Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 Tabitha, We come from Ohio so we come in the night before and get as early an appt as possible. This Monday we are due at 8:30 to soak off the casts before Dr. P sees her at 9. IF everything goes well we should be on our way home by 10:30 but you never know... LOL Chris hello all...question My son Karter, 15 months, has blcf. Have started seeing Dr. P. Anyway he has been recasted 4 times since his first sets at birth. We see Dr. P. again on Mon. He has never had a tenotomy. He feet correct easily with the casts, but also relapse easily if out of shoes for any amount of time. My question is since he keeps relapsing would the temotomy fix this problem. He was to have the tenotomy, but Dr. P. felt he did not need it. He is now to be in shoes 16-18 hours a day, but we are still doing 20-22 for the fact that I am so scared that he will relapse. To all that helped a few weeks ago when Karter had terrible sores on his feet. THANK YOU!!! His feet look better, but it looks like we will have scares. The sore that was on the top of his foot will scare for sure and also seems to be swollen. Will see what Dr. P. thinks on Monday. Last... ee You are a wonderful person and a very good mother and friend for helping everyone on this board. We to are thinking, just thinking, of having another child. For us it was never a issue if he/she will have cf, but more the $$$ involved with the treatment. Tabitha Brittanie 2-9-00 Karter 7-30-04 blcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2005 Report Share Posted November 22, 2005 Okay, someone else correct me if what I say is wrong...but the tenotomy corrects the equinus--the " pointed toes " like a ballerina. If Karter's feet are turning back inwards, that's a separate issue, probably caused by not being overcorrected as you guessed. The tenotomy isn't really going to help that as much as good 70* over-correction. They're kind of 2 separate parts of CF. And like said, if you're seeing Dr. Ponseti I can't think of a better doctor to trust! Hope this helps! , mommy of: Ava 8/4/04 RCF, ABS, FAB 12/7 > Tabitha, > > I am so glad to hear that Karter's feet are doing better. I have been wondering. Give those sores a few more months, they may surprise you yet. Babies heal well. I thought Tenny's foot would scar in a few places, one spot did, but the rest a beautiful...... Just took a few months. Isn't reduced time wonderful... > > > hello all...question > > > My son Karter, 15 months, has blcf. Have started seeing Dr. P. > Anyway he has been recasted 4 times since his first sets at birth. > We see Dr. P. again on Mon. He has never had a tenotomy. He feet > correct easily with the casts, but also relapse easily if out of > shoes for any amount of time. My question is since he keeps > relapsing would the temotomy fix this problem. He was to have the > tenotomy, but Dr. P. felt he did not need it. He is now to be in > shoes 16-18 hours a day, but we are still doing 20-22 for the fact > that I am so scared that he will relapse. > > To all that helped a few weeks ago when Karter had terrible sores on > his feet. THANK YOU!!! His feet look better, but it looks like we > will have scares. The sore that was on the top of his foot will > scare for sure and also seems to be swollen. Will see what Dr. P. > thinks on Monday. > > Last... ee You are a wonderful person and a very good mother > and friend for helping everyone on this board. We to are thinking, > just thinking, of having another child. For us it was never a issue > if he/she will have cf, but more the $$$ involved with the treatment. > > Tabitha > Brittanie 2-9-00 > Karter 7-30-04 blcf > > > > > > Quote Link to comment Share on other sites More sharing options...
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