Re: Brand New to Site: Anyone have advice on getting baby comfortable at night w/DBB

[Guest guest]

Um, they don't " All hate it " and it's not just something you have to suffer

through for the next four years - that's why I think it's something more.

I'd venture a guess here - and maybe we need to do a new poll? - but I'd guess

9.5 out of 10 babies who wear the FAB on this group pretty much don't care about

having it on UNTIL there is an issue with the thing - like it's out grown or

adjusted incorrectly. Initially, that first week might be a booger, but after

that it's almost always a non-issue UNTIL a problem with it arrises OR an

outside problem coincides with it.

Everett's been in it two years now and it's really just a non-issue.

I feel for you, honestly, I'm not trying to poo-poo you in any way - sleep

deprevation is a very dangerous thing for a mother of a baby. Everett was

tongue tied and basically starving to death his first four months and screamed

non-stop 24/7 till we finally located a doctor who was willing to clip his

tongue. Exhaustion doesn't describe it - so ya, I know how desperate you can

get.

Is she wearing the Markell style show or the ? Oh you said Gold Bar,

must be Markells. Have you considered givng the shoe a try? It's way

lighter and more comfortable. Every baby here whose had trouble with the

Markell and switched to the 's has been a success I think.

Are you quite sure the shoe is on correctly? Have you found Kori's list of tips

and tricks? Have you considred cutting the heel out of the shoe?

I mean there's jus tgotta be something here we're missing, kwim?

Are you ABSOLUTELY sure her feet were ready to be in the FAB before you started

using it?

and then again, if she is learning you'll take it off if she screams loud

enough, it could all be psychological to her, not physical anymore.

And with that, too many " breaks " from the FAB can let her feet revert some what

until the FAB really does become painful to wear cuz it won't fit on relapsed

feet.

I don't know if I'm any help or not - I'm just tossing out ideas.

s.

Brand New to Site: Anyone have

advice on getting baby comfortable at night w/DBB

>

>

> Hi. I am new to this group, and am joining, because I feel like

I am

> the only one going through this in my town...My 10 month old was

in

> casts for 8 months (6 mos of poor casting- only to knee in

military

> hospital overseas), and then 2 mos with Ponceti method at a

> children's hospital here in FL. She has had the Dennis Brown Bar

for

> almost 2 months, and although she seems fine with it during the

day,

> she screams almost all night long. I think that as soon as she

gets

> herself close to sleep, she turns to get comfortable, and

realizes

> that she can't move her feet independently, then starts

screaming.

> Once she is finally calm, the process starts all over again in a

> matter of minutes. I am frazzled. My husband is now gone for 6

> months with the Navy and I feel like the doctors just kind of

shrug

> their shoulders when I ask about this as if to say, " She's going

to

> have to tough it out. " She is such a happy baby during the day,

and

> it is killing me that she is so frustrated and sad at night. I

have

> tried holding her, rubbing her, and even tried not going to her

at

> all (which was the worst- I hated that she needed me or help and

I

> wouldn't go to her). I know that the DBB is necessary for her

> development, but does anyone have any advice about how to make

this

> easier on her? What has worked for everyone else for this to be

> long term?

>

>

>

>

>

>

>

>

[Guest guest]

you had to have his tongue clipped?

--- number23 wrote:

> Um, they don't " All hate it " and it's not just

> something you have to suffer through for the next

> four years - that's why I think it's something more.

>

> I'd venture a guess here - and maybe we need to do a

> new poll? - but I'd guess 9.5 out of 10 babies who

> wear the FAB on this group pretty much don't care

> about having it on UNTIL there is an issue with the

> thing - like it's out grown or adjusted incorrectly.

> Initially, that first week might be a booger, but

> after that it's almost always a non-issue UNTIL a

> problem with it arrises OR an outside problem

> coincides with it.

>

> Everett's been in it two years now and it's really

> just a non-issue.

>

> I feel for you, honestly, I'm not trying to poo-poo

> you in any way - sleep deprevation is a very

> dangerous thing for a mother of a baby. Everett was

> tongue tied and basically starving to death his

> first four months and screamed non-stop 24/7 till we

> finally located a doctor who was willing to clip his

> tongue. Exhaustion doesn't describe it - so ya, I

> know how desperate you can get.

>

> Is she wearing the Markell style show or the

> ? Oh you said Gold Bar, must be Markells.

> Have you considered givng the shoe a try?

> It's way lighter and more comfortable. Every baby

> here whose had trouble with the Markell and switched

> to the 's has been a success I think.

>

> Are you quite sure the shoe is on correctly? Have

> you found Kori's list of tips and tricks? Have you

> considred cutting the heel out of the shoe?

>

> I mean there's jus tgotta be something here we're

> missing, kwim?

>

> Are you ABSOLUTELY sure her feet were ready to be in

> the FAB before you started using it?

>

> and then again, if she is learning you'll take it

> off if she screams loud enough, it could all be

> psychological to her, not physical anymore.

>

> And with that, too many " breaks " from the FAB can

> let her feet revert some what until the FAB really

> does become painful to wear cuz it won't fit on

> relapsed feet.

>

> I don't know if I'm any help or not - I'm just

> tossing out ideas.

> s.

>

> Brand New to

> Site: Anyone have

> advice on getting baby comfortable at night w/DBB

> >

> >

> > Hi. I am new to this group, and am joining,

> because I feel like

> I am

> > the only one going through this in my

> town...My 10 month old was

> in

> > casts for 8 months (6 mos of poor casting-

> only to knee in

> military

> > hospital overseas), and then 2 mos with

> Ponceti method at a

> > children's hospital here in FL. She has had

> the Dennis Brown Bar

> for

> > almost 2 months, and although she seems fine

> with it during the

> day,

> > she screams almost all night long. I think

> that as soon as she

> gets

> > herself close to sleep, she turns to get

> comfortable, and

> realizes

>

=== message truncated ===

__________________________________________________

[Guest guest]

,

The doctor who said " they all hate it " is way off, in my view. if

everything has been done right, there shouldn't be continuing

problems. If there are, it often indicates something is wrong and

needs to be fixed.

The (unscientific) poll done here at the site on adjustment time to

the brace (in the Polls section) found that the great majority of us

had no problem with the brace beyond the first few days to a week. my

daughter is 5 and has never had difficulty. No screaming, no hating

it, no sleepless nights, no crying, no blisters, nothing. I attribute

this to her having her foot completely corrected and being put in a

brace set up right from the get-go, with no delay before going into

it, and virtually no time out of it once she got it to allow for even

the slightest relapse, especially at the very beginning.

Honestly, I am not trying to minimize your problems .. I KNOW they

are real. It's so hard when your baby is miserable and you can't help

her, and you're both losing sleep. My point is to let you know that

unusual difficulty; continuing, inconsolable crying; extreme trouble

adjusting to the brace, is NOT normal. So you shouldn't think you

have to endure it. It's usually a warning sign. If the feet have

relapsed even a little, for example, it can make the baby very

uncomfortable. it's definitely something to get to the bottom of.

As to your concerns about long term use.. I can see why you'd be

dreading it, if you were to have to deal with the problems you're

having right now, forever. It might be hard to imagine to you now,

but to me using the brace has become not much different than putting

on my daughter's pajamas. Or brushing her teeth or combing out

tangles from her hair. Or wrangling her into and out of a car seat.

All those things are tedious in their own way, but have to be done,

daily, for many years.

I'm sure when carseats first became required, some older parents

said, " Are you kidding? Use this every time we get in a car till age

3, age 4, and NOW they're saying even longer? Till first grade,

second grade? I can't imagine! No way! " Yet we now think nothing of

it and wouldn't do it any other way.

My way of viewing this .. my child WAS, after all, born with a

congenital condition that requires some special care. It's not much,

really, in the grand scheme of things, once initial correction is

completed.. other conditions or illnesses require a whole lot more.

With this, we end up having to use some bedtime shoes for a while.

Maybe it'll help to think about it that way.

Hope this helps. Hang in there! and let us know if we can help you

get to the bottom of it..

>

> Um, they don't " All hate it " and it's not just something you have

to suffer through for the next four years - that's why I think it's

something more.

>

> > ----- Original Message -----

> From: cricketsmom05

> To: nosurgery4clubfoot

>Even the family practitioner

> that has gone through this says that it is the bar and that they

all

> hate it. Is this just something that we have to live with, and

have

> to live like for the next 5 years? (ortho doc says she will

probably

> be in DBB at night until first grade.That seems like forever

since

> she is only 10 months!)No sleep for baby and mommy = many days of

> tears. Help!

>

>

[Guest guest]

, I just wanted to say that was a great response. We're certainly not new

to this and haven't had too many problems but I still found comfort in your

paragraphs!! DITTO.

and Claire wrote: ,

The doctor who said " they all hate it " is way off, in my view. if

everything has been done right, there shouldn't be continuing

problems. If there are, it often indicates something is wrong and

needs to be fixed.

The (unscientific) poll done here at the site on adjustment time to

the brace (in the Polls section) found that the great majority of us

had no problem with the brace beyond the first few days to a week. my

daughter is 5 and has never had difficulty. No screaming, no hating

it, no sleepless nights, no crying, no blisters, nothing. I attribute

this to her having her foot completely corrected and being put in a

brace set up right from the get-go, with no delay before going into

it, and virtually no time out of it once she got it to allow for even

the slightest relapse, especially at the very beginning.

Honestly, I am not trying to minimize your problems .. I KNOW they

are real. It's so hard when your baby is miserable and you can't help

her, and you're both losing sleep. My point is to let you know that

unusual difficulty; continuing, inconsolable crying; extreme trouble

adjusting to the brace, is NOT normal. So you shouldn't think you

have to endure it. It's usually a warning sign. If the feet have

relapsed even a little, for example, it can make the baby very

uncomfortable. it's definitely something to get to the bottom of.

As to your concerns about long term use.. I can see why you'd be

dreading it, if you were to have to deal with the problems you're

having right now, forever. It might be hard to imagine to you now,

but to me using the brace has become not much different than putting

on my daughter's pajamas. Or brushing her teeth or combing out

tangles from her hair. Or wrangling her into and out of a car seat.

All those things are tedious in their own way, but have to be done,

daily, for many years.

I'm sure when carseats first became required, some older parents

said, " Are you kidding? Use this every time we get in a car till age

3, age 4, and NOW they're saying even longer? Till first grade,

second grade? I can't imagine! No way! " Yet we now think nothing of

it and wouldn't do it any other way.

My way of viewing this .. my child WAS, after all, born with a

congenital condition that requires some special care. It's not much,

really, in the grand scheme of things, once initial correction is

completed.. other conditions or illnesses require a whole lot more.

With this, we end up having to use some bedtime shoes for a while.

Maybe it'll help to think about it that way.

Hope this helps. Hang in there! and let us know if we can help you

get to the bottom of it..

>

> Um, they don't " All hate it " and it's not just something you have

to suffer through for the next four years - that's why I think it's

something more.

>

> > ----- Original Message -----

> From: cricketsmom05

> To: nosurgery4clubfoot

>Even the family practitioner

> that has gone through this says that it is the bar and that they

all

> hate it. Is this just something that we have to live with, and

have

> to live like for the next 5 years? (ortho doc says she will

probably

> be in DBB at night until first grade.That seems like forever

since

> she is only 10 months!)No sleep for baby and mommy = many days of

> tears. Help!

>

>

[Guest guest]

- I have been following your posts and you are such a strong

woman..... I only wish there was more I could do to help you. I previously

mentioned that we went through this nightly screaming for three weeks.

After hitting rock bottom, my mommy-sense told me that SOMETHING had to

change. I just did not know what that something was.... I believed in my

doc, but after much helpful advise from the forum and a trusted friend, I

went for a second opinion. I was SO DESPERATE that I even e-mailed Dr.

Ponseti at some crazy hour of the morning and he recommended a consultation

with Dr. Herzenberg, and he offered to see Maddie himself. After getting

into see Dr. H, he made some adjustments to Maddie's shoes, and again to the

bar. I should tell you that we started with the first Doc, in the reverse

last Markell shoe, the narrow. I did not know any better, but the straight

last are recommended, and she did not need narrow, she need the regular

width. So, in matter on about 5 weeks, we went thru 3 pairs of shoes, 4

different bars, and 1 new doc. Now- three months later, we have switched

to the shoes (she could pull her right foot out.... I tried

EVERYTHING). Dr. Ponseti does highly recommended these shoes and they are

very nice-- soft and much lighter! I can not speak to the long term

results, but Dr. Ponseti told me they were originally designed for babies

that had difficulty with the Markells.

After all this... my suggestion, I can not hurt to consult with another

doc. Check the Ponseti list to find a doc close to you. It can not make

things any worse.... E-mail Dr. Ponseti and ask him about the

shoes and tell him your story. He will get back to you.

Kim

Mom to Maddie, 06/16/2005, BCF

>

> Have you considered getting another opinion about your daughter's

> feet? Many people here send photos to Dr. Ponseti himself. I can't

> remember what particular angles he wants to see, but I'm sure someone

> else can chime in and say what you should send to him, as well as his

> e-mail address.

>

> It doesn't seem like your daughter should be screaming like that

> because of the shoes. My son did that at first, and it turns out the

> shoes weren't fitting him properly, or I was putting them on wrong.

> In any case, he ended up back in casts for a few weeks to heal the

> pressure sores that he started to get (they formed in a matter of a

> day!), and after that we've had no real major problems getting the

> shoes on. Sure, some nights he's a little stinker and kicks at me

> and cries, but I figure he'd do that for some other reason if it

> weren't for the shoes. We all have cranky days afterall.

>

> In any case, if you can send digital photos to Dr. P, he'll get back

> to you quickly and let you know. Otherwise, perhaps the 's

> would be a better option. I haven't heard anything about them not

> working as well, and in fact, I'd think they'd be better. Dr. P

> himself suggests them for the more difficult cases and I can't

> imagine he'd do that if they didn't work as well.

>

>

> > > >

> > > > Maybe the bar is too short, causing discomfort when she lays

> > > down. I'd check on that first.

> > > >

> > > > If the bar is OK then I'd move on towards looking at her

> > sleeping

> > > arrangment. Maybe her feet get stuck between the slats of teh

> > crib

> > > and wake her up, or it's happened before and now she is

> > frightened

> > > of that happening again.

> > > >

> > > > Maybe just the noise of the fab hitting the slats has come to

> > > frighten her.

> > > >

> > > > In either of those I would try putting her to sleep in a play-

> > pen

> > > with net siding instead of crib with wood/metal slats.

> > > >

> > > > If not that, have you tried giving her a sleep-sack instead

> of

> > > blankets? Blankets get tangled on the bar and around the baby

> > > causing frustration, etc.

> > > >

> > > > It may not be FAB related at all, ya know? Is she congested

> > and

> > > can't breath well laying down?

> > > >

> > > > Could it be bad dreams or night terrors have invaded? Are

> > shadows

> > > on the wall freaking her out? Do the stuffed toys come to life

> > in

> > > the dark?

> > > >

> > > > Um, acid reflux creeping in when she lays down?

> > > >

> > > > Is it related to your living conditions changing, new house,

> > new

> > > bedroom, your husband going on tour, etc?

> > > >

> > > > At her age it could be a lot of things. It's easy to assume

> > it's

> > > the FAB cuz it's so obvious but try to dig deeper if you find

> no

> > > problems with the FAB.

> > > >

> > > > Does she have a really set bedtime routine? If not aim to

> > have

> > > one for her, something she can count on every night to happen

> in

> > ABC

> > > order start to finish so she winds down and settles in to

> > sleep.

> > > BAbies need that.

> > > >

> > > > Is she even tired at bed time? Could be too much napy time

> > during

> > > the day ruining her desire to go to bed when you send her.

> > > >

> > > > WEll, hope some of that might help you figure it out. Good

> > luck!

> > > > s.

> > > > Brand New to Site: Anyone

> have

> > > advice on getting baby comfortable at night w/DBB

> > > >

> > > >

> > > > Hi. I am new to this group, and am joining, because I feel

> > like

> > > I am

> > > > the only one going through this in my town...My 10 month

> old

> > was

> > > in

> > > > casts for 8 months (6 mos of poor casting- only to knee in

> > > military

> > > > hospital overseas), and then 2 mos with Ponceti method at a

> > > > children's hospital here in FL. She has had the Dennis

> Brown

> > Bar

> > > for

> > > > almost 2 months, and although she seems fine with it during

> > the

> > > day,

> > > > she screams almost all night long. I think that as soon as

> > she

> > > gets

> > > > herself close to sleep, she turns to get comfortable, and

> > > realizes

> > > > that she can't move her feet independently, then starts

> > > screaming.

> > > > Once she is finally calm, the process starts all over again

> > in a

> > > > matter of minutes. I am frazzled. My husband is now gone

> for

> > 6

> > > > months with the Navy and I feel like the doctors just kind

> > of

> > > shrug

> > > > their shoulders when I ask about this as if to say, " She's

> > going

> > > to

> > > > have to tough it out. " She is such a happy baby during the

> > day,

> > > and

> > > > it is killing me that she is so frustrated and sad at

> night.

> > I

> > > have

> > > > tried holding her, rubbing her, and even tried not going to

> > her

> > > at

> > > > all (which was the worst- I hated that she needed me or

> help

> > and

> > > I

> > > > wouldn't go to her). I know that the DBB is necessary for

> > her

> > > > development, but does anyone have any advice about how to

> > make

> > > this

> > > > easier on her? What has worked for everyone else for this

> > to be

> > > > long term?

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

ee!

I love your attitude-it cracks me up. It frustrates me the doctors

who put the fear of God into parents telling them their children

will not like the FAB-great to hear that from your doctor-oh by the

way I am going to now prescribe for you a torture device for your

child. Great to hear! My son loves his Fab and often can not sleep

at night without. He ran a high fever just recently and we thought

to take it off to give him more comfort but he fought us!! Sure the

transition period sucked-but after 1 year and 2 weeks of brace wear

(we did celebrate the 1 year anniversary)-i gotta say its great to

see how beautiful the little guys feet are!

Hope you are feeling well and taking care of yourself and the future

son!

kathleen

mom to david bcf fab 12.7

> >

> > Maybe the bar is too short, causing discomfort when she lays

> down. I'd check on that first.

> >

> > If the bar is OK then I'd move on towards looking at her

sleeping

> arrangment. Maybe her feet get stuck between the slats of teh

crib

> and wake her up, or it's happened before and now she is

frightened

> of that happening again.

> >

> > Maybe just the noise of the fab hitting the slats has come to

> frighten her.

> >

> > In either of those I would try putting her to sleep in a play-

pen

> with net siding instead of crib with wood/metal slats.

> >

> > If not that, have you tried giving her a sleep-sack instead of

> blankets? Blankets get tangled on the bar and around the baby

> causing frustration, etc.

> >

> > It may not be FAB related at all, ya know? Is she congested

and

> can't breath well laying down?

> >

> > Could it be bad dreams or night terrors have invaded? Are

shadows

> on the wall freaking her out? Do the stuffed toys come to life

in

> the dark?

> >

> > Um, acid reflux creeping in when she lays down?

> >

> > Is it related to your living conditions changing, new house,

new

> bedroom, your husband going on tour, etc?

> >

> > At her age it could be a lot of things. It's easy to assume

it's

> the FAB cuz it's so obvious but try to dig deeper if you find no

> problems with the FAB.

> >

> > Does she have a really set bedtime routine? If not aim to

have

> one for her, something she can count on every night to happen in

ABC

> order start to finish so she winds down and settles in to

sleep.

> BAbies need that.

> >

> > Is she even tired at bed time? Could be too much napy time

during

> the day ruining her desire to go to bed when you send her.

> >

> > WEll, hope some of that might help you figure it out. Good

luck!

> > s.

> > Brand New to Site: Anyone have

> advice on getting baby comfortable at night w/DBB

> >

> >

> > Hi. I am new to this group, and am joining, because I feel

like

> I am

> > the only one going through this in my town...My 10 month old

was

> in

> > casts for 8 months (6 mos of poor casting- only to knee in

> military

> > hospital overseas), and then 2 mos with Ponceti method at a

> > children's hospital here in FL. She has had the Dennis Brown

Bar

> for

> > almost 2 months, and although she seems fine with it during

the

> day,

> > she screams almost all night long. I think that as soon as

she

> gets

> > herself close to sleep, she turns to get comfortable, and

> realizes

> > that she can't move her feet independently, then starts

> screaming.

> > Once she is finally calm, the process starts all over again

in a

> > matter of minutes. I am frazzled. My husband is now gone for

6

> > months with the Navy and I feel like the doctors just kind

of

> shrug

> > their shoulders when I ask about this as if to say, " She's

going

> to

> > have to tough it out. " She is such a happy baby during the

day,

> and

> > it is killing me that she is so frustrated and sad at night.

I

> have

> > tried holding her, rubbing her, and even tried not going to

her

> at

> > all (which was the worst- I hated that she needed me or help

and

> I

> > wouldn't go to her). I know that the DBB is necessary for

her

> > development, but does anyone have any advice about how to

make

> this

> > easier on her? What has worked for everyone else for this

to be

> > long term?

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

and ,

I will try to post some pics tonight, maybe on Snapfish? I will try

both that and CFPics yahoo group, but I've tried that for a few days

and for some reason I keep getting msgs. saying unable to post. I'm

probably just tired. I'll try again and see which I have the most

success with. She got a new pair of shoes last week, and those made

pressure sores on the tops of her feet, so that explains this week's

discomfort (but not the last two months =-O). Went to the doc Monday

when I discovered them, and he saw her again Wed. I asked about the

new Markells (1645 - right now she is in 1934), and the doctor was

not sure about them and asked that I bring in a picture. I happened

to have brought one in, and they are going to order them for .

I also asked him about the adjustable bar, but he said because it is

already at shoulder length, bolt to bolt, that it is a good length.

Anyway, she does not nap well with DBB, but during her waking day,

she is fine with it on. She seems happy, and crawls around just

fine. Only since the DBB has she started to sleep on her tummy, or

more like in a fetal postition on the side of her face. We have

tried rolling blankets under her knees in the beginning, but she

didn't care too much for that. In the beginning especially, she

tried to roll over onto her side, which then, of course led to one

leg being stuck straight in the air. I know that would wake anyone

up! The doctor has us out of the shoes for this week while her

bruises heal. It's a miracle, but she is sleeping 10 hours a night

without even stirring! I, on the other hand still feel like I need

to sleep with one eye open. I'm almost afraid that she is sleeping

too soundly - I know that sounds silly, but after all, we have never

had this! I'm sure that by tongiht, my exhaustion will kick in, and

I will sleep too. We are going to see yet a third ortho on the 19th.

New ortho doc at the children's hospital just moved to the area, and

has a particular interest in clubfoot. We'll see if she offers any

different opinion...

Anyway, thanks for the follow up. Hadn't posted them yet since she

had those new pressure sores from the new shoes. I figured everyone

would say, " Well, of course! That's the problem!. " But really, this

is new with the new shoes, I think that they are so stiff, I am

having trouble getting her heel down all of the way, and they are

bigger, so she is slipping out more easily. The old shoes were so

well broken in and supple that this was never a problem (though she

cried all night with them on too).

Thanks again,

>

> ,

> Can you share pictures with us of her bare feet, and pictures of

her

> in the brace also? (either through a website like yahoo pics,

> photobucket etc. or through the CFPics yahoo group) Maybe there is

> something that we'll see in the pictures that will help generate

ideas

> as to how to fix the issue.

> Does she nap okay in the brace? I can't remember if you said she

was

> in it fulltime still? She's got no issues during the day, just at

> night, right?

> Does she like to sleep in a particular position (tummy, side etc.)

and

> can't get comfortable?

> I would suggest that you have your orthotist order the adjustable

> length red bar now, and when that comes in, you might have better

luck

> in adjusting the length to find a more comfortable distance for

her.

> Hang in there.....

>

> & (3-16-00, lcf)

>

[Guest guest]

Kim,

Thank you so much for your words of encouragement! I think that as I

read one of the posts from another member (prior to my rant below),

I felt attacked. I know that wasn't the intent, but at 4:15 in the

morning, I was bleary-eyed and trying to resist going to her as she

screamed...

That same night, I emailed Dr. Ponseti a few times (but deleted them

before I hit send). We are going to see our third ortho doc on

Monday, the 19th...dd is in the reverse shoes, and they are narrow

also. Of course, before I found this group, I didn't even know that

there was a difference. I just trusted that the doctor was giving

her the best that there was. I took him a picture of the new

Markells with the hole in the heel, and he had never seen the likes

before. They are ordering those for her. Who knows, though...They

may be narrow also. Anyway, he has her out of her shoes for this

week (I'm not sure that was the best thing, but her brand new, week

old, stiff shoes were causing pressure sores. Her old ones never did

anything like that, though she still screamed all night.), and it's

been a miracle! She is sleeping 10 hours/night!!! It has to be

something to do with the shoes.

Again, thanks for the boost! I really needed it! =-D

> > > > >

> > > > > Maybe the bar is too short, causing discomfort when she

lays

> > > > down. I'd check on that first.

> > > > >

> > > > > If the bar is OK then I'd move on towards looking at her

> > > sleeping

> > > > arrangment. Maybe her feet get stuck between the slats of

teh

> > > crib

> > > > and wake her up, or it's happened before and now she is

> > > frightened

> > > > of that happening again.

> > > > >

> > > > > Maybe just the noise of the fab hitting the slats has

come to

> > > > frighten her.

> > > > >

> > > > > In either of those I would try putting her to sleep in a

play-

> > > pen

> > > > with net siding instead of crib with wood/metal slats.

> > > > >

> > > > > If not that, have you tried giving her a sleep-sack

instead

> > of

> > > > blankets? Blankets get tangled on the bar and around the

baby

> > > > causing frustration, etc.

> > > > >

> > > > > It may not be FAB related at all, ya know? Is she

congested

> > > and

> > > > can't breath well laying down?

> > > > >

> > > > > Could it be bad dreams or night terrors have invaded?

Are

> > > shadows

> > > > on the wall freaking her out? Do the stuffed toys come to

life

> > > in

> > > > the dark?

> > > > >

> > > > > Um, acid reflux creeping in when she lays down?

> > > > >

> > > > > Is it related to your living conditions changing, new

house,

> > > new

> > > > bedroom, your husband going on tour, etc?

> > > > >

> > > > > At her age it could be a lot of things. It's easy to

assume

> > > it's

> > > > the FAB cuz it's so obvious but try to dig deeper if you

find

> > no

> > > > problems with the FAB.

> > > > >

> > > > > Does she have a really set bedtime routine? If not aim

to

> > > have

> > > > one for her, something she can count on every night to

happen

> > in

> > > ABC

> > > > order start to finish so she winds down and settles in to

> > > sleep.

> > > > BAbies need that.

> > > > >

> > > > > Is she even tired at bed time? Could be too much napy

time

> > > during

> > > > the day ruining her desire to go to bed when you send her.

> > > > >

> > > > > WEll, hope some of that might help you figure it out.

Good

> > > luck!

> > > > > s.

> > > > > Brand New to Site: Anyone

> > have

> > > > advice on getting baby comfortable at night w/DBB

> > > > >

> > > > >

> > > > > Hi. I am new to this group, and am joining, because I

feel

> > > like

> > > > I am

> > > > > the only one going through this in my town...My 10

month

> > old

> > > was

> > > > in

> > > > > casts for 8 months (6 mos of poor casting- only to

knee in

> > > > military

> > > > > hospital overseas), and then 2 mos with Ponceti method

at a

> > > > > children's hospital here in FL. She has had the Dennis

> > Brown

> > > Bar

> > > > for

> > > > > almost 2 months, and although she seems fine with it

during

> > > the

> > > > day,

> > > > > she screams almost all night long. I think that as

soon as

> > > she

> > > > gets

> > > > > herself close to sleep, she turns to get comfortable,

and

> > > > realizes

> > > > > that she can't move her feet independently, then starts

> > > > screaming.

> > > > > Once she is finally calm, the process starts all over

again

> > > in a

> > > > > matter of minutes. I am frazzled. My husband is now

gone

> > for

> > > 6

> > > > > months with the Navy and I feel like the doctors just

kind

> > > of

> > > > shrug

> > > > > their shoulders when I ask about this as if to

say, " She's

> > > going

> > > > to

> > > > > have to tough it out. " She is such a happy baby during

the

> > > day,

> > > > and

> > > > > it is killing me that she is so frustrated and sad at

> > night.

> > > I

> > > > have

> > > > > tried holding her, rubbing her, and even tried not

going to

> > > her

> > > > at

> > > > > all (which was the worst- I hated that she needed me or

> > help

> > > and

> > > > I

> > > > > wouldn't go to her). I know that the DBB is necessary

for

> > > her

> > > > > development, but does anyone have any advice about how

to

> > > make

> > > > this

> > > > > easier on her? What has worked for everyone else for

this

> > > to be

> > > > > long term?

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

,

I have recently formatted my hd so I don't have the notification

emails on this puter anymore (emails saved, just not in this version

of email program) but I did not see a survey come through from you

yet. That is what we need to approve your membership to CFPics. Did

you notice the file sent to you when you subscribed? If not, look

back and find the file, read it, and fill out the survey there so we

can approve you. Then you will be able to send pics to the list. I

am going to go look at yahoo right now to see if you're still waiting

for approval and get you approved if so... but we will still need

your survey. When you finish, send it to me and I will fwd to the

list to introduce you.

OK, sorry for the delay on this. I will do some checking. If you

have already sent it to me I apologize for not seeing it. Can't wait

to see those tootsies, and don't forget to send some of her face too!

Kori

CFPics Owner

At 08:18 AM 12/16/2005, you wrote:

> and ,

>

>I will try to post some pics tonight, maybe on Snapfish? I will try

>both that and CFPics yahoo group, but I've tried that for a few days

>and for some reason I keep getting msgs. saying unable to post. I'm

>probably just tired. I'll try again and see which I have the most

>success with. She got a new pair of shoes last week, and those made

>pressure sores on the tops of her feet, so that explains this week's

>discomfort (but not the last two months =-O). Went to the doc Monday

>when I discovered them, and he saw her again Wed. I asked about the

>new Markells (1645 - right now she is in 1934), and the doctor was

>not sure about them and asked that I bring in a picture. I happened

>to have brought one in, and they are going to order them for .

>I also asked him about the adjustable bar, but he said because it is

>already at shoulder length, bolt to bolt, that it is a good length.

>Anyway, she does not nap well with DBB, but during her waking day,

>she is fine with it on. She seems happy, and crawls around just

>fine. Only since the DBB has she started to sleep on her tummy, or

>more like in a fetal postition on the side of her face. We have

>tried rolling blankets under her knees in the beginning, but she

>didn't care too much for that. In the beginning especially, she

>tried to roll over onto her side, which then, of course led to one

>leg being stuck straight in the air. I know that would wake anyone

>up! The doctor has us out of the shoes for this week while her

>bruises heal. It's a miracle, but she is sleeping 10 hours a night

>without even stirring! I, on the other hand still feel like I need

>to sleep with one eye open. I'm almost afraid that she is sleeping

>too soundly - I know that sounds silly, but after all, we have never

>had this! I'm sure that by tongiht, my exhaustion will kick in, and

>I will sleep too. We are going to see yet a third ortho on the 19th.

>New ortho doc at the children's hospital just moved to the area, and

>has a particular interest in clubfoot. We'll see if she offers any

>different opinion...

>

>Anyway, thanks for the follow up. Hadn't posted them yet since she

>had those new pressure sores from the new shoes. I figured everyone

>would say, " Well, of course! That's the problem!. " But really, this

>is new with the new shoes, I think that they are so stiff, I am

>having trouble getting her heel down all of the way, and they are

>bigger, so she is slipping out more easily. The old shoes were so

>well broken in and supple that this was never a problem (though she

>cried all night with them on too).

>

>Thanks again,

>

>

>

>

>

>

> >

> > ,

> > Can you share pictures with us of her bare feet, and pictures of

>her

> > in the brace also? (either through a website like yahoo pics,

> > photobucket etc. or through the CFPics yahoo group) Maybe there is

> > something that we'll see in the pictures that will help generate

>ideas

> > as to how to fix the issue.

> > Does she nap okay in the brace? I can't remember if you said she

>was

> > in it fulltime still? She's got no issues during the day, just at

> > night, right?

> > Does she like to sleep in a particular position (tummy, side etc.)

>and

> > can't get comfortable?

> > I would suggest that you have your orthotist order the adjustable

> > length red bar now, and when that comes in, you might have better

>luck

> > in adjusting the length to find a more comfortable distance for

>her.

> > Hang in there.....

> >

> > & (3-16-00, lcf)

> >

>

>

>

>

>

>

>

>

[Guest guest]

Jumping in here in the middle but it concerns me to read there is no healing

cast involved. But on the flip side when Everett had major issues with his

Markell in the beginning (couple months old) he was out of his FAB more than he

was in it before we got our FAB - and it had no effect on him, meaning

he didn't lose correction. I don't recommend time out of the FAB, more likely

we were blind stinking lucky.

s.

Re: Brand New to Site: Anyone have advice on

getting baby comfortable at night w/DBB

No, I asked, but the doctor said no...

> > >

> > > ,

> > > Can you share pictures with us of her bare feet, and pictures

of

> > her

> > > in the brace also? (either through a website like yahoo pics,

> > > photobucket etc. or through the CFPics yahoo group) Maybe

there

> is

> > > something that we'll see in the pictures that will help

generate

> > ideas

> > > as to how to fix the issue.

> > > Does she nap okay in the brace? I can't remember if you said

she

> > was

> > > in it fulltime still? She's got no issues during the day, just

at

> > > night, right?

> > > Does she like to sleep in a particular position (tummy, side

> etc.)

> > and

> > > can't get comfortable?

> > > I would suggest that you have your orthotist order the

adjustable

> > > length red bar now, and when that comes in, you might have

better

> > luck

> > > in adjusting the length to find a more comfortable distance

for

> > her.

> > > Hang in there.....

> > >

> > > & (3-16-00, lcf)

> > >

> >

>

[Guest guest]

,

You have my most sincerest apology if I made you feel attacked Sweetie, I'm so

sorry. It's easy to be on the out side looking in but it sucks to be on the

inside looking out when it seems the whole world is falling down around you. My

dh has accused me of being too blunt - I reckon sometimes I don't recognize that

in my posts.

As for the tongue-tied, kind of like club feet every one's is a bit different

and if it doesn't affect you or your child that's great. Everett would become

exhausted trying to eat though and not get enough to hold him more than 20

minutes at a time. The doctor that we finally found who would do it (many

looked and agreed he coudln't eat but wouldn't clip it) - well he looked in

Evy's mouth, said Yup, sprayed a numbing agent in there and snipped it - start

to finish it was about 5 minutes and $300.00! I took him to the parking lot and

nursed him in the car. He ate and ate and ate and ATE and ATE! It was kind of

funny how much he ate not fifteen minutes after it was fixed - then he slept for

hours. He hadn't slept more than half an hour at a time since birth... and

that's the day we got our baby. The previous four months all we had was a

screaming mi-mi who even the two grandma's complained, " Gee we can't even enjoy

him because all he does is cry! " Pretty sad to hear a grandma say that

You know your baby, we don't, and I am sorry if it comes out sounding like we

do. But what I really mean is that you know your baby more than anyone else

and you know when something is not right before anyoen else, even those doctors

who say " nothing is wrong " (a few said that to us too even though we knew

differently). So with that, despite what the world has to say about it, just

follow your own gut and do what you believe is the right thing.

anyway, I'll shut up now but I am sorry for being a blunt instrument.

s.

Brand New to Site: Anyone

> > have

> > > > advice on getting baby comfortable at night w/DBB

> > > > >

> > > > >

> > > > > Hi. I am new to this group, and am joining, because I

feel

> > > like

> > > > I am

> > > > > the only one going through this in my town...My 10

month

> > old

> > > was

> > > > in

> > > > > casts for 8 months (6 mos of poor casting- only to

knee in

> > > > military

> > > > > hospital overseas), and then 2 mos with Ponceti method

at a

> > > > > children's hospital here in FL. She has had the Dennis

> > Brown

> > > Bar

> > > > for

> > > > > almost 2 months, and although she seems fine with it

during

> > > the

> > > > day,

> > > > > she screams almost all night long. I think that as

soon as

> > > she

> > > > gets

> > > > > herself close to sleep, she turns to get comfortable,

and

> > > > realizes

> > > > > that she can't move her feet independently, then starts

> > > > screaming.

> > > > > Once she is finally calm, the process starts all over

again

> > > in a

> > > > > matter of minutes. I am frazzled. My husband is now

gone

> > for

> > > 6

> > > > > months with the Navy and I feel like the doctors just

kind

> > > of

> > > > shrug

> > > > > their shoulders when I ask about this as if to

say, " She's

> > > going

> > > > to

> > > > > have to tough it out. " She is such a happy baby during

the

> > > day,

> > > > and

> > > > > it is killing me that she is so frustrated and sad at

> > night.

> > > I

> > > > have

> > > > > tried holding her, rubbing her, and even tried not

going to

> > > her

> > > > at

> > > > > all (which was the worst- I hated that she needed me or

> > help

> > > and

> > > > I

> > > > > wouldn't go to her). I know that the DBB is necessary

for

> > > her

> > > > > development, but does anyone have any advice about how

to

> > > make

> > > > this

> > > > > easier on her? What has worked for everyone else for

this

> > > to be

> > > > > long term?

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >