Guest guest Posted April 11, 2009 Report Share Posted April 11, 2009 Tracie, You are a most wish young lady. What you describe is what I learned in the mid 70's to help me deal with Vascular Migraine Headaches. Of course in the 70's they called it BioFeedBack. I learned to control my breathing, my heart rate so as to be able to find complete relaxation. I in turn learned to control my blood pressures. And before this I was kind of one the test subject for narcotics for VM headaches. I try to do this relaxation every morning and usually works. But sometimes something will trigger a flashback, a sight, sound or thought. When I have one I ussually can knock it down real fast. I guess my weakness is somebody says something stupid to me I will snap in a second explode in angry words. I guess for that I will need more to do more prayers and pentances to relieve myself of some guilt. Again I am truly grateful for your insight and experiences. Greg > > > Subject: Re: Neurosarcoidosis, Prednisone, and PTSD > To: Neurosarcoidosis > Date: Saturday, April 11, 2009, 10:32 AM > > > > > > > > > > Greg, > > I cannot imagine having NS, PTSD and trying to quit smoking. Whew, you > might want to put up that sign!!! Just kidding. All I know was when I > quit smoking I was a b**ch with a capital B. My husband said I was like > Blair in the exorcist and told him in a demonic voice to " go buy > me some cigarettes " . I had just had pneumonia and decided not smoke > again after that. So as you can see, I wasn't sick yet and couldn't > barely get by without them. > > One word of advice as far as quitting goes - when you want a cigarette > remind yourself that you are addicted - I used to get up in the morning > and say out loud " you are addicted cigarettes and you can't have them > anymore " . It has been over 10 years and I did do it cold turkey. There > will be times that you will want it more than ever and just remember you > are stronger than that. > > As far as the PSTD - is there a VA Hospital you could go to get some > help with it? I hate to think of you and others suffering needlessly. > > Take care and let me know how everything goes. > > Terri G. > > > OOOOOOOOOO and I am in the process of quitting nicotine a habit I have > had for more then 20+ years. Today is day 8 no tobacco or nicotine. > > > > Think I should post a warning on my Door??? > > > > Greg > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2009 Report Share Posted April 12, 2009 Greg, Thank you for the complinent. Like you, I deal with PTSD-- from 17 yrs of fighting a workers comp injury with the private investigators following me around day and night. Every little thing I did was video recorded, and even bringing my infant son in from the car was part of their defense to show that I couldn't have been so seriously injured-- heck, I could lift a 25 lb 9 mo old baby from the car... I was so fortunate to be surrounded by healers-- and still am; even though the original team has pasted away due to cancers. These were really young women, all under the age of 50- and I reflect back on all they taoght me, with joy in my heart. Their's was such a blessing that I decided long ago that I wanted to honor their journey by sharing again what they gave me. For all of us, we are "sensitives" and that means we do get carried into others drama, unless we learn to block without closing off or down, and that makes it so that we can still love even the tough ones that share our path. For years, I relied on the LANGUAGE OF LETTING GO-- a daily mediation to teach me to open my heart and to understand that what happened in the past is past-- Graciously, we can learn to live in the NOW. I was fortunate to have a wonderful therapist that introduced me to Pema Chodron's works on living mindfully with an open heart. One of her exercises is to stand in line behind a mother with a small child as you check out at the grocery store. You know the scenario, the kid needs a nap, mom had to make one last stop, and the whining and crying and the "I want" and mom's now berating the kid as she's on overload... and you- you send out a calming, deep breath, inhaling the discomfort and pain of both mom and child, and exhale loving kindness. It's a totally silent exercise-- and it is so amazing- the mom will find herself surrounded by light, you'll see her take a deep breath, and she will say-- "honey, I know we're both on overload, let's just get our groceries and then we can head home-- I promise we'll be ok." I can't tell you how many times I've done this-- and I quote the response-- because it's exactly what will happen. As for the energy you inhaled-- you don't keep it, you send it to the core of the earth, down a waterslide that you use as an anchor from the soles of your feet-- and let it go. You've replaced it with the highest energy-- that of love. It may not be world peace-- but it's a start. Happy Easter to all, Tracie NS Co-owner/moderator Subject: Re: PTSDTo: Neurosarcoidosis Date: Saturday, April 11, 2009, 5:02 PM Tracie,You are a most wish young lady. What you describe is what I learned in the mid 70's to help me deal with Vascular Migraine Headaches. Of course in the 70's they called it BioFeedBack. I learned to control my breathing, my heart rate so as to be able to find complete relaxation. I in turn learned to control my blood pressures. And before this I was kind of one the test subject for narcotics for VM headaches. I try to do this relaxation every morning and usually works. But sometimes something will trigger a flashback, a sight, sound or thought. When I have one I ussually can knock it down real fast. I guess my weakness is somebody says something stupid to me I will snap in a second explode in angry words. I guess for that I will need more to do more prayers and pentances to relieve myself of some guilt. Again I am truly grateful for your insight and experiences.Greg> > From: mosaicgirl1 <mosaicgirl1@ ...>> Subject: Re: Neurosarcoidosis, Prednisone, and PTSD> To: Neurosarcoidosis@ yahoogroups. com> Date: Saturday, April 11, 2009, 10:32 AM> > > > > > > > > > Greg,> > I cannot imagine having NS, PTSD and trying to quit smoking. Whew, you> might want to put up that sign!!! Just kidding. All I know was when I> quit smoking I was a b**ch with a capital B. My husband said I was like> Blair in the exorcist and told him in a demonic voice to "go buy> me some cigarettes". I had just had pneumonia and decided not smoke> again after that. So as you can see, I wasn't sick yet and couldn't> barely get by without them.> > One word of advice as far as quitting goes - when you want a cigarette> remind yourself that you are addicted - I used to get up in the morning> and say out loud "you are addicted cigarettes and you can't have them> anymore". It has been over 10 years and I did do it cold turkey. There> will be times that you will want it more than ever and just remember you> are stronger than that.> > As far as the PSTD - is there a VA Hospital you could go to get some> help with it? I hate to think of you and others suffering needlessly.> > Take care and let me know how everything goes.> > Terri G.> > > OOOOOOOOOO and I am in the process of quitting nicotine a habit I have> had for more then 20+ years. Today is day 8 no tobacco or nicotine.> >> > Think I should post a warning on my Door???> >> > Greg> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2009 Report Share Posted April 12, 2009 Tracie That was just wonderful. Thank you. It seems like I can always find a light from you when I need it, and a lot of times when I don't realize I need it. I agree with Greg, you are amazing and I do thank God you are with us through all of this. I wish you or anyone would not have to deal with the MONSTER but as we have no choice, Thank you for being with us. Jackie Re: Neurosarcoidosis, Prednisone, and PTSD> To: Neurosarcoidosis@ yahoogroups. com> Date: Saturday, April 11, 2009, 10:32 AM> > > > > > > > > > Greg,> > I cannot imagine having NS, PTSD and trying to quit smoking. Whew, you> might want to put up that sign!!! Just kidding. All I know was when I> quit smoking I was a b**ch with a capital B. My husband said I was like> Blair in the exorcist and told him in a demonic voice to "go buy> me some cigarettes". I had just had pneumonia and decided not smoke> again after that. So as you can see, I wasn't sick yet and couldn't> barely get by without them.> > One word of advice as far as quitting goes - when you want a cigarette> remind yourself that you are addicted - I used to get up in the morning> and say out loud "you are addicted cigarettes and you can't have them> anymore". It has been over 10 years and I did do it cold turkey. There> will be times that you will want it more than ever and just remember you> are stronger than that.> > As far as the PSTD - is there a VA Hospital you could go to get some> help with it? I hate to think of you and others suffering needlessly.> > Take care and let me know how everything goes.> > Terri G.> > > OOOOOOOOOO and I am in the process of quitting nicotine a habit I have> had for more then 20+ years. Today is day 8 no tobacco or nicotine.> >> > Think I should post a warning on my Door???> >> > Greg> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2009 Report Share Posted April 13, 2009 Greg, As for the t-shirt, it's a no go-- but then there are those days... LOL! Subject: Re: PTSDTo: Neurosarcoidosis Date: Sunday, April 12, 2009, 2:47 PM TracieJust so you won't worry too much please know there is someone I can fully confid and talk too when it all becomes too much. But luckly I have had good control up to this point. I just see a little less control at times. I try too keep myself in a complete relax state in some form or fashion most of the day and night. It must be working cause my noisey upstair neighbors are still alive to make lots of noise past 3 am. :-} I worry for I have spent the later part of this life looking to resolve conflicts with out harm to any. Tho I got a thought for a t-shirt."I am Old And sick it Would take 15 minutes to kick your back sideit would only take 15 sec to end your life,should I save time????"What do you tnink of it --- Kind of dark I know Greg> > > > > > > > From: mosaicgirl1 <mosaicgirl1@ ...>> > > > Subject: Re: Neurosarcoidosis, Prednisone, and PTSD> > > > To: Neurosarcoidosis@ yahoogroups. com> > > > Date: Saturday, April 11, 2009, 10:32 AM> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Greg,> > > > > > > > I cannot imagine having NS, PTSD and trying to quit smoking. Whew, you> > > > might want to put up that sign!!! Just kidding. All I know was when I> > > > quit smoking I was a b**ch with a capital B. My husband said I was like> > > > Blair in the exorcist and told him in a demonic voice to "go buy> > > > me some cigarettes". I had just had pneumonia and decided not smoke> > > > again after that. So as you can see, I wasn't sick yet and couldn't> > > > barely get by without them.> > > > > > > > One word of advice as far as quitting goes - when you want a cigarette> > > > remind yourself that you are addicted - I used to get up in the morning> > > > and say out loud "you are addicted cigarettes and you can't have them> > > > anymore". It has been over 10 years and I did do it cold turkey. There> > > > will be times that you will want it more than ever and just remember you> > > > are stronger than that.> > > > > > > > As far as the PSTD - is there a VA Hospital you could go to get some> > > > help with it? I hate to think of you and others suffering needlessly.> > > > > > > > Take care and let me know how everything goes.> > > > > > > > Terri G.> > > > > > > > > OOOOOOOOOO and I am in the process of quitting nicotine a habit I have> > > > had for more then 20+ years. Today is day 8 no tobacco or nicotine.> > > > >> > > > > Think I should post a warning on my Door???> > > > >> > > > > Greg> > > > >> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.