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Re: Iron Infusion Update

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At 04:26 PM 3/16/2010, you wrote:

I got home from my iron infusion

about 2 hours ago.

<hugs> Lady....

I hope you feel better soon. I was talking to my sister when your note

came in and said, " Hmm.... " because passing out over needles is

what SHE does, too!

Take care of yourself.

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

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Whenever I get my first infusion, I have a bad reaction. I don't get abdominal

pain, but I do get really cold and achy, and ultimately vomit. The weird thing

is that I have no problem with the 3 infusions that follow. This has happened on

(I think) 3 different occasions.

So if you're anything like me, you'll be fine on your next infusion. Did they

give you benadryl and anti-nauseas meds? They don't help me on the first

infusion, but they do help some people.

Feel better!

Holly

Crohn's

SCD 12/01/08

>

> Hey guys,

>

> I got home from my iron infusion about 2 hours ago. We decided to go

> with the sucrose, just to be safe. When they first put in the IV, I

> almost passed out, because that's just what I do, so it took much

> longer to actually get me in the chair with the iron hooked up to me.

> After that I was okay though, and I was able to get on my computer, do

> my homework, and be pretty comfortable doing it. I was going to email

> you guys during it, but I couldn't send emails from there, even though

> I could receive them.

>

> So everything went well up until about the last half hour, when I

> stated getting some soreness in fort of a band around my abdomen, in

> my solar plexus/stomach/bottom of rib cage area. At first I thought it

> was just from sitting for so long, but it got worse, so they called my

> GI doctor to come check me out. She said everything seemed fine, and

> that I could take some tylenol for the pain if necessary.

>

> On the way home, things got much worse. I could definitely tell by now

> that the pain was in my stomach, and it wasn't nausea, just really bad

> pain/soreness that radiated through to my back. It stayed like that

> from after the iron infusion, which was about 2:15, until about half

> an hour ago, at 5:45. So, pretty miserable.

>

> At this point we were wondering if it was maybe a new food I had

> introduced, since I had some raw apple for the first time yesterday,

> then more today. But then at about 5:45 when the pain stopped, I got

> really nauseous, and I just came back from a lovely bout of violent

> vomiting. So now I'm guessing it's not the raw apples, since I

> introduced four new foods in one day a couple weeks ago without this

> bad of a reaction.

>

> We looked online to see possible side affects of the iron infusion,

> and nausea, vomiting, abdominal pain, and D (which I also just had)

> were listed, so I'm now thinking it was the iron that gave me this

> reaction.

>

> I'm wondering if any of you have had similar side effects such as these?

>

> Peace =)

> Alyssa 16 yo

> UC April 2008, dx Sept 2008

> SCD June 2009 (restarted)

> Azathioprine 50 mg 1x per day

> Prednisone 35 mg 1x per day

>

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