Re: Appointments with Neuro/Opthal

[Guest guest]

We just started the cellcept this summer. Unfortunately for us (jenny) who suffers with the neurosarcoidosis the doctors have told us that what we lost will not recover. Even more unfortuante is the fact that I see a progression of worsening effects. I am trying versions of cognitive therapies at this point to stimulate the brain process. Right now the insurance company seems to be stonewalling on allowing us to seek out a cognitive therapist for ongoing assistance.Matt Subject: Appointments with Neuro/OpthalTo: Neurosarcoidosis Date: Friday,

October 9, 2009, 1:16 AM

I had post diagnosis appointments with opthal and neuro and both seem to think this will be a life long thing for me. The suggestion is to start cellcept.

I would love to hear anyone's experiences on cellcept and also has anyone reversed longterm damage. My left side is weak and numb on/off for about 6 years now.