Guest guest Posted July 3, 2006 Report Share Posted July 3, 2006 Rob....sorry you feel that way.....we don't have a click, everyone answers to me and i have never met anyone face to face......you probably wont read this but that is tooo bad you feel like that...believe me or not but i was going to email you because i think you are from puerto rico and so am i.........damaris > > this whole group sucks!! You all are nothing more than selfish > inconsiderent people. I have joined twice and posted messages with real > concerns but not one person has wriiten back or offered advice. All you > care about is your lil cliq and bullshit. real people are on here for > support like myself but we cant get any cuz were not part of the group > or we dont do or have things the rest of you do. I hope u all gain your > weight back and die from bowel obstruction you BASTARDS!!!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2006 Report Share Posted July 3, 2006 Rob; Sorry I had to go back and find your message for what ever reason I do not remember your message getting to my box. But maybe I can answer some of your concerns I'm not an authority on any of this. Is your soup liquidy if so most of the liquid will pass through faster than solid food. I also drink a lot of water at one time and I always have The opening from your new stomach to the small intestine could be larger sometimes that happens How do you feel after eating a whole can of soup Tired, sleepy, miserable sometimes you feel this way if you over eat. I don't think you always throw it right back up if you eat to much. If I eat things I shouldn't or to much I get really sleepy and I have to go to sleep right now It is the most weird thing. When do you see your doctor for the check up you really need to tell him about this concern. I have felt that sometimes the doctors just let it go I think it all depends on the doctor. As far as the weight gain it could be many things gas and bloat, water if you are eating salty stuff. Ask yourself if you are eating as much as you did before the surgery and are you exercising more. There could be many reasons for this weight gain and maybe it's not what you are doing but rather how your body is reacting to the surgery. I don't know if this helps and again I'm sorry I missed your first message It helps to know someone is listening. Congratulations on your surgery and new life path I hope it all works out for you. Take Care, T . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2006 Report Share Posted July 3, 2006 I'm not always on here to read and respond, but I'll do my best. My understanding is that you are not to be eating an entire can of soup, that's soft calories. They don't stay in your pouch and you will be hungry again later. Also you are not to be sitting there gulping down large amounts of water. Sip sip sip.. that's all your suppose to be doing. Again..before you attack me.. that is my understanding of the program that Kaiser has. Now if you program is different, then you need to talk to your nutritionist or someone to help you with what you are experiencing. LISA > > this whole group sucks!! You all are nothing more than selfish > inconsiderent people. I have joined twice and posted messages with real > concerns but not one person has wriiten back or offered advice. All you > care about is your lil cliq and bullshit. real people are on here for > support like myself but we cant get any cuz were not part of the group > or we dont do or have things the rest of you do. I hope u all gain your > weight back and die from bowel obstruction you BASTARDS!!!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2006 Report Share Posted July 3, 2006 None of us have to put up with your bad mouth. You don't realize how many people have life other than the computer. You don't know what's going on in others life's. If sometimes you don't get help from here, then call the bariactric department, or your PCP, we don't owe you anything. You have to understand that really there are so many caring people on this group, and you are really crossing boundaries of many with your talk, none of deserve this. The wishes of weight gain and bad wishes show that you have mental problems and really should seek help from a psychologist, because your behavior will only cause you weight problems not us. Learn that people don't have to jump just because you think so. Grow up and get help! Donna J.puertorob2001 wrote: this whole group sucks!! You all are nothing more than selfish inconsiderent people. I have joined twice and posted messages with real concerns but not one person has wriiten back or offered advice. All you care about is your lil cliq and bullshit. real people are on here for support like myself but we cant get any cuz were not part of the group or we dont do or have things the rest of you do. I hope u all gain your weight back and die from bowel obstruction you BASTARDS!!!! Donna JordonDSJordon@... Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2006 Report Share Posted July 4, 2006 Hi Donna, I just want to say I agree with you 100%. There is no reason for anyone to have to deal with someone else's negativity. I have received a lot of support and useful information from this group and I wouldn't trade it for the world. IsisDonna Jordon wrote: None of us have to put up with your bad mouth. You don't realize how many people have life other than the computer. You don't know what's going on in others life's. If sometimes you don't get help from here, then call the bariactric department, or your PCP, we don't owe you anything. You have to understand that really there are so many caring people on this group, and you are really crossing boundaries of many with your talk, none of deserve this. The wishes of weight gain and bad wishes show that you have mental problems and really should seek help from a psychologist, because your behavior will only cause you weight problems not us. Learn that people don't have to jump just because you think so. Grow up and get help! Donna J.puertorob2001 wrote: this whole group sucks!! You all are nothing more than selfish inconsiderent people. I have joined twice and posted messages with real concerns but not one person has wriiten back or offered advice. All you care about is your lil cliq and bullshit. real people are on here for support like myself but we cant get any cuz were not part of the group or we dont do or have things the rest of you do. I hope u all gain your weight back and die from bowel obstruction you BASTARDS!!!!Donna JordonDSJordon@... Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 Tracie,I am new to this group. I found you all a bit by accident while digging for help and understanding. I am glad that I found you all. Sorry that it had to be because of the Neurosarcoidosis. To answer your questions for what I am looking for: here goes. 1. A group that can offer their support on whatever level that is. I have found it through posts about meds and conditions and help.2. Info that if I need to print it out I can take to a doc. I am the care giver for my wife 3. A group that knows that Neurosarcoidosis and sarcoidosis are real ailments. They arenot in someones mind and it helps to read what others have dealt with. It makes the raod a bit less bumpy for others. 4. I for one will take all of the prayers that you have to offer. I will offer up the same for each and every one of you.5. I am greatful to have "met" you all. Sometimes I feel as if 's situtation is not as grave as others, but then I have come to realize from this group that each situation is vastly different. Hope this helps. I will continue to ask and offer my thoughts. if I ask something that has already been discussed until it is a dead issue then point me in the right direction and I will find the info. Thanks for being there for all who suffer with this rotten illness.matt Subject: GroupTo: neurosarcoidosis , nsmods Date: Wednesday, September 23, 2009, 7:31 PM Ok guys, here we grow again! I posted earlier today that I'm feeling like maybe if I post I come on too strong. I am not trying to do a guilt trip here. Not at all. What I'm asking of all of you is this: What do you want from us in the way of support? Do you want medical information and explanation for what your'e going through? Do you want articles that you can take to the MD's? Do you feel like if you aren't part of the "prayer group" that you won't be answered? Are you afraid to ask a question for fear that you may be put on the spot or called on the carpet because of what you asked? (This is what I'm trying not to do, but know that right now, I'm not always on top of my game-- so I make mistakes) How do you feel about the fact that most of the people posting seem to be strongly faith oriented, and quote Scripture, etc? Is this part of the problem again? Do you think that if someone's name is on the subject line-- that you aren't supposed to read that email? What have we lost (long timers this is for you) that we had in the early days that we don't have now? I don't want anyone to feel that they have to leave the group because I'm having a hard time and am feeling my OWN insecurity. We all have to understand that when the sarc monster jumps us, that these personality issues will come up. It's a rare occasion that I'd call anyone on the carpet unless I feel that what they are doing is something that all of us need to become more aware of-- and that the actions can injure others. Like shoping excursions with active infections going on, lying about our relationships to make others take our side-- yep, I'll say something publicly. My hope for this group is that htis forum will welcome everyone who needs to be here. Religion, faith, dogma, political party-- as long as it doesn't disrupt the group-- we will not censor it. We aren't a forum for politics-- we are worldwide! We have allowed alot more lenency towards faith posts-- and some of of you think that if you're asked to not put Bible scripture that your "rights" are being imposed upon. For others, again it's an insult that if they don't want to publically announce their faith-- that they aaren't good enough in their practice of faith. Both sides feel the other is wrong is asking for what they are comfortable with. It always makes for a challenge for the moderators and owners as we have to remain as neutral as possible. Not an easy task. Please I ask that you take a moment-- and tell us what it is that you want. I'd love to see answers other than yes and know to the questions I've posed. That way we can keep this group growing-- and touch more hearts and minds with a way to make life as livable as possible. Sincerely, Tracie NS Co-owner/moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 To All I know what I want. I want a big hug because this group means so much to me. I don't know where I would be with out the laughs and tears and the knowledge that is shared here. That is what I want and expect from this wonderful group. Jackie from Wisconsin Group Ok guys, here we grow again! I posted earlier today that I'm feeling like maybe if I post I come on too strong. I am not trying to do a guilt trip here. Not at all. What I'm asking of all of you is this: What do you want from us in the way of support? Do you want medical information and explanation for what your'e going through? Do you want articles that you can take to the MD's? Do you feel like if you aren't part of the "prayer group" that you won't be answered? Are you afraid to ask a question for fear that you may be put on the spot or called on the carpet because of what you asked? (This is what I'm trying not to do, but know that right now, I'm not always on top of my game-- so I make mistakes) How do you feel about the fact that most of the people posting seem to be strongly faith oriented, and quote Scripture, etc? Is this part of the problem again? Do you think that if someone's name is on the subject line-- that you aren't supposed to read that email? What have we lost (long timers this is for you) that we had in the early days that we don't have now? I don't want anyone to feel that they have to leave the group because I'm having a hard time and am feeling my OWN insecurity. We all have to understand that when the sarc monster jumps us, that these personality issues will come up. It's a rare occasion that I'd call anyone on the carpet unless I feel that what they are doing is something that all of us need to become more aware of-- and that the actions can injure others. Like shoping excursions with active infections going on, lying about our relationships to make others take our side-- yep, I'll say something publicly. My hope for this group is that htis forum will welcome everyone who needs to be here. Religion, faith, dogma, political party-- as long as it doesn't disrupt the group-- we will not censor it. We aren't a forum for politics-- we are worldwide! We have allowed alot more lenency towards faith posts-- and some of of you think that if you're asked to not put Bible scripture that your "rights" are being imposed upon. For others, again it's an insult that if they don't want to publically announce their faith-- that they aaren't good enough in their practice of faith. Both sides feel the other is wrong is asking for what they are comfortable with. It always makes for a challenge for the moderators and owners as we have to remain as neutral as possible. Not an easy task. Please I ask that you take a moment-- and tell us what it is that you want. I'd love to see answers other than yes and know to the questions I've posed. That way we can keep this group growing-- and touch more hearts and minds with a way to make life as livable as possible. Sincerely, Tracie NS Co-owner/moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 (((((((((((((((((((((( hug ))))))))))))))))))) To: Neurosarcoidosis Sent: Wednesday, September 23, 2009 6:08:43 PMSubject: Re: Group To All I know what I want. I want a big hug because this group means so much to me. I don't know where I would be with out the laughs and tears and the knowledge that is shared here. That is what I want and expect from this wonderful group. Jackie from Wisconsin Group Ok guys, here we grow again! I posted earlier today that I'm feeling like maybe if I post I come on too strong. I am not trying to do a guilt trip here. Not at all. What I'm asking of all of you is this: What do you want from us in the way of support? Do you want medical information and explanation for what your'e going through? Do you want articles that you can take to the MD's? Do you feel like if you aren't part of the "prayer group" that you won't be answered? Are you afraid to ask a question for fear that you may be put on the spot or called on the carpet because of what you asked? (This is what I'm trying not to do, but know that right now, I'm not always on top of my game-- so I make mistakes) How do you feel about the fact that most of the people posting seem to be strongly faith oriented, and quote Scripture, etc? Is this part of the problem again? Do you think that if someone's name is on the subject line-- that you aren't supposed to read that email? What have we lost (long timers this is for you) that we had in the early days that we don't have now? I don't want anyone to feel that they have to leave the group because I'm having a hard time and am feeling my OWN insecurity. We all have to understand that when the sarc monster jumps us, that these personality issues will come up. It's a rare occasion that I'd call anyone on the carpet unless I feel that what they are doing is something that all of us need to become more aware of-- and that the actions can injure others. Like shoping excursions with active infections going on, lying about our relationships to make others take our side-- yep, I'll say something publicly. My hope for this group is that htis forum will welcome everyone who needs to be here. Religion, faith, dogma, political party-- as long as it doesn't disrupt the group-- we will not censor it. We aren't a forum for politics-- we are worldwide! We have allowed alot more lenency towards faith posts-- and some of of you think that if you're asked to not put Bible scripture that your "rights" are being imposed upon. For others, again it's an insult that if they don't want to publically announce their faith-- that they aaren't good enough in their practice of faith. Both sides feel the other is wrong is asking for what they are comfortable with. It always makes for a challenge for the moderators and owners as we have to remain as neutral as possible. Not an easy task. Please I ask that you take a moment-- and tell us what it is that you want. I'd love to see answers other than yes and know to the questions I've posed. That way we can keep this group growing-- and touch more hearts and minds with a way to make life as livable as possible. Sincerely, Tracie NS Co-owner/moderator Quote Link to comment Share on other sites More sharing options...
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