Re: chances of a second child with CF

[Guest guest]

Very beautifully stated ee! You left me with tears in my

eyes ... You're the best mama!

Angel

>

> Oh Goodie is this where I jump out of my seat with my hand in the

air yelling ME ME ME ME ME ME ME!!!!!!!!

>

> Oh dear Lost737370 whomever you are, my heart goes out to you and

there is a million things I want to say but alas where would I

begin?

>

> Let me begin with Everett Mark, my resident little 2 year old elf

with yellow hair and a big round pot belly who does clown tricks and

sings goofy little Bop-Bop songs and tries to ride his car naked like

a skate board and squints up his little eyes with is toy gun yelling

Pow Pow and falling over when we shoot back with our fingers and he

slithers on his belly saying Snake Snake Snake attacking our feet and

gargles his milk and eats hot sauce with his corn chips and calls

everything sweet " Cake " ........the little man who keeps us rolling

with laughter in such ways as we never imagined and fills a void in

our hearts that we didn't now existed until he arrived !!!!

>

> Everett is my 2nd son to be born with Club Foot and I cannot

imagine life with out him, club footed and all.

>

> is my oldest. He is 7 year old. He was born with club foot,

also, and at the time it did seem like the end of the world, but it

wasn't. Today is my Brainiac child, as serious in nature as

Everett is clown-ish.

>

> And in March, some where around March 1st, I am expecting my 3rd

son....and he will be born with his brother's kiss of two crooked

feet. And already I know this child who hicups and rolls about

inside of me and who gets excited when I eat and likes me to play Big

Band music through the little head-set I wear around my every growing

belly for him to listen to. Already I cannot imagine life with out

him, either - nor life with out his two clubbed feet.

>

> Now this all sounds wonderfully sugar coated, so let me add my

little disclaimer to all this: When was born, I was very

upset and hurt and confused but eventually you learn the child is not

a Case Of Club Foot. He is your child, your flesh and blood, a

living breathing soul and what the hell is a couple crooked feet in

the scheme of things?

>

> And with Everett - crap I said, another set of club feet but OH

well....we got it taken care of.

>

> And then recently as a few days ago I learned #3 here also has club

foot and I bawled my eyes out mad at the world for about a day and

then it was, " OH WELL " again because these are my children and I love

them because after all, What's not to love? Would I turn ANY of them

away? Oh God no.

>

> Club foot isn't the end of the world, it's not a shame, it's not a

crime, it's not a death sentense nor even life in prison because

there is a wonderful old man named Dr. Ponseti who figured out it

didn't have to be a life-sentence and through his work, our children

quickly recover and that's just all there is to it. It's one or

both feet that grew a little funky in the womb then you go get them

fixed and before they start Kindergarten the whole thing is ancient

history that you seldome think about anymore.

>

> So what if you have another? Chances are greater that you won't.

Having more than one is sort of a freak accident, but ask yourself

truely, so what if you do have another one? Would you trade in your

first child knowing it had club foot? Hardly. So why trade in his

sibling? What is it exactly you're really afraid of? And do you

not trust the Good Lord to bless your family through the experience

of it ? Honey, God doesn't make junk. Your child is perfect, as

will be any other children you might concieve.

>

> s.

> chances of a second child with CF

>

>

> Does anyone know what the chances of having a second child with

> Clubfoot?

> I'm really not taking it very well and I'm scared if my husband and

I

> have another child it will have the same problem.I've already told

him

> I dont want any more children because of this reason

>

>

>

>

>

>

[Guest guest]

I was just told by by Marcus's Dr that the chances of having another

child with CF (if there is no family history) is about 1 in 50.

>

> I think I read somewhere about 5% if neither you nor your husband

had it as a child and maybe 13% if both you had it? Someone will

probably post the correct info

> Marcia

> who has 3 kids and only one with clubfoot.

> chances of a second child with CF

>

>

> Does anyone know what the chances of having a second child with

> Clubfoot?

> I'm really not taking it very well and I'm scared if my husband

and I

> have another child it will have the same problem.I've already

told him

> I dont want any more children because of this reason

>

>

>

>

>

>

[Guest guest]

ee,

Well put as usual!

>

> Oh Goodie is this where I jump out of my seat with my hand in the

air yelling ME ME ME ME ME ME ME!!!!!!!!

>

> Oh dear Lost737370 whomever you are, my heart goes out to you and

there is a million things I want to say but alas where would I begin?

>

> Let me begin with Everett Mark, my resident little 2 year old elf

with yellow hair and a big round pot belly who does clown tricks and

sings goofy little Bop-Bop songs and tries to ride his car naked like

a skate board and squints up his little eyes with is toy gun yelling

Pow Pow and falling over when we shoot back with our fingers and he

slithers on his belly saying Snake Snake Snake attacking our feet and

gargles his milk and eats hot sauce with his corn chips and calls

everything sweet " Cake " ........the little man who keeps us rolling

with laughter in such ways as we never imagined and fills a void in

our hearts that we didn't now existed until he arrived !!!!

>

> Everett is my 2nd son to be born with Club Foot and I cannot imagine

life with out him, club footed and all.

>

> is my oldest. He is 7 year old. He was born with club foot,

also, and at the time it did seem like the end of the world, but it

wasn't. Today is my Brainiac child, as serious in nature as

Everett is clown-ish.

>

> And in March, some where around March 1st, I am expecting my 3rd

son....and he will be born with his brother's kiss of two crooked

feet. And already I know this child who hicups and rolls about inside

of me and who gets excited when I eat and likes me to play Big Band

music through the little head-set I wear around my every growing belly

for him to listen to. Already I cannot imagine life with out him,

either - nor life with out his two clubbed feet.

>

> Now this all sounds wonderfully sugar coated, so let me add my

little disclaimer to all this: When was born, I was very upset

and hurt and confused but eventually you learn the child is not a Case

Of Club Foot. He is your child, your flesh and blood, a living

breathing soul and what the hell is a couple crooked feet in the

scheme of things?

>

> And with Everett - crap I said, another set of club feet but OH

well....we got it taken care of.

>

> And then recently as a few days ago I learned #3 here also has club

foot and I bawled my eyes out mad at the world for about a day and

then it was, " OH WELL " again because these are my children and I love

them because after all, What's not to love? Would I turn ANY of them

away? Oh God no.

>

> Club foot isn't the end of the world, it's not a shame, it's not a

crime, it's not a death sentense nor even life in prison because there

is a wonderful old man named Dr. Ponseti who figured out it didn't

have to be a life-sentence and through his work, our children quickly

recover and that's just all there is to it. It's one or both feet

that grew a little funky in the womb then you go get them fixed and

before they start Kindergarten the whole thing is ancient history that

you seldome think about anymore.

>

> So what if you have another? Chances are greater that you won't.

Having more than one is sort of a freak accident, but ask yourself

truely, so what if you do have another one? Would you trade in your

first child knowing it had club foot? Hardly. So why trade in his

sibling? What is it exactly you're really afraid of? And do you

not trust the Good Lord to bless your family through the experience of

it ? Honey, God doesn't make junk. Your child is perfect, as will be

any other children you might concieve.

>

> s.

> chances of a second child with CF

>

>

> Does anyone know what the chances of having a second child with

> Clubfoot?

> I'm really not taking it very well and I'm scared if my husband and I

> have another child it will have the same problem.I've already told him

> I dont want any more children because of this reason

>

>

>

>

>

>

[Guest guest]

Wow. Thank you, ee, from all of us pondering another child!

Your insight and heartfelt words are priceless. Now if I can get

myself to stop crying!

, Judith (3) & (6 mos, fab 12 hours)

> > >

> > > Oh Goodie is this where I jump out of my seat with my hand in

the

> > air yelling ME ME ME ME ME ME ME!!!!!!!!

> > >

> > > Oh dear Lost737370 whomever you are, my heart goes out to you

and

> > there is a million things I want to say but alas where would I

> > begin?

> > >

> > > Let me begin with Everett Mark, my resident little 2 year old

elf

> > with yellow hair and a big round pot belly who does clown tricks

and

> > sings goofy little Bop-Bop songs and tries to ride his car naked

like

> > a skate board and squints up his little eyes with is toy gun

yelling

> > Pow Pow and falling over when we shoot back with our fingers and

he

> > slithers on his belly saying Snake Snake Snake attacking our feet

and

> > gargles his milk and eats hot sauce with his corn chips and

calls

> > everything sweet " Cake " ........the little man who keeps us

rolling

> > with laughter in such ways as we never imagined and fills a void

in

> > our hearts that we didn't now existed until he arrived !!!!

> > >

> > > Everett is my 2nd son to be born with Club Foot and I cannot

> > imagine life with out him, club footed and all.

> > >

> > > is my oldest. He is 7 year old. He was born with club

foot,

> > also, and at the time it did seem like the end of the world, but

it

> > wasn't. Today is my Brainiac child, as serious in nature

as

> > Everett is clown-ish.

> > >

> > > And in March, some where around March 1st, I am expecting my

3rd

> > son....and he will be born with his brother's kiss of two crooked

> > feet. And already I know this child who hicups and rolls about

> > inside of me and who gets excited when I eat and likes me to play

Big

> > Band music through the little head-set I wear around my every

growing

> > belly for him to listen to. Already I cannot imagine life with

out

> > him, either - nor life with out his two clubbed feet.

> > >

> > > Now this all sounds wonderfully sugar coated, so let me add my

> > little disclaimer to all this: When was born, I was very

> > upset and hurt and confused but eventually you learn the child is

not

> > a Case Of Club Foot. He is your child, your flesh and blood, a

> > living breathing soul and what the hell is a couple crooked feet

in

> > the scheme of things?

> > >

> > > And with Everett - crap I said, another set of club feet but OH

> > well....we got it taken care of.

> > >

> > > And then recently as a few days ago I learned #3 here also has

club

> > foot and I bawled my eyes out mad at the world for about a day

and

> > then it was, " OH WELL " again because these are my children and I

love

> > them because after all, What's not to love? Would I turn ANY of

them

> > away? Oh God no.

> > >

> > > Club foot isn't the end of the world, it's not a shame, it's

not a

> > crime, it's not a death sentense nor even life in prison because

> > there is a wonderful old man named Dr. Ponseti who figured out it

> > didn't have to be a life-sentence and through his work, our

children

> > quickly recover and that's just all there is to it. It's one

or

> > both feet that grew a little funky in the womb then you go get

them

> > fixed and before they start Kindergarten the whole thing is

ancient

> > history that you seldome think about anymore.

> > >

> > > So what if you have another? Chances are greater that you

won't.

> > Having more than one is sort of a freak accident, but ask

yourself

> > truely, so what if you do have another one? Would you trade in

your

> > first child knowing it had club foot? Hardly. So why trade in

his

> > sibling? What is it exactly you're really afraid of? And do

you

> > not trust the Good Lord to bless your family through the

experience

> > of it ? Honey, God doesn't make junk. Your child is perfect, as

> > will be any other children you might concieve.

> > >

> > > s.

> > > chances of a second child with CF

> > >

> > >

> > > Does anyone know what the chances of having a second child with

> > > Clubfoot?

> > > I'm really not taking it very well and I'm scared if my husband

and

> > I

> > > have another child it will have the same problem.I've already

told

> > him

> > > I dont want any more children because of this reason

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

I know I already responded to say how great this post was ee, but

I just wanted to say it again and tell ALL of you how awesome you are.

I just love this group! I also took the liberty of posting the link

to ee's message in the groups links section. If you don't want

it there ee I'll take it out, but I think it makes a beautiful

statement and a keeper for all new parents to read.

Thanks,

>

> Oh Goodie is this where I jump out of my seat with my hand in the

air yelling ME ME ME ME ME ME ME!!!!!!!!

>

> Oh dear Lost737370 whomever you are, my heart goes out to you and

there is a million things I want to say but alas where would I begin?

>

> Let me begin with Everett Mark, my resident little 2 year old elf

with yellow hair and a big round pot belly who does clown tricks and

sings goofy little Bop-Bop songs and tries to ride his car naked like

a skate board and squints up his little eyes with is toy gun yelling

Pow Pow and falling over when we shoot back with our fingers and he

slithers on his belly saying Snake Snake Snake attacking our feet and

gargles his milk and eats hot sauce with his corn chips and calls

everything sweet " Cake " ........the little man who keeps us rolling

with laughter in such ways as we never imagined and fills a void in

our hearts that we didn't now existed until he arrived !!!!

>

> Everett is my 2nd son to be born with Club Foot and I cannot imagine

life with out him, club footed and all.

>

> is my oldest. He is 7 year old. He was born with club foot,

also, and at the time it did seem like the end of the world, but it

wasn't. Today is my Brainiac child, as serious in nature as

Everett is clown-ish.

>

> And in March, some where around March 1st, I am expecting my 3rd

son....and he will be born with his brother's kiss of two crooked

feet. And already I know this child who hicups and rolls about inside

of me and who gets excited when I eat and likes me to play Big Band

music through the little head-set I wear around my every growing belly

for him to listen to. Already I cannot imagine life with out him,

either - nor life with out his two clubbed feet.

>

> Now this all sounds wonderfully sugar coated, so let me add my

little disclaimer to all this: When was born, I was very upset

and hurt and confused but eventually you learn the child is not a Case

Of Club Foot. He is your child, your flesh and blood, a living

breathing soul and what the hell is a couple crooked feet in the

scheme of things?

>

> And with Everett - crap I said, another set of club feet but OH

well....we got it taken care of.

>

> And then recently as a few days ago I learned #3 here also has club

foot and I bawled my eyes out mad at the world for about a day and

then it was, " OH WELL " again because these are my children and I love

them because after all, What's not to love? Would I turn ANY of them

away? Oh God no.

>

> Club foot isn't the end of the world, it's not a shame, it's not a

crime, it's not a death sentense nor even life in prison because there

is a wonderful old man named Dr. Ponseti who figured out it didn't

have to be a life-sentence and through his work, our children quickly

recover and that's just all there is to it. It's one or both feet

that grew a little funky in the womb then you go get them fixed and

before they start Kindergarten the whole thing is ancient history that

you seldome think about anymore.

>

> So what if you have another? Chances are greater that you won't.

Having more than one is sort of a freak accident, but ask yourself

truely, so what if you do have another one? Would you trade in your

first child knowing it had club foot? Hardly. So why trade in his

sibling? What is it exactly you're really afraid of? And do you

not trust the Good Lord to bless your family through the experience of

it ? Honey, God doesn't make junk. Your child is perfect, as will be

any other children you might concieve.

>

> s.

> chances of a second child with CF

>

>

> Does anyone know what the chances of having a second child with

> Clubfoot?

> I'm really not taking it very well and I'm scared if my husband and I

> have another child it will have the same problem.I've already told him

> I dont want any more children because of this reason

>

>

>

>

>

>

[Guest guest]

Thanks Krishna and ,

It's good to look back sometimes and remember the early days. I'd forgotten

some of those feelings!

Moss

Steps Charity

www.steps.org.za

Cell:

RE: Re: chances of a second child with CF

karen-

Beautifully written!

Moss wrote:

Dear Lost,

When was a newborn nearly 3 years ago, I used to take him for his

weekly checkups at the same clinic where I'd done my pre-natal classes.

There were all the same moms I knew from the classes, but I was the only one

with a baby in plaster casts - these were the short casts, pre-Ponseti

treatment. It was peak summer so I'd take there in just a vest and

nappy otherwise he'd get too hot. Of course his casts were very visible and

at first I felt embarrassed and guilty that there was something 'wrong' with

my baby. I was pretty much an over-achiever and perfectionist with most of

my life and it was difficult for me to deal with.

It was horrible the first time going in with my not 'perfect' baby that I

had dreamed of having. I felt so bad that he wasn't the same as all the

others. I also felt very protective over him and wanted everyone to see my

beautiful child the way I did and not just his feet, but of course everyone

was interested in the plaster casts and I had to answer all the questions.

That day the nursing sister took me one side and talked softly so that

nobody else could hear. She said that my baby had something visible that

everyone could see, but that didn't mean that all the others were perfect,

she pointed them out. One had an undescended testicle, another had asthma,

another had milk allergies, another had colic, another had bad eczema.

I realised then that it wasn't just us - every single baby in the room had

an 'imperfection' - but they were all perfect in their own way, just like

. It made me feel so much better to think about it that way.

If I am lucky to fall pregnant again (it took a few years the first time),

I'd pray for a healthy baby, but not worry too much about another clubfoot

baby, because after you get over the initial shock and feelings associated

with having a child with clubfoot, you realise it is a relatively simple

thing to fix - with the right doctor.

I went through the mourning for that perfect child that I didn't have, but

then it became a positive experience.

's clubfeet have changed my life on many levels. They have made me more

understanding of birth defects...after meeting Dr Ponseti I have helped many

other people through the information on my website...the new charity I have

started in South Africa will bring help to even more people...and best of

all, every day brings me joy and pride when I see how well he is doing.

Your feelings are natural, I went through them too. I hope this helps and

that you find peace of mind soon and wish you and your family well.

and

Born 24 Jan 2003, bilateral clubfoot, treated by Dr Ponseti in April 2003

Moss

Steps Charity

www.steps.org.za

Cell:

>

> Does anyone know what the chances of having a second child with

> Clubfoot?

> I'm really not taking it very well and I'm scared if my husband and

I

> have another child it will have the same problem.I've already told

him

> I dont want any more children because of this reason

>