I need some tough love right now. - Just Venting. Nothing to do with SCD.

[Guest guest]

I'm on Prednisone... which i'm going to start weening off of because the side effects are not worth whatever it's helping with. I'm having alot of depression, mood swings, and mental breakdowns. Never had these side effects with Prednisone before, but maybe antibiotics change that too. I took Antibiotics for 3 days, and now i'm going to be in the worst flare ever for 3 months if this continues for 30 more days. I've gone back to into/stage 1 foods, and I can't tell what's effecting me and what's not. I was eating only meat for 3 days at one point, but I can't keep doing that. I already lost 20 pounds in less than 2 months, which isn't healthy. MY body needs energy to heal, but I don't know what it wants to have that it won't react with. Right now I huess it's reacting with everything!I've been really thinking of living for today and not for tomorrow..... like going off SCD and eating whatever, getting drunk, passing out, and doing it all again the next day. I'll go on the Imuran my doc wanted me on and things will be all better.... I won't have to cook everyday when I get home because I drive 2 hours to work and back so I don't have any time to do anything else. I wouldn't have lost the person I thought was my other half because of how stressfull this disease and this diet can be, and I would have been able to eat all the peanut butter easter eggs I wanted to last year, and do it again this year.Then I remember i'm on Prednisone, and it's freaking me out in the head! Maybe it's the Asacol.... considering the side effects of it are exactly what it's supposed to be treating? Now does that make any sense?-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now. The New Busy is not the old busy. Search, chat and e-mail from your inbox. Get started.

[Guest guest]

,

What is the rate of your taper with the Prednisone ? Coming off too quickly can definitely cause how you are feeling.

And no matter what your brain is telling you, those Easter eggs would stop being enjoyable about 5 minutes after you ate them, and they'd make you far more miserable than you are right now. Just don't let those eggs talk to you ;-) !

Seriously, you are giving yourself the best chance you can for healing by staying on the diet, and finding the balance of meds you need for right now.

Instead of looking for lots of healing right now, how about looking for one thing tomorrow that's a little better, and letting us know what it is ?

Looking forward to hearing what it is,

Sue R

[Guest guest]

Sue,I haven't started tapering the Pred... been on 40mg. As far as what i'm looking forward to for tomorrow, how about the ability to fart? I don't want to be afraid to pass gas for one day. -UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD From: bonniemac289@...Date: Tue, 23 Mar 2010 20:02:10 -0400Subject: Re: I need some tough love right now. - Just Venting. Nothing to do with SCD.

,

What is the rate of your taper with the Prednisone ? Coming off too quickly can definitely cause how you are feeling.

And no matter what your brain is telling you, those Easter eggs would stop being enjoyable about 5 minutes after you ate them, and they'd make you far more miserable than you are right now. Just don't let those eggs talk to you ;-) !

Seriously, you are giving yourself the best chance you can for healing by staying on the diet, and finding the balance of meds you need for right now.

Instead of looking for lots of healing right now, how about looking for one thing tomorrow that's a little better, and letting us know what it is ?

Looking forward to hearing what it is,

Sue R

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[Guest guest]

Well, if that's what's going to do it for you...

The things you can only share here... <g>

I'm empathizing as others are---had to go on 200 mg Hydrocortisone, equivalent of about 50 mg of Prednisone, and it was tough.

Here's hoping you can start to taper soon---just do it really slowly.

Are there any legal foods which you can enjoy--the SCD version of comfort foods ?

Sue

[Guest guest]

Enjoying that right now.... I made pumpkin pie filling a few weeks ago but thought I was having a reaction to it so I kept it. I'm reacting to everything, so i'm eating that now... yumI did have dinner all set but I left it out before work this morning. Scared to eat it, since who knows what fermented and grew on it for 10 hours today.Sorry for venting, but I had to let it out someplace. What better place than on here for the entire world to see -UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD From: bonniemac289@...Date: Tue, 23 Mar 2010 20:30:26 -0400Subject: Re: I need some tough love right now. - Just Venting. Nothing to do with SCD.

Well, if that's what's going to do it for you...

The things you can only share here... <g>

I'm empathizing as others are---had to go on 200 mg Hydrocortisone, equivalent of about 50 mg of Prednisone, and it was tough.

Here's hoping you can start to taper soon---just do it really slowly.

Are there any legal foods which you can enjoy--the SCD version of comfort foods ?

Sue

The New Busy is not the old busy. Search, chat and e-mail from your inbox. Get started.

[Guest guest]

Kat & ,

I have saved your emails into a folder called "Cheer up, things could be worse" which I can go back to and read whenever I am discouraged...something I battle almost daily. My heart goes out to you and I salute your courage to continue. I sincerely hope you find your way out of this morass of illness and black emotion. We are all cheering you on! DarleneIntestinal Dysbiosis/CFSSCD 1 month

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[Guest guest]

Hey ,

I'm so sorry you're going through such a down time right now. Prednisone can

definitely screw with your emotions among other things. I'm on Prednisone right

now too (tapering), but when I was on 40 mg I was going crazy, couldn't sleep,

major mood swings etc. I feel for you!

> I've been really thinking of living for today and not for tomorrow..... like

going off SCD and eating whatever, getting drunk, passing out, and doing it all

again the next day. I'll go on the Imuran my doc wanted me on and things will be

all better.... I won't have to cook everyday when I get home because I drive 2

hours to work and back so I don't have any time to do anything else. I wouldn't

have lost the person I thought was my other half because of how stressfull this

disease and this diet can be, and I would have been able to eat all the peanut

butter easter eggs I wanted to last year, and do it again this year.

I go through this thinking too. I unfortunately acted on it over Christmas, and

then I paid for it with a huge flare and a trip to the hospital. Of course, it

may have been due to the fact that maybe my meds aren't working anymore, who

knows, but that's the thing. I'm on was on 2 different meds at the time-the big

guns- Remicade & Methotrexate, and I still ended up in the hospital. So maybe

you could get away with getting on Imuran and going off the diet for a while,

but being on Imuran isn't a guarantee that you'd stay in remission. I know

you're going to give the diet a shot, so good for you, but for me I learned my

lesson and am scared enough now to stick with the diet even if I start to feel

better and peanut butter easter eggs (which are one of my absolute favorite

candies in the world) call my name at the grocery store. So maybe you can take a

lesson from my dumb mistake!

I think it was mentioned earlier that maybe you should try switching meds. Of

course I'm not a doctor, but if your meds aren't helping you at all, maybe it's

a good idea. It could help you out of your flare and give you more variety in

your diet, and hopefully get you off the dreaded prednisone!

You're definitely a fighter. I can't imagine going through your illness and a

break up, plus driving 2 hours to work every day and cooking all your food. It's

really hard having a chronic disease. I'm still trying to grasp it. That in

itself is enough to make someone depressed, and then add to that feeling

horrible with no energy and meds with crazy side effects and it's just a recipe

to feeling out of whack. But you'll eventually get out of your flare. It may

take different meds or something else, but it will get better. I know how it is

though when you're in the midst of it all. When I was in the hospital, I needed

someone to keep reminding me that it was going to get better. Half the time I

never believed them, but it finally did. And once you're feeling better, things

will be so much easier for you. The cloud will lift and you'll be able to think

more clearly. It's really hard to stay positive when you feel like trash.

So please continue to vent! We're here for you. We can be your positive voice

and remind you that things will get better. I know it's not the same as in

person, but it's something. I hope you find something that gets you feeling

better ASAP!! Hang in there!

Hugs,

Amber

>

> Then I remember i'm on Prednisone, and it's freaking me out in the head!

>

> Maybe it's the Asacol.... considering the side effects of it are exactly what

it's supposed to be treating? Now does that make any sense?

>

>

>

> -

> UC - 1+ years

> SCD - 8 months 100% strict and 4 months restricted diet.

> Asacol - 12 pills a day

> Prednisone 40mg

> entocort With vit E mixed in

> Back to intro/stage 1 for now.

>

>

>

>

>

> _________________________________________________________________

> The New Busy is not the old busy. Search, chat and e-mail from your inbox.

>

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