Wasn't sarcoidosis but cancer-related

[Guest guest]

Hi everyone, I've only submitted one message before, but have read lots of yours

and am inspired by your strength. Feel I need to tell you that my neurologists

thought that I had neurosarcoidosis before, situated in my pituitary, and

treated me for it with prednisone (HORRIBLE side-effects for me) but then

changed their minds after finding I have breast cancer. Now they believe what I

had was limpic encephalitis--swelling in the brain caused as a very rare

response of the auto-immune system as a response to cancer elsewhere.

Wanted to tell you, so that you consider this possibility, especially if your

neurologists are acting uncertain of your condition--mine were hesitant about my

having neurosarcoidosis because several tests and symptoms didn't check out--or

even if they aren't. Have yourself screened for cancer. They discovered it in

me by doing cat-scans, but while looking for something else.

I'm stopping my subscription here so that I can give my attention now to cancer

support groups and to the chemotherapy I am now going through, so sorry, won't

be able to read any replies. Good luck and much love to you all.

[Guest guest]

,If I can be of any help, please let me know. I am a 6 1/2 year breast cancer survivor and also have sarcoidosis.... diagnosed after the cancer. (thought it was the cancer again.)Carol J.To: Neurosarcoidosis Sent: Wednesday, May 13, 2009 12:21:31 PMSubject: Re: Wasn't sarcoidosis but cancer-related , I'm sorry to hear of your cancer, I guess the good news would be there are more treatments out there for Breast Cancer, but that of course does not make it any easier. We wish you the best, and pray your cancer will quickly go into remission. God Bless, Marla On Wed, May 13, 2009 at 4:25 AM, <d_quintana@sbcgloba l.net> wrote: Hi everyone, I've only submitted one message before, but have read lots of yours and am inspired by your strength. Feel I need to tell you that my neurologists thought that I had neurosarcoidosis before, situated in my pituitary, and treated me for it with prednisone (HORRIBLE side-effects for me) but then changed their minds after finding I have breast cancer. Now they believe what I had was limpic encephalitis- -swelling in the brain caused as a very rare response of the auto-immune system as a response to cancer elsewhere. Wanted to tell you, so that you consider this possibility, especially if your neurologists are

acting uncertain of your condition--mine were hesitant about my having neurosarcoidosis because several tests and symptoms didn't check out--or even if they aren't. Have yourself screened for cancer. They discovered it in me by doing cat-scans, but while looking for something else. I'm stopping my subscription here so that I can give my attention now to cancer support groups and to the chemotherapy I am now going through, so sorry, won't be able to read any replies. Good luck and much love to you all.