Re: CF and Surgery

[Guest guest]

Awww. I can certainly sympathize with your sentiments, and

understand, I think, where you're coming from. I really, really do

not want any surgery that isn't completely medically necessary, at

least on my body. (Pamela Sue, or whatever her name is, can do as

she wishes, as long as I need not pay for it.)

When surgery is necessary, either to alleviate pain (which some

alignment surgeries can be) or to save a life -- the other reasons

for the choices can seem of minimal importance.

But there are people who have been teased, derided and been made to

feel freakish because of the ways their jaws meet. Some folks also

suffer through incredible troubles with migraines, jaw pain,

inabilities to eat and/or chew. You wouldn't believe that a few

little bones being out of alignment could make such a difference,

but they can.

I had a friend who had a slight -- indetectable to anyone else --

imbalance in the length of her legs. When she used the properly

prescribed and fitted orthotic, she could walk forever. Without it,

she was a basket case in a block or two.

So don't figure you know what someone else's troubles are until

you've been there yourself.

And I do hope that your implant gives you relief from the numbness,

and that you don't have pain. Most of all, that the tumor has come

to a screeching halt for you, and that you have good expectations

for your outcome. But hey, if you'd be happy with a mismatched jaw

and greater comfort, I would have no problem with that at all,

either, unless dental issues raised concerns, as they did for me.

(Actually, I wouldn't have problems if dental issues did raise

concerns, either, because I would figure it's totally your choice,

and that's how things should be!)

Of course, such choices are exactly that -- choices. And all these

procedures are a matter of weighing risks and benefits, and figuring

out how it may work out best for the individual.

C.

> I really can't belive I'm saying this, but....

> WHY do you want your jaw to line up? I had surgery to remove a

> growth that has eaten away my jaw bone (only a pencil width of

> actual bone remains). The " tumor " was removed and a graft was

> implanted that should solidify in 6/8 months. The numbness is

> really uncomfortable. I had NO discomfort before the surgery -

just

> a bad XRay. IF you are have the surgery for cosmetic

> reasons....NO!!! If it will improve the long term quality of your

> life, what the hell!?! The numbness is better than PAIN!

> JP

>

>

>

[Guest guest]

Yes,

Good point! I'm contemplating the surgery to maybe eradicate continual

headaches and be able to eat properly, but after seeing what would be done

to me, I'm not even sure if it is justified. Of course I would like to look

more attractive, but not at the cost of my health....but then again, maybe I

m just a coward,

-- Re: CF and Surgery

I really can't belive I'm saying this, but....

WHY do you want your jaw to line up? I had surgery to remove a

growth that has eaten away my jaw bone (only a pencil width of

actual bone remains). The " tumor " was removed and a graft was

implanted that should solidify in 6/8 months. The numbness is

really uncomfortable. I had NO discomfort before the surgery - just

a bad XRay. IF you are have the surgery for cosmetic

reasons....NO!!! If it will improve the long term quality of your

life, what the hell!?! The numbness is better than PAIN!

JP

> > Hello all,

> >

> > So, I'm trying to make a decision if I want this surgery done or

not.

> > The recovery sounds pretty uncomfortable as it is, and I've got

other

> > complications. I also have cystic fibrosis, so there's a whole

slew

> > of problems I'll have to deal with. IF there's anyone out there

who

> > has CF who has had the surgery I'd love to hear your

experience. And

> > for those of you who have had the surgery, i'd love to get a

rough

> > sampling of worth it/not worth it responses! Some of the photos

were

> > pretty remarkable. I JUST WANT MY JAW TO LINE UP! I'm 29 btw

with,

> > and they'll have to widen the palate, pull the top jaw forward,

and

> > fix the canter on the bottom jaw!

> >

> >