Re: reassurance?

[Guest guest]

Hi Kaci,

You are not alone in finding the shoes more difficult than the casting. I found

that to be true, as well. With the casts, I just had to take her to lots of

doctor's appointments and make sure her toes were okay. The shoes are much more

responsibility on the parent, in my opinion. I was actually afraid to stop

going weekly to the orthopedist. LOL I trusted him but didn't feel confident

about the orthotists or my own ability to manage the shoes. We did have a bad

experience in the Markells (pressure sore) and she took about a week to adjust

to the s...but managing the shoes is becoming much more routine now. We

are almost two weeks into it. I did end up going to Iowa because I had some

questions about 's feet which couldn't be answered by our local ortho and

Dr. Ponseti casted before she went into the shoes...so it could be that

your gut feeling is based on a problem with your son's feet or it could be that

you both are adjusting to the shoes and his feet are fine. It took a

full week to adjust to the shoes...and she still gets mad when I put them back

on after her break. So sometimes I hardly do a break because of this. We have

a system now. I know how to put on the shoes, what to do with her socks, where

to put gauze padding to prevent red spots, etc. It still takes effort but not

nearly as much thought as it did at first. I have more confidence that I am

doing what I need to do for her.

BTW, 's toes have always curled under. Dr. Ponseti and her local ortho

both said this would self-correct. Take care,

Carol

reassurance?

I have only posted once before but read a lot of messages and have

feel like I've learned so much from everyone. If possible I just

need some reassurance - our son's doctor seems to know what he's

doing, he has all the " right " answers to our questions, and I can

see a difference in 's feet from one cast to the next. We

have completed the casting phase and he now has a DBB. Is it normal

to find this much more stressful than the casting? I worry that we

aren't putting his feet in the shoes correctly and somehow that

leads me to worry that his feet haven't been fully corrected. Is

this just something I have to suck up and get over? I guess I just

worry and wonder how we know that we are doing the right thing, with

the right doctor.

I've noticed that his toes want to curl under - is this normal? On

his left foot especially, his pinky toe goes under his other toes.

Is this unrelated to the cf treatment?

One last question, how long does it normally take for the child to

adjust to the bar and shoes? is usually a happy baby but

since Friday he cries out for no obvious reason. I think it's

because he's adjusting to the bar/shoes. How long should I expect

this to last?

Sorry this got long, thanks for any advice or reassurance if you

made it this far

Kaci