Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 i just wanted to let u know i am removing my self from the group. I have written to the group twice within the last two weeks and only one person responded.. with prayers. I have been part of this group i think since i've gotten sick in 2001 . not sure of the date. That should not matter. There seems to be a click and if u are not part of that your posts are ignored. i am just not getting the support i need here. and the people know who they are when i say click. i will not post names. this disease does not work on clicks... thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 , please do NOT leave............this happens to all of us. I felt the same way a couple of weeks ago----- I knew Tracie was ill and so I researched and tried to answer several of the questions that members asked and I did NOT receive any replies at all! Like you, I thought about leaving because it seemed like I was not needed here. However, that is not true! and the same goes for you. I have talents in other areas besides medical research...........I am good with the computers for one thing.......I hope I am explaining this to you in a way that you will understand. Please stay for a while and give it a try. Yes, there are a few that seem to reply only to certain people but it is that way everywhere. We find someone we are comfortable with and it is easy to talk to them........so we do........and the others we do not answer. It is a situation that a lot of people fall into without meaning to. I am sorry you feel like you are not getting the answers and support that you need here..........please stay and give us another chance. I have been busy myself the last couple of days trying to work; babysit one of my grandchildren; doing lots of typing for my hubby.......and on top of that, I am having a little flareup, so I have not answered very many posts either. Hope you stay. Sincerely, Darlene NS Co-Owner/Moderator PS.......sometimes a person does not realize how they say or do things.....for instance, I could have taken offense as to how you did the subject line............ you made the subject "Tracie and all"......well, I am the co-owner, so does that mean I don't count?? Tracie is not the only owner. THIS IS JUST AN ILLUSTRATION.........I AM NOT UPSET ABOUT THIS......... Tracie and all i just wanted to let u know i am removing my self from the group. I have written to the group twice within the last two weeks and only one person responded.. with prayers. I have been part of this group i think since i've gotten sick in 2001 . not sure of the date. That should not matter. There seems to be a click and if u are not part of that your posts are ignored. i am just not getting the support i need here. and the people know who they are when i say click. i will not post names. this disease does not work on clicks... thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 I am sorry you feel this way. At times I feel a clicks thing going too. I ignore it and keep posting as much as I can. Please don't leave us because your posts and comments are very much appreciated. I respect your advise and I love your spunk. You are like the Eveready bunny you just keep going. Your going back to school has spurred a little bit of "go get em" in me. I am back at school now. Please stay with us and understand that hardly anyone has been on line. Must be summer. I pray you stay and help us and let us help you. Thank you for being you. Jackie Tracie and all i just wanted to let u know i am removing my self from the group. I have written to the group twice within the last two weeks and only one person responded.. with prayers. I have been part of this group i think since i've gotten sick in 2001 . not sure of the date. That should not matter. There seems to be a click and if u are not part of that your posts are ignored. i am just not getting the support i need here. and the people know who they are when i say click. i will not post names. this disease does not work on clicks... thanks Quote Link to comment Share on other sites More sharing options...
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