Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 I've tried searching for this, but either get too many results, or not enough! I see that you all recommend being very proactive re:healthcare... I'm wondering if anyone has any tips on motivating the doctor? Mine is very happy it is in my lungs, lymph nodes, and heart, and does not seem to understand the concept that a multi-organ disorder can affect more than that little group. Given some of the stuff I've got going on, I'm a little concerned about the spread of the sarcoidosis. Any tips at all on how to manage my doctor into understanding this, aside from referring him to the Marshall Protocol, which he has already dismissed? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 I would continue to push him or her to asssit with the issues you are experiencing and begin the seeking of a new doctor. Are there any University hospitals in your area that you might contact for help. As patients and caregivers we need I have found to be extremely proactive with our care.MattSubject: Educating the doctor?To: Neurosarcoidosis Date: Wednesday, July 29, 2009, 7:50 AM I've tried searching for this, but either get too many results, or not enough! I see that you all recommend being very proactive re:healthcare. .. I'm wondering if anyone has any tips on motivating the doctor? Mine is very happy it is in my lungs, lymph nodes, and heart, and does not seem to understand the concept that a multi-organ disorder can affect more than that little group. Given some of the stuff I've got going on, I'm a little concerned about the spread of the sarcoidosis. Any tips at all on how to manage my doctor into understanding this, aside from referring him to the Marshall Protocol, which he has already dismissed? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2009 Report Share Posted July 29, 2009 He is smart to dismiss the Marshall Protocol, is he treating you at all? are you on any medications? There is a lot of information in the messages archives, listed below, have you been there yet, if not you will find a lot of helpful information, and you can print this out and take it to your doctor. That's what I did, I know if you just Google Sarcoidosis, you get a lot of information saying this Diseaseis not a big deal, but it is a big deal, look through our archives, and see if that helps. Please feel free to ask any questions as well, we are here to help and support each other, so we share what has worked and what hasn't keeping in mind that we are all different and react to medications differently, but feed back is good. There are even some studies going on, if you go to the Sarcoidosiswebsite, I believe you will find a link to the studies. Blessings, Marl a I've tried searching for this, but either get too many results, or not enough! I see that you all recommend being very proactive re:healthcare... I'm wondering if anyone has any tips on motivating the doctor? Mine is very happy it is in my lungs, lymph nodes, and heart, and does not seem to understand the concept that a multi-organ disorder can affect more than that little group. Given some of the stuff I've got going on, I'm a little concerned about the spread of the sarcoidosis. Any tips at all on how to manage my doctor into understanding this, aside from referring him to the Marshall Protocol, which he has already dismissed? Quote Link to comment Share on other sites More sharing options...
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