Re: Feeling stressed and not sure what to do

[Guest guest]

Bri,

Sorry for the late reply - been away from the computer

all weekend. Dr. Dobbs is in St. Louis and he

practices at both Children's Hospital and at the

Shriner's here. He is certainly one of the top

clubfoot doctors - he trained with Dr. Ponseti at the

University of Iowa for 7 years. My son is 13 months

and has been seen by Dr. Dobbs since birth - we really

like him - I really can't say enough good things about

him and his staff. Dr. Dobbs is also working on

designing new styles of the FAB to help make it easier

for parents. He has developed a FAB with an

articulating bar - it has pivot points near each foot

that allows the child to move his/her feet

independently yet still keeps the feet at the proper

outward rotation and dorsiflexed. Hope this helps, if

you have any other questions about Dr. Dobbs or our

experience please feel free to email me.

Thanks,

Jenna (4/7/01) & Sammy (9/25/04, RCF, Dobbs' brace

16hrs/day)

--- Bronson

wrote:

> Hi there,

> My name is Bri and I have a 3 year old ( 4 this

> month ) who has leftclubfoot. We used to have a

> doctor back home who took care of him till he moved

> out of state. Now we have moved and seeing a new

> doctor. I think it's because I am not used to how

> other doctor's deal with clubfoot and got to used

> and trusting with our old doctor, but i am not

> satisfied with what he has to say or how the visits

> are. I read this little e-mail and saw that you are

> in St. Louis. I live in Kansas City Kansas and am

> not to far. I would if you could get more info on

> Doc Dr. Dobbs, or if anyone can tell me about Dr.

> Ponsetti ( sp ) I am close to both. All I want is to

> get the proper treatment for my son and the beable

> to walk out after the visit knowing that the doctor

> did good. I am used to traveling ( had to back home

> for all of his doctors and my husbands ) so that is

> not a problem. Also his doctor has said that he

> might want to do botox on him. I have looked it up

> but don't see anything about the shot

> and clubfoot. ( lol not that good at lookin up

> things I guess ). If someone knows anything about

> this could you please give me some info on this?

> Bri

>

> number23 wrote:

> , don't take this the wrong way but frankly I

> hope we don't have any reason to meet you or Dr.

> Dobbs in St. Louis! ha ha..... If we do though, I'd

> be honored to have you as our guide! I actually

> went to St. Louis once as a child, I have vague

> memories of going up in the Arch and have tried many

> times to convince my dh to take us home from Iowa

> via St. Louis so I could see it again. Maybe one of

> these days, eh?

> s.

>

> Feeling stressed

> and

> > > not sure what to do

> > >

> > >

> > > I'm really not sure what I'm going to do now.

> Our

> > > insurance will not approve

> > > Grant (or Rose for that matter!) to be seen by

> Dr.

> > > Ponseti, so I will have to

> > > pay out of pocket. I heard back today, and I'm

> > > shocked! I don't think we can

> > > afford to pay out of pocket, so I'm not sure

> what

> > my

> > > next step is going to be.

> > >

> > > A returning visit (for Rose) is $297. Which

> seems

> > a

> > > bit steep. For a new

> > > patient visit it will be $341. If Dr. Ponseti

> > > decides to cast Grant it will be

> > > $448 for each leg. it would total up to over

> 1500

> > > dollars.

> > >

> > > Is it worth a consult with Dr. Ponseti?? Grant

> > has

> > > so many issues besides the

> > > clubfoot, and I'm starting to doubt whether I

> > " need "

> > > to have Dr. Ponseti look

> > > at it or not. I know I WANT Dr. Ponseti to

> > reassure

> > > me that the treatment is

> > > going well, but then I think what if he

> doesn't??

> > > argh! Is the method

> > > successful with spina bifida? am I going to have

> > to

> > > reassess my expectations of

> > > clubfoot treatment for Grant? Dr. Koop does

> seem

> > to

> > > be having success, and I'm

> > > quite pleased with the progress so far, but I

> have

> > > my concerns and worries.

> > >

> > > In all of this I've been thinking how hard it is

> > to

> > > see a Ponseti doctor after

> > > having seen Dr. Ponseti Himself. LOL

> > >

> > > We certainly can't afford to pay out of pocket.

> I

> > > can't believe it's 300

> > > dollars just to see Rose! We'll come up with

> > > that, and possibly we can come

> > > up with the other 350, but wow.

> > >

> > > Just needed to unload that.

> > >

> > > Joy

> > >

> > > Rose (1-99)

> > >

> >

>

http://www.geocities.com/joybelle15/rosesclubfootpage.html

> > > Iris (2-01)

> > > Spencer (3-03)

> > > Grant (9-05)

> > > http://www.caringbridge.org/visit/grantphilip

> > >

> > >

> > >

> > >

> > > __________________________________

> > > Yahoo! Mail - PC Magazine Editors' Choice 2005

> > > http://mail.yahoo.com

> > >

> > >

> > >