. I decided to wander around and as I neared one

hallway, I heard him screaming. He was saying, " Let me go " , " I want to get

out of here " , " Don't touch me " , " Leave me alone " . I peered out a window

onto the playground and there he was being held by his teacher. The other

kids were playing, but she was holding his hand and making him stay in time

out, for misbehaving. It was awful, he just kept screaming and making a

huge spectacle of himself. When they came in the teacher told me he

wouldn't stay in his seat, wandered around the class, took things and

touched things he was told to not touch. He wouldn't make choices. He

wouldn't make decisions. The only thing he would do was scream and yell.

He didn't want to follow the routine at all. I know its new to him, and

we're living in a new city and a new home, but I don't know what to do. My

life is totally controlled by his behavior. I envy every child I see

displaying good behavior. Don't get me wrong, my son can have a very

loveable personality, but it's his way or the highway 85% of the time. His

other classmates were so well behaved, and here he was screaming and crying,

ranting and raving. I'm disgusted with him. The diet has helped a lot, but

not enough. I don't know if I should try supplements or finally cave in to

trying medication. I've always been against it, but if it would help, and I

knew for sure, I would have him pop a pill in a minute. All the OT in the

world hasn't help improve things. I've brushed him, swang him, tried

listening therapy, tried cranial sacral therapy, and nothing seems to work.

>

> By the way, I too considered a beer or glass of wine when I got home, but

I opted for a coke. I can't say there won't be one in my hand come 8:30

when the rugrats are fast asleep.

>

> I would be happy to share any recipe with you. I've got over 150 stored

in my computer, and many I use all the time. I've been fortunate that the

one thing that has gone right in my life is my cooking ability. I can't say

much for anything else......

>

> a - Single Peoria IL mom to Alec 7, 5.3 (ASD), and 3.6

> Get more from the Web. FREE MSN Explorer download :

http://explorer.msn.com

>

>

>

[Guest guest]

Dear a and Phyllis,

I wish we all lived near each other! I don't know anyone else

with kids who behave so badly and it would just be nice for a change

to feel like I have company in my struggle. This list is great but

sometimes you just need a real person who understands how hard this

is. Good Luck.

-- In GFCFKids@y..., " a Sessing " <pjandkids@m...> wrote:

>

> >>>>>I CANT TAKE IT ANYMORE!!!!!! starts 2nd grade

> next week and he is worse now then he was a couple of

> weeks ago (before we started the GFCF diet). He is

> more aggressive, more angry, more hyper and just plain

> MORE!!!!! <<<<<<<

>

> >>>>>Please, I am truly at the end of my rope. I am

> sitting here before noon drinking a Mikes Hard

> Lemonade which is DEFINATELY not me. I need some help

> and advice soon. <<<<<

>

> Oh Phyllis, your message couldn't have posted at a more perfect

time. I'm equally at the end of my rope, and considering medicating

my son. I wrote about him a couple of days ago, because I believe he

fits the Asperger's label, rather than basic autism. His language

was an issue, but he's always had language, it just came in slowly.

As he gets older, his behavior seems to get worse. He doesn't hit,

bite or kick, but he screams and defies everyone and everything. I

was literally in tears driving him home from his first day in

Kindergarten. I got there early to talk with the teacher, and they

weren't in the class. I decided to wander around and as I neared one

hallway, I heard him screaming. He was saying, " Let me go " , " I want

to get out of here " , " Don't touch me " , " Leave me alone " . I peered

out a window onto the playground and there he was being held by his

teacher. The other kids were playing, but she was holding his hand

and making him stay in time out, for misbehaving. It was awful, he

just kept screaming and making a huge spectacle of himself. When

they came in the teacher told me he wouldn't stay in his seat,

wandered around the class, took things and touched things he was told

to not touch. He wouldn't make choices. He wouldn't make

decisions. The only thing he would do was scream and yell. He

didn't want to follow the routine at all. I know its new to him, and

we're living in a new city and a new home, but I don't know what to

do. My life is totally controlled by his behavior. I envy every

child I see displaying good behavior. Don't get me wrong, my son can

have a very loveable personality, but it's his way or the highway 85%

of the time. His other classmates were so well behaved, and here he

was screaming and crying, ranting and raving. I'm disgusted with

him. The diet has helped a lot, but not enough. I don't know if I

should try supplements or finally cave in to trying medication. I've

always been against it, but if it would help, and I knew for sure, I

would have him pop a pill in a minute. All the OT in the world

hasn't help improve things. I've brushed him, swang him, tried

listening therapy, tried cranial sacral therapy, and nothing seems to

work.

>

> By the way, I too considered a beer or glass of wine when I got

home, but I opted for a coke. I can't say there won't be one in my

hand come 8:30 when the rugrats are fast asleep.

>

> I would be happy to share any recipe with you. I've got over 150

stored in my computer, and many I use all the time. I've been

fortunate that the one thing that has gone right in my life is my

cooking ability. I can't say much for anything else......

>

> a - Single Peoria IL mom to Alec 7, 5.3 (ASD), and

3.6

> Get more from the Web. FREE MSN Explorer download :

http://explorer.msn.com

>

>

>

[Guest guest]

a,

Well, I have to say, you have tried a lot more things

than I have tried. He goes for OT once a week at a

private clinic and he has OT at school twice a week

but I have been unable to get anything started at

home, which is where I think most of the problem comes

from. With 2 kids with sensory issues and Aspergers,

plus trying to get a handle on this diet, and trying

to figure out how to get my house clean so that their

allergies wont be so bad, I am so overwhelmed I dont

even know where to start with a home sensory diet.

Everytime I ask the OTs they just hand me a huge list

of sensory activities and say just do some of these.

Well I need a schedule. I am a list person and I need

to have a schedule in front of me and then I can

follow it. Thats why I am thinking that if I can come

up with maybe a 2 or 3 week menu (of normal foods, not

tofu burgers - sorry my kids hate tofu, or asparagus,

etc.) including boxed lunches and snacks, then I will

be able to do this. Anyone got anything out there

like this? Recipes included? Thats why I think I am

feeling so overwhelmed, because I feel so out of

control and unorganized. This is just too new to me.

I look at that huge food list on GFCFdiet and I go

into panic mode. Just give me a menu and recipes and

I will be fine.

By the way, I took the kids to the lab for the RAST

test. Yes, by myself, and yes, both at the same time.

Crazy you say? I thought so too, but kept

begging me all morning to go and get it over with

(probably had something to do with me telling him that

if he was good, we would go to the toystore after for

a toy) and guess what. They were both wonderful.

Nothing like at the allergist office. I opted for a

private lab instead of the hospital, because I knew

that the waiting room was pretty sealed off from the

rest of the building (except the blood draw room) and

so I could let the kids run around and not worry about

them getting into too much trouble. Guess what, they

didnt even run around. I brought GFCF fruit snacks

with me ( a real treat that they havent had in months)

and didnt even yell and scream. He got alittle

scared at the needle and kept asking when they were

gonna be done, but he didnt even cry (which I told him

he could do if he wanted to). Tyler was really upset,

but mostly because of the band on his arm and the fact

that they were holding his arm then the needle.

Needles have never bothered him (hypo sensitive

issue?) and he cries more from the bandaids then

anything else. All in all it was a dream visit and it

is all over with. Hopefully now in a couple of weeks

I will hear some news.

Any quick recipes you have would be really

appreciated. I have a birthday party coming up next

month and I need a quick meal idea that we can bring

to a science center. I mostly need lunch and

breakfast ideas, with an occasional entree - I think I

got most of those taken care of ( although a menu

would be great if anyone has one.)

Thanks again for all your help everyone.

=====

Phyllis Parmelee

Visit my website:

THE 100 ACRE WOOD CHILD CARE - My Brand New Website

Like my website? Want to know how you can get one, too? If you are interested

in having me build one for you, send me an email.

__________________________________________________

[Guest guest]

>>>>>>Anyone got anything out there

like this? Recipes included? Thats why I think I am

feeling so overwhelmed, because I feel so out of

control and unorganized. This is just too new to me.

I look at that huge food list on GFCFdiet and I go

into panic mode. Just give me a menu and recipes and

I will be fine.<<<<<<,

Well, I don't have any golden ideas on this one, but I can tell you how I do

things. When I do bake, I do it in huge batches, so I can freeze and reheat

things. I do this with taco meat, chicken nuggets, breaded pork tenderloin,

pizza, muffins, cookies, waffles, pancakes, donut holes, english muffin pizzas,

bread, bagels, cupcakes (no frosting), salisbury steak, beef stroganoff, chili,

etc.. I'm sure I've forgotten many. I also make at least 2-3 meals per week

that are " quick " like; hotdogs, brats, spaghetti and pizza made from frozen

crusts. My autistic son is not picky, so for school lunches I send; nuggets,

pizza, many variety of sandwiches, chili, spaghetti, hot dogs and tacos.

However, I've been lucky that the aide will go and warm his foods for him. He

would still eat them cold, but she warms them anyway. It's time consuming to

provide lunches like this, but I prepare them the night before. As far as

breakfast goes, my son eats dry cereals, gfcf bread with cinnamon sugar on top,

donut holes, waffles and pancakes. For side dishes I use; spanish rice, frozen

tater tots, french fries, boxed mashed potatoes, boxed scalloped potatoes (yes

gfcf), baked potatoes, fruits, breads, muffins, corn on the cob, and carrots.

None of my kids are big on veggies. However, is easily talked into eating

just about anything. All I have to say is, " no icecream unless you finish

everything on your plate " . He does, everytime. The diet is probably easier for

me because, number one - it's not new to us, and number two - my son no longer

requires the intense therapy he once did.

Anytime you want to bug me for recipes, feel free to do so. If you have one you

want me to help you convert, feel free to send it. I rarely have disasters

anymore. I couldn't say that two years ago!!!

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