Re: Dental Problems and clubfeet?

[Guest guest]

I will do that. I have been meaning to anyway because clubfoot and

metatarsus adductis? run in the family.

-- In nosurgery4clubfoot , " number23 " <number23@c...>

wrote:

>

> Wow, that's awful, I'm sorry to hear it. I don't know about a

connection between the two conditions but it is my understanding Dr.

Dietz (Iowa City) and Dr. Dobbs (St. Louis Missouri) both track

things like this so perhaps informing them for what it's worth to

long term study is an idea.

> s.

>

> Dental Problems and clubfeet?

>

>

> Hi all,

>

> I have been dealing with the possibility that my daughter may have

> amelogenesis imperfecta. This is a dental condition that affects

the

> enamel of the teeth. Since her teeth have been coming in, 's

> teeth have been almost serrated, seem to be breaking, and the

enamel

> has come off from her teeth. Now the two new ones she just got

came

> in without enamel! This is not a case of baby bottle tooth decay.

>

> Anyway, I was at the pool on Friday for 's therapy and ran

> into my friend with the daughter who has arthrogryposis. We began

> talking and I mentioned 's teeth. Imagine my surprise when

> Crystal says that her daughter Haromoni (now 4) has the same

issue!

> Is this just a strange coincidence (the statistic is something

like

> one in every 14,000 births!)? Do any of you have experience with

> this condition in your children? I'm wondering if there is a

> correlation between amelogenesis imperfecta and issues like

clubfeet

> and arthrogryposis. I am aware that the prevalence statistics are

> quite different between the two conditions, but would like to know

> if anyone else has experienced this.

>

> I dare say that I am more upset about this condition than I was

> about the clubfeet. They don't do anything to correct the baby

> teeth, so they will turn from yellow to brown and may fall out

> early. Then, when her permanent teeth come in, she will need

> complete crowns. Knowing how important a good smile is to self

> esteem, and knowing how cruel children can be, I am very upset

about

> this. We go to the pediodontist the day before Thanksgiving and I

> hope to get some answers then.

>

> Donna

> mother to (6-5-92), (7-19-99), Jakob (12-06-01),

and

> -bilateral clubfeet corrected FAB 12-14/7 (11-01-04)

>

>

>

>

>

>

>

[Guest guest]

Jen,

I have yet to speak to the dentist. I see him the day before

Thanksgiving, but the research I have done on my own implies that if

it is indeed amelogenesis imperfecta, it will also affect her

permanent teeth. I haven't found any other conditions in my research

that resemble what she has, so I'm pretty certain that is what it

is, but am anxious to hear a professional opinion. I was told that

the dentists don't do any treatments on the baby teeth. I'm glad to

hear that I might be able to get some help for her. Even if it is

not amelogenesis imperfecta, she still has teeth without enamel.

That will be true at least until the permanent teeth come in. I want

to deal with that however I can. I was told that you can fight with

insurance to have dental work covered for this condition because

without treatment the teeth will get so damaged they will either

fall out or have to be pulled! Then we would be looking at dentures.

The worst case I have read about so far required a two year old to

get dentures! How sad is that? Anyway, I know we are looking at a

potential huge expense as I have been told that in my area crowns

cost $600 per tooth. How many teeth do we have? 28 or something?

Without insurance that will cost 1/2 of my house!!

I have joined a yahoo group for AI, but it only has 13 members and

there is an average of one post a year! Sure am grateful for this

group (NS4CF)!

Thank you for all of the information and questions to take to the

dentist!

Donna

> > >

> > > Hi all,

> > >

> > > I have been dealing with the possibility that my daughter may

> have

> > > amelogenesis imperfecta. This is a dental condition that

affects

> > the

> > > enamel of the teeth. Since her teeth have been coming in,

> 's

> > > teeth have been almost serrated, seem to be breaking, and the

> > enamel

> > > has come off from her teeth. Now the two new ones she just got

> came

> > > in without enamel! This is not a case of baby bottle tooth

> decay.

> > >

> > > Anyway, I was at the pool on Friday for 's therapy and

ran

> > > into my friend with the daughter who has arthrogryposis. We

> began

> > > talking and I mentioned 's teeth. Imagine my surprise

when

> > > Crystal says that her daughter Haromoni (now 4) has the same

> issue!

> > > Is this just a strange coincidence (the statistic is something

> like

> > > one in every 14,000 births!)? Do any of you have experience

> with

> > > this condition in your children? I'm wondering if there is a

> > > correlation between amelogenesis imperfecta and issues like

> > clubfeet

> > > and arthrogryposis. I am aware that the prevalence statistics

> are

> > > quite different between the two conditions, but would like to

> know

> > > if anyone else has experienced this.

> > >

> > > I dare say that I am more upset about this condition than I

was

> > > about the clubfeet. They don't do anything to correct the baby

> > > teeth, so they will turn from yellow to brown and may fall out

> > > early. Then, when her permanent teeth come in, she will need

> > > complete crowns. Knowing how important a good smile is to self

> > > esteem, and knowing how cruel children can be, I am very upset

> > about

> > > this. We go to the pediodontist the day before Thanksgiving

and

> I

> > > hope to get some answers then.

> > >

> > > Donna

> > > mother to (6-5-92), (7-19-99), Jakob (12-06-

01),

> > and

> > > -bilateral clubfeet corrected FAB 12-14/7 (11-01-04)

> > >

> >

> >

> >

> >

> >

> >

> >

> >