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This may not solve the problem but when we switched from milk to soy milk in

the begining we cut his Milk with soy milk over the course of a few days

untill it was all milk sub and he never complained. Try using a very white

milk sub like dari free or almond milk-it looks very close. And If all else

fails add a bit a sweetner to the milk subs-usually a kid will drink

anything sweet enough. Of course if you are fighting yeast to this wont

work.f

(unknown)

> hi guys,

> my son has been gluten free for 3weeks now,and we are

> about to start the casein free the problem is he wont

> drink any thing other than milk not even fruit juice

> or water im worried sick about him dehyidrating have

> any of you had this problem? ive tried the soya milks

> but again he refuses it,will he drink if he gets

> thirsty enough?

> help!!!

> (paranoid mum nicky)

>

> __________________________________________________

>

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nicky,

this is what worked for us. add just a little bit of milk substitute to his

reg. milk. very gradually add a little more sub. and a little less milk each

few days so he doesnt notice the change in taste. eventually he will be

drinking more non-dairy sub and less milk. eventually just give him all sub.

good luck

karen

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Shelly,]

You are pretty much right in what you said.....your experience mirrors mine

too except at 10 days out I had half a Mcs cheeseburger and was

content for several hours afterwards and with no fries and no sodas. I

prefer water even to this day......and Im 11 months out now!

Yes, by the time you are 6 months out you are eating almost double what you

did in the beginning. I had a 5 ounce stomach after surgery and now Im

holding around 10 oz per meal. I did notice that my hunger increased around

6 months. Scared me a bit then but Dr Welker assured me it was normal and

by 6 months you should have developed some good eating habits so that when

you increase your nourishment you would be making good choices. My body

does tell me to eat proteins. Its a weird feeling....something we never

felt pre opt but seems to be our constant companion now. I no longer crave

candy.....I prefer grapes or other fruits to sugary stuff now. and I love

it!

One thing I noticed in the beginning was we would order things as if we

didnt have the surgery. You know.....the whopper with cheese, fries and

milkshake......and maybe some cookies too! We got over that quickly when we

saw how much food was being wasted since we couldnt eat it all LOL Now Mike

and I order a whopper with cheese and split it and share a drink if we are

going to have that and no fries. Its quite liberating, isnt it?

I think you described us well......

Hugs, Judie

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  • 2 weeks later...

Welcome to the gang, Sharon.

At 6:13 AM +0000 10/25/01, slaj@... wrote:

>... I am having

>my surgery 30Oct

??? Oh... October 30! When I first read it, I thought it said " 300-count. "

>at Siani Hospital in Baltimore with Dr Schwiezter.

Do keep us informed, please, about your experiences with Dr.

Schweitzer (sp?). We haven't heard much about him at all.

--Steve

--

Steve Goldstein, age 61

Lap BPD/DS on May 2, 2001

Dr. Elariny, INOVA Fairfax Hospital, Virginia

Starting (05/02/01) BMI = 51

BMI on 10/25 = 39 (-75 lb.) -- No longer M.O.

Losing more slowly than most, but enjoying renewed health and life in general.

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  • 2 weeks later...
  • 2 years later...
Guest guest

Hi and congratulations on your big step. I'm an RN, an a wls in

waiting. I wanted to tell you that you need to complain to the hospital. Most

have patient advocates to talk to. The issue of bedding on the floor is awful,

and definitely should be brought to the attention of infection control. The

rudeness is inexcusable. I know that there is a nursing shortage, but the

accreditation reviews happen just the same, and it these things were noted by a

Federal survey, the hospital would be in big trouble. At the very least, find

out the name of the CEO, and send a letter of protest.

(unknown)

Hi everyone! I made it!!!!! went in friday we showed up an hour

early as there was no traffic and a good thing as they ended up

wanting to take me in early I was in the OR bfore 11:15 an hour

early. Surgery had no complications and then by 5 I was in my own

room, Unfortunately that is when my horror story begins!!!! I had

teh WORST care ever at Portland Adventist! The nurses were rude

wouldn't get me any water, yelled at me and said I was moving too

slowly ( Oh sorry I have a catheder hanging out of me, I am doped on

morphine and I just had my guts rearranged )They would put my " clean

beedding and my robe on the floor walk over them then put them on

me! Left me alone for LOOOOONG periods of time 4-6 hours where no

one would check in on me. Unfortunatly my family were mostly up in

washington with my mom who also just had a different surgery so I

really didn't have anyone there to stick up for me. I came home

early so I could get out of there!

I am feeling much better today after finally getting some sleep last

night,

I DO WANT TO THANK SANDRA Turchan ANd LINDA for coming in saturday

and seeing me that was very speicial and ment ALOT TO ME!!!!!!!

So far no problems am eating between 1 - 1.5 oz a meal, carnation

instant breakfast, cottage cheese, refried beans mixed in tonight

(hopfully that will settle!)

Good luck to everyone still waiting for this wonderful tool, I still

have no regrets- the rewards are soooo much bigger than these little

problems right now. Keep in touch

Michele GOodman Dayton OR

Dr Eubanks lap RNY 3/26/04

410/??

------------------------------------------------------------------------------

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  • 2 months later...
Guest guest

Sherri.....that's wonderful.......CONGRATS

i hope i do as well after my surgery. keep up the good work.

gale in maryland

open rny july 19, 2004

-- (unknown)

OK all...the total so far is 164 lbs!!!!! I am about 30-35 lbs from

goal!!!!!! I will be 9 months post-op on June 17th.......keeping my fingers

crossed!!!!!!! Hope all is well with everyone? sherri

Stay strong and healthy

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  • 2 weeks later...
  • 7 months later...

,

Where are you located? Those costs sound closer to mine... I assumed in

NY it would be higher priced (like everything else here) but it sounds

like it's a lot more in other parts of the country...

I also had my surgery on 1/24 and looked worse than I thought I would.

I have no kids but have not seen anyone but my boyfriend all week.

Monday I have to go back to work and although I have so much bruising

and am still swollen, I don't care... Im sick of doing nothing and

anyone who has a problem with my chubby yellow and green face is going

to have to deal with it on their own!

Good luck with the healing process!

T.

>

> ---

> Hi,

>

> I had to pay out of pocket for my procedure- lefort I, cause my bite

> was too good (not in reality) and my insurance wouldn't cover it.

>

> I paid around $2500 for the hospital stay, and my surgoen charged me

> $4000, which I am making payments on.

>

> It probably varies a little depending on where you go to get it done.

>

> christina :-)

>

>

> In orthognathicsurgerysupport , " granitecitybabe "

> <granitecitybabe@y...> wrote:

> >

> > my insurance wont pay for my surgery.  does n e 1 know how much it

> > will cost me on my own?  i have to have my top jaw done?

>

>

>

>

>

>

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  • 1 year later...
Guest guest

Oh Martha, you two look so happy! I admit, I did

find myself wondering if Tim was COMPLETELY

traditional in his kilt attire, including, er,

underneath! Ooops, that was naughty, but I'm sure not a surprise!

So the wedding was at your house? Did Yogi get to

carry the rings? Where did you go on your honeymoon?

I am SO happy for the two of you!

E

At 12:59 07/28/2006, M. Silverspring wrote:

>Hi everyone,

>In answer to popular demand, I have posted some

>pictures from our wedding. Since I need to put

>them in a place where everyone can go, I've

>posted them in a folder/album on the Kaiser Support list:

>

>http://health.groups.yahoo.com/group/gastric-bypass-support-kaiser-patients/

>

>In the pink menu on the left, click Photos, and

>then go to the second page & open the album

>titled " Martha & Tim's Wedding Pics " .

Eleanor Oster

eleanor@... (personal address)

www.smallboxes.com/gastricbypass.htm

San , CA

Open RNY (100 cm bypassed) 07/15/2003

P. Fisher, M.D., Kaiser Richmond (CA)

~5'9 " tall

05/09/2003 319 Orientation

07/15/2003 ~290 Surgery

Current 157±2 Goal until plastics?

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  • 2 years later...

Tracie, These are some of the best ones I've read! lolMarla

TELL ME THIS WON'T HAPPEN TO US !!!! LOST IN THE DARNDEST PLACES: An elderly Floridian called 911 on her

cell phone to report that her car has been broken into. She is hysterical as she explains her situation to the dispatcher: " They've stolen the stereo, the steering wheel, the brake pedal and even the accelerator! " she cried.

The dispatcher said, " Stay calm. An officer is on the way. " A few minutes later, the officer radios in. " Disregard. " He says. " She got in the back-seat by mista ke. " ______________________________________________________________________[

LITTLE LADY:A little old lady was running up and down the halls in a nursing home. As she walked, she would flip up the hem of her nightgown and say " Supersex. " She walked up to an elderly man in a wheelchair. Flipping

her gown at him, she said, " Supersex. " He sat silently for a moment or two and finally answered, " I'll take the

soup. " _______________________________________________________OLD FRIENDS:Now this one is just too Precious...LOL!Two elderly ladies had been friends for many decades. Over the years, they had shared all kinds of activities and adventures. Lately, their

activities had been limited to meeting a few times a week to play cards. One day, they were playing cards when one looked at the other and said, " Now don't get mad at me .. I know we've been friends for a

long time, but I just can't think of your name! I've thought and thought, but I can't remember it. Please tell me what your name is. " Her friend glare d at her. For at least three minutes she just stared

and glared at her. Finally she said, " How soon do you need to know? " _______________________________________________________________________SENIOR DRIVINGAs a senior citizen was driving

down the freeway, his car phone rang. Answering, he heard his wife's voice urgently warning him, " Herman, I just heard on the news that there's a car going the wrong way on Interstate 77. Please be careful! "

" Heck, " said Herman, " It's not just one car. It's hundreds of them! " _______________________________________________________________________DRIVINGTwo elderly women were out driving in a large car - both could barely

see over the dashboard. As they were cruising along, they came to an intersection. The stoplight was red, but they just went on through. The woman in the passenger seat thought to herself " I must be losing it. I

could have sworn we just went through a red light. " After a few more minutes, they came to another intersection and the light was red again. Again, they went right through. The woman in the passenger seat was

almost sure that the light had been red but was really concerned that she was losing it. She was getting nervous. At the next intersection, sure enough, the light was red and they went on through. So, she turned

to the other woman and said, " Mildred, did you know that we just ran through three red lights in a row? You could have killed us both! " Mildred turned to her and said, " Oh, crap, am I driving? "

-- Marla BramerIndependent Beauty Consultant Kay mbramer@...www.marykay.com/mbramer

May the Lord bless you and keep you,May the Lord make his face to shine uponYou,And be gracious to you;May the Lord lift up his favor upon you and give you his peace.(Numbers 6:24-26)

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  • 8 months later...

Bruce thanks, I'm on 2 or 3 liters when at rest, and 4 when I walk....I also have a damaged leg due to a broken neck this takes a lot of the expenditure

<FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT>

To: Breathe-Support Sent: Monday, September 21, 2009 2:55:24 PMSubject: (unknown)

Unless you're already up to very high levels of oxygen, your doctor'sadvise sounds insane. Get a new doctor at an ILD center, such as one ofthe IPF Centers of Excellence. You should probably be doing the oppositeand attending pulmonary rehab.. But this is not a lie there and wait todie disease until its much worse that I imagine yours is. Again, notknowing your levels of oxygen hard to say. But the face you want to bedoing things and feel capable tells me you probably can and should.>> I'm new to this, little scared. My pulmonologist said my IPF wasgetting worse, I'm already on oxygen 24/7. He told me not exert myselfand just watch TV. This really pissed me off.>

I'm not the type of person to just lye there and wait to die.> I'm thinking of getting a second opinion and a NEW Dr.> Any suggestions? ? JOHN>

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  • 2 weeks later...

hi Bettye

welcome

sorry you need us

but glad you found us

you will get lots of prednisone responses

some people hate it

i am thankful for it

i have been on various levels of prednisone since my diagnosis in 2006

started out on 10mg, went down to 7.5 mgs -- stayed there until spring 2008, when there was a flare up and went up to 40 mgs -- then down and up and down again -- right now i am on 9 mgs

my disease is responsive to prednisone and cellcept

yes there are side effects, but they are not as bad for me as the symptoms of the disease

maintaining oxygen levels is the most important

get an oximeter -- the thing you put on your finger to measure your oxygen level or SAT -- saturation -- it also measures your heart beat

the oximeter will help you determine when you need oxygen

at rest, our SAT's tend to be in the high 90' and we can sit without o2

as soon as we move, the SAT's drop and we need o2

some doctors prescribe it for exertion and sleep

some people need it 24/7

everyone is different and it depends on the progression of the disease

being physically fit is wonderful, many doctors prescribe pulmonary rehab

go to a hospital that has a department specializing in interstitial lung diseases

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: (unknown)To: Breathe-Support Date: Sunday, October 4, 2009, 9:01 PM

I am repeating my question to the group because I am not sure that the first one was sent properly.

Has anyone had satisfactory results from prednisone? I am newly diagnosed with IPF probably caused by medication (Nitrofurontoin) . I have 20-30% lung involvement and am not on oxygen yet. I am very physically fit.

Your reply will be greatly appreciated. \

BSK

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Gita,

Please discuss the echo results further with your doctor if at all possible. I am not at all comfortable offering any type of interpretation as there are just too many variables.

About the leg cramps....if you are on lasix you should most likely be on a pottasium supplement and should definitely have your pottasium level checked. When I was on lasix my pottasium became depleted after several months on the lasix even though I was on a supplement. My doctor checked my pottasium level every 2 weeks the entire time I was on lasix.

I sure hope you feel better soon!!!

Hugs,

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Wed, October 7, 2009 3:40:37 AMSubject: (unknown)

Hi friends,

I recently got some cardiac tests done and would like to share the reports with all of you.

LIPID PROFILE

1.S.Cholestrol 282mg/dl (normal range is120-240)

2.HDL Cholestrol 50mg/dl (normal>60 for females )

3.LDL Cholestrol 194.2mg/dl (normal range 60-150 )

4. Ratio of Cholestrol 5.64 (normal range 0-4.5 0

My Cholestrol has never been high, though I have been taking prednisone for 13 yrs .This is a new devlopement

Secondly my 2D-Echo report says SKEWED VIEWS OBTAINED

I asked the Cardiologist what the pulmonary pressure was , he said he could not measure it because the heart had moved to a position where he was not able to measure the pressure, he said only an invasive procedure would help measure it.

my question is can anyone here tell me if it means i will never know if i have pulmonary hypertension? has this happened to anyone else? I have yet to show this report to my pulmo..every thing else was ok in the Echo

The ECG said Q in AVL

i dont understand it Bruce or Beth could throw some light here.

in blood work all seems normal exceptESR Is 24 mm/1st hr

As you all know I have been stable for quite a while now I am on 10mg of prednisone, cannot go lower ,and i need 2-3 lit of o2 at rest and 6 to 7lit on exertion.

Since a few days i am getting severe pain in my legs upper part , only during the night it wakes me up from my sleep, it goes away as soon as i wake up, it seems to be muscular. My doc told me on the phone to get my Potassium levels checked. My quetion is why this sudden onset of muscular pain the new medications are Assurance and lasix , but that too since 3 month why now?

will be happy to get reactions

Geeta

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Thank you very much Beth,

I will do that, I will get back to my cardiologist and also get my potassium

levels checked, interesting to know muscular cramps occur after some months of

taking lasix and not necessarily at once.By the way what are the overt symptoms

of pulmonary hypertention?

I thnk it has been discussed earlier but I forget what they were.

Thank you once again

Geeta

>

> Gita,

> Please discuss the echo results further with your doctor if at all possible. I

am not at all comfortable offering any type of interpretation as there are just

too many variables.

>

> About the leg cramps....if you are on lasix you should most likely be on a

pottasium supplement and should definitely have your pottasium level checked.

When I was on lasix my pottasium became depleted after several months on the

lasix even though I was on a supplement. My doctor checked my pottasium level

every 2 weeks the entire time I was on lasix.

>

> I sure hope you feel better soon!!!

>

> Hugs,

>  

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>  

>  

>

>

>

>

> ________________________________

>

> To: Breathe-Support

> Sent: Wed, October 7, 2009 3:40:37 AM

> Subject: (unknown)

>

>  

> Hi friends,

> I recently got some cardiac tests done and would like to share the reports

with all of you.

>   LIPID PROFILE

>  1.S.Cholestrol        282mg/dl                       (normal range is120-240)

>  2.HDL Cholestrol    50mg/dl                         (normal>60 for females )

>  3.LDL Cholestrol    194.2mg/dl                     (normal range 60-150 )

>  4.  Ratio of Cholestrol     5.64                            (normal range

0-4.5 0

>

> My Cholestrol has never been high, though I have been taking prednisone for 13

yrs .This is a new devlopement

> Secondly my 2D-Echo report says SKEWED VIEWS OBTAINED

> I  asked the Cardiologist what the pulmonary pressure was , he said he could

not measure it because the heart had moved to a position where he was not able

to measure the pressure, he said only an invasive procedure would help measure

it.

>

> my question is can anyone here tell me if it means i will never  know if i

have pulmonary hypertension? has this happened to anyone else? I have yet to

show this report to my pulmo..every thing else was ok in the Echo

>

> The ECG said   Q in AVL

> i dont understand it Bruce or Beth could throw some light here.

> in blood work all seems normal exceptESR    Is   24 mm/1st hr

> As you all know I have been stable for quite a while now I am on 10mg of

prednisone, cannot go lower ,and i need 2-3 lit of o2 at rest and 6 to 7lit on

exertion.

> Since a few days i am getting severe pain in my legs upper part , only during

the night it wakes me up from my sleep, it goes away as soon as i wake up, it

seems to be muscular. My doc told me on the phone to get my Potassium levels

checked. My quetion is why this sudden onset of muscular pain the new

medications are Assurance and lasix , but that too since 3 month why now?

> will be happy to get reactions

> Geeta

>

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  • 4 weeks later...

Thank you much Mart beth

<FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT>

To: Breathe-Support Sent: Thu, November 5, 2009 5:49:35 PMSubject: Re: (unknown)

,

You are welcome here! Please make yourself at home and consider yourself part of the "air family". Ask whatever questions you need to, there's usually someone who can either answer or direct you to an answer.

Welcome once again!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: johnsbatik <johnsbatik (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Thu, November 5, 2009 5:08:29 PMSubject: (unknown)

Hey Guys:

I'm rather new to this group. I usually don't say much, but now that my pulmodude, just today< confirmed that I do have IPF I'll be hanging around and asking lots of questions.

I love the friendleness of this group. How much you care and know about eachother.

I hope I can fit in.

JOHN

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"LOL entry fee".........thanks and best wishes for your Husband

<FONT face="comic sans ms" color=#40007f size=3> Soulliere & nbsp; <IMG src="http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/50.gif"></FONT>

To: Breathe-Support Sent: Thu, November 5, 2009 5:56:06 PMSubject: Re: (unknown)

Welcome ... You are in the best place you can be as we fight our common disease together.

My husband just had surgery and I'm doing double-duty so my posting is brief.

Of course you will fit in. You've paid the 'entry fee' and now you're part of the family!

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jack

that post could also go into the introduction along with a list of celebs who have or had the disease -- we know who some of them are because they are on one of the websites

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: (unknown)To: "Breathe-Support Group" <Breathe-Support >Date: Wednesday, November 11, 2009, 11:16 AM

The recent discussion about our book and it's purpose, in part, to bring public awareness to our disease

reminded me of just how little it is known. When Marlon Brando died no mention was made of the cause.

I called his sister Jocelyn who is a friend - please don't try to decipher in which way - from what I call my Hollywood days. He died, she told me, from PF. I had never heard of it and didn't even know it

had to do with the lungs. There was no public announcement of the cause of death. PF seems to have

been shrouded in silence in those days and no body wanted to be associated with it, even in death.

I've since learned that a number of celebrities of all stripes have also died of PF. I don't mean to prey

upon the dead, but usually the death of a famous person brings awareness of the cause.

But in our book, our personal stories, our struggles to understand the unknown, to stumble through

to a viable life when there is no guidance except from those who went ahead of us, is what is most

compelling and which will arouse the public to help us. And in doing so, we help ourselves and

all those who will follow us.

Jack79/IPF - UIP/dx06/05 Maine

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  • 3 weeks later...

Hi and welcome to the group!

I was diagnosed with IPF in May 2009 and just recently submitted my disability claim for work and I'm on O2 for exertion only. The stress of working 40 hours a week and managing a chronic health condition is just too much for me now. A diagnosis like this changes your priorities in life completely and I started giving thought to what is most important to me now and discovered my job is not what I want to spending my precious time on.

It takes time to come to terms with everything and make decisions, but you will. In the meantime know that you have friends here at Breath-Support who care and understand what you are going through.

C_53_Familial IPF_5/09Washington

To: Breathe-Support Sent: Tue, November 24, 2009 6:54:31 PMSubject: (unknown)

I'm a newbie too!! and I read almost everything at least everyday if not every other. But I do know how everyone feels with being tired all the time. I'm pretty tired of this already and was only diagnosed in July. But I see that this all comes with it, So I do rest when I can. Really tired after I work all day. Don't know how long I'm going to be able to do this as on O2 24/7 with out oxygen my O2 is maybe a 86 standing, now if I walk any it will drop to the mid 70's. Get to see a ILD doctors at National Jewish in Denver , unfortunately not until Feb 1. I feel it is really progressing fast which really s****. We will see what they say.

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